Re: Dwell symptoms rule, "short enough?"
Hooray Shirley;You are now promoted to Guru. I have always tried to live that way, if there is something I can do nothing about and yet I must still live with it, I try to shove it as far back as possible and I use humor as a way to try to bury it. By the way, I thought I read where you said you have a lawyer son. So here goes. A man was walking across a field when he heard a voice from above, “Hello, where am I?” The man said, “You are in a hot air balloon hovering 30 feet above the ground.” The guy in the balloon said, “ You are an engineer aren’t you?” The first man said, “Yes, how did you know?” The man in the balloon said, “While everything you told me is technically correct, the information is totally worthless.” The man on the ground said, “You must be a lawyer.” The man in the balloon said, “Why yes I am, but how did you know?” The man on the ground said, “You don’t know where you are or how to get where you are going, you are in exactly the same position you where in before you met me but yet somehow its now my fault.” John – who hasn’t found a way to turn a profit out of BEB yet, thought of taking it to D.C. and selling it to some senator, but they would probably just make it mandatory for everyone and then we would no longer be unique.
Re: Dwell symptoms rule, "short enough?"
Hi John, I'm Sally, not Shirley, and yes ... I do have a lawyer son. I keep a scrapbook for him of lawyer bashing cartoons and jokes, so will add yours to it.As for taking BEB to Washington, D.C. ... they'd tax it!! Sally in North Idaho
Re: Dwell symptoms rule, "short enough?"
John, this is an absolutely wonderful joke. Having worked with many attorneys, you hit the nail squarely on the head.May I share one with you? My husband is a very faithful servant of the Lord, and believes that prayer solves every problem, where I think God allows these problems in an effort to teach you something you need to learn, so as you can imagine, we have held some pretty good discussions on the philosophy behind these beliefs. I told him this joke as part of one of these discussions. There was a huge flood in this little town and it continued to rain abundantly for days. John stood on his porch watching, until the rain covered his porch and ran into the living room. He started to get scared, and went upstairs where it was dry, and he began to pray to God to deliver him from the flood and the danger it presented to him. He prayed and prayed, and finally the water started coming into the 2nd. floor windows. About this time, a rowboat came, and the men encouraged him to get in. He told them no, and said his Lord would deliver him. He then crawled up onto the roof, and stood in the downpour praying loudly for deliverence. A helicopter came by and threw him a rope, but he refused to take it, believing the Lord would deliver him. Finally, the water was nearly up to his waist and he was about to be carried away by the water, and he shouted, "Lord I believed in you, why haven't you saved me?" And a booming voice came out of the sky, "John, I have sent a rowboat and a helicopter, what more can I do?"
Re: Dwell symptoms rule, "short enough?"
Joanne, Wonderful message. You made the point and I agree.
Evelyn
Re: Dwelling on symptoms
Sally,
Maybe we do overanalyze our symptoms, but I think it's an attempt to understand our condition and to try to figure out what is BEB, what may be meds and treatment, and what may be totally unrelated. I also try to watch my symptoms to see what brings them on and what makes them go away (or lessen). Yes, there is a lot of discussion of symptoms on the BB, but BEB is the focus here (sometimes) and we can learn from those discussions. We can also help others to understand that they aren't alone with their symptoms.Away from the board, I do go about my life as normally as I can without dwelling on the symptoms and the disorder, though accommodation is often necessary (carrying drops, taking naps, etc.). Some symptoms are easier to adapt to, some I want to fight as long as I can. I'm not going to give up seeing without a big fight. I can't pretend I don't have BEB, but I can integrate it into my life and get on with other things most of the time. But here on the board, it helps to compare and commiserate with others who share the condition. Just my opinion,
Virginia in AL - had to shorten subject, too long - probably should have shortened post, too.
Re: Dwelling on symptoms
Virginia, I'm glad you didn't shorten your post, cause if you had, I would have had to say all you said. I agree totally on every part of it. But I would add one thing - it seems someone tries something and many want to run out to try the same. I can't get myself to do that. I think it's great to share what has worked, but it seems that overall, anything anyone has tried is still only temporary.
Trying to live with it and fit it into your life is probably the best way to go. Naps - sometimes I resent "wasting my time" doing it, but oh, it sure provides the best relief. Last night my husband was more than willing to take me out for my pizza fit, but my eyes hurt so bad, that couldn't even get me out of the house. So we settled for hot chicken slices in gravy over bread with mashed potatoes. poor substitute for a pizza fit.
Getting back to your post (how did I get so far off?), while I can't get myself to try all the things others try on the board, I agree that sharing helps us learn more about BEB. It also helps ease the struggle.graceanne in Port orcard
Do we dwell too much on our symptoms and let them rule us?
If symptoms and feelings and methods of coping had not been put on the BB then approximately a little less than a year ago I would never have been able to figure out what all these weird symptoms were so that I could take the info to my doctor (who was also stumped, but still trying) and say 'Look this is me. I have all of this'. And just recently when my vision started getting blurry a few days after my second series of Botox, I thought I remembered someone posting about blurred vision. So instead of panicking and calling my doctor I posted the question here and had my answers within hours.
