Re: info re blepharospasm
Hi Patricia, welcome to the bulletin board. I have been getting botox for 6 years now - I have beb/meige, I get about 12 injections and 90 units of botox. Boxtox works reasonably well for me and I go 4-6 months between treatments - I do have a lot of side effects for about 3-4 weeks after the injections (pain, burning, etc.) The meige is only really bothersome when the botox wears off. I use preservative-free drops/creams constantly, day and night, 365 days of the year, can now watch tv and see a movie (could do eithr for 2 years), as long as its not a James Bond-type with flashing lights. I can't read a book, only short articles and don't look at this computer as I type - only when the movement stops - I cannot use the chat room on this board. I drive short distances but did have to give up my job because of this disease - its not much fun, but life can be good with some changes, a positive outlook and hope for the future. Best wishes. June in Toronto
Re: info re blepharospasm
I have had Botox only twice. The first time I sat for the Botox in the neck (for spasmodic torticollis) and lay down for the ones in the eyelids. I had good effect within 24 hours and was able to go for a little over 6 months before I had to go again in order to be able to keep driving and working. I had my second set two weeks ago and once again started having good effect the next day. I sat up for both the neck and eyelids this time. I have no idea how many injections I am given nor the total amount of Botox. I am very lucky that I can take enough Botox and medication to continue with a fairly normal life. There is a lot of adapting to do. You find what you can do and let go of what you can't.
Re: info re blepharospasm
Judi - you might find it interesting to know how many units of botox you get for the neck - and then for the eyelids and also the number of sights injected. Its worth being well-informed for future reference. June in Toronto
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