Do we dwell too much on our symptoms and let them rule us?
oops, i just remailed joyce in n.c. about our recent bad weather and how we were going to exchange experiences. are you the one i said i would do this with? sorry. please respond; do you find that it's hard to talk to anyone when you are in pain. i do until after it's over or at least lessens. it's exhausting!
Re: response to sally
sally, i think from a scientific viewpoint, keeping track of factors that might affect BEB is important, especially with global warming if that affects your eyes unusually as it did mine last summer, and that could have been other factors as well. Diet, stress,wind , all these things can be catalysts in triggering spasms. But you're right; sometimes if your eyes are fine, just enjoy it and life. When i have bad pain when my eyes are sometimes just fine, I really start to wonder what is causing it!
Re: Do we dwell too much ... Answered
I think my question has been answered, with the general consensus being that we DO NEED to talk about our symptoms, fears, and hopes ... at least here on the BB and in support groups (if you are fortunate enough to have one). It appears that most of us who talk here on the BB have a healthy outlook on life and do not go around moaning and complaining about our limitations to the general public. We adapt and get on with life the best way we can in our individual ways.Clara e-mailed me that she is having trouble posting, but she definitely thinks there is a need for this sharing type of "complaining" and said that it has helped her immensely. Thanks for thinking through this with me. Sally in North Idaho
Re: Do we dwell too much ... Answered
I have just been on the bb for a couple of weeks. It is helping me so much.Listing to allof you makes me understand that i am not alone trying to cope with this. I like the wit you have. Laugthter helps alot. colleen
Re: Do we dwell too much ... Answered
I am a strong believer that telling our stories is healing for us and for others. Many people have validated that with their comments here. I can't imagine where I would be if people hadn't shared. Posting and reading the posts of others helps me get it off my chest, receive comfort and support so that I can then face the rest of the world with a more positive attitude and I don't have to watch other people's eyes glaze over when they ask how I'm doing ....I don't have to give them long details....I just say "some days are better than others" or "I'm doing ok". After posting and reading posts, I can cope better and not dwell on thoughts of "what if" and "why me". That's what seems harmful to me, to dwell on things I can't control or change. The good laughs and the feeling that I have people who truly understand and care help me feel that life is still good, so I don't have to dwell on the negative when I log off. I think we have balanced sharing the reality of the symptoms and shared what works for us with some good old fashion friendship and love that keeps me feeling blessed despite the BEB.
Re: Do we dwell too much ... Answered
I agree wholeheartedly with everything you've said, couldn't have said it better myself. As a matter of fact, couldn't have said it as well.
Christel in CA. where it was supposed to be snowing, but isn't.
Re: Do we dwell too much ... Answered
Thanks a lot Christel. I can't do crossword puzzles, word scrambles or spell out loud...
Thanks Christel. I can't do crossword puzzles, scramble word puzzles, spell outloud.....heck, I can't spell worth a flip, but I sure know how to speak with words from my heart and I know it is a gift and a talent for saying what some other people feel too and it resonates from within.
328
Re: Do we dwell too much ...
People have been noticing my eye "condition" a lot more, or perhaps are hearing of it from other people who know what is going on. Anyway, they are more often inquiring about it (usually of other people than myself). When my husband is asked about it, his response is "It's like a Charlie horse in her eyes and she TAKES BOTULISM for it." That raises a lot of questions about why I would TAKE one of the most deadly poisons known to man. So then I have a chance to explain when they confront me with the question.Sally
Re: Do we dwell too much ...
Sally, where would we go for information if it were not for the Bulletin Board? I think I have learned more about this disease from this board than I have from the doctors. What if no one had posted what was happening to them? I have seem at least 2 people in the last couple of days that posted with a problem - got some logical answers and it relieved their mind. Everyone is different yet we are connected because of this eye disease. Where would we go for support and sympathy? Our family and friends as much as they want to help can't possibly know and understand what we are going through. Most important - I think - is the fun, the laughs, the friendships (from complete stangers ). I have come to the Bulletin Board having a terible day and after reading the post I begin to laugh, sometimes I have even cried but just communicating with others who are going through the same things that I am just lifts the spirit and that enables me to get through another day. So I say, keep on posting all the weird different things that are happening to us, maybe it will help someone who is reading the board and give them encouragement, enlightment and just plain relief to just know that thre is a place to get information and have some fun also. ' Joyce in NC where the warm temperatures are changing back to the cool temperatures - but that's the way weather is here in NC. It is always changing.
Re: Do we dwell too much ...
I would encourage all of you to keep "telling it all". Before I started reading this board, I had no idea that anything like these disorders existed, except for a brief introduction to it from Judy. I didn't know it was so widespread, nor that so many people were afflicted. You have all given me more courage to face my disorders, even though they are different from yours.
Evelyn
Re: Do we dwell too much ...
sally, after years and years of trying to describe the pain to those who asked and still couldn't understand, my boyfriend asked me if it was like a charley horse and i said yes! Finally he can identify! Men go thru charley horses alot with their usual sports upbringings and know how painful they are. good to hear someone else used this analogy and what a coincidence.
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