You heard of Lamotrigine


Posted by Jenny Robo (JENNY ROBINSON,Jenny Robo), Feb 12,2001,21:17   Archive
Hello

Has anyone used or heard of Lamotrigine. I have seen my specialist today, and we are both agreed that the phenytoin has outlived its usefulness. I am steadily getting worse, and life is getting quite difficult.

He has decided to try Lamotrigine, however, he also has asked if I wanted to switch to the other specialist for my treatment. I was very depressed when I saw him today, I had told him that my hands where starting to fail, and that I was getting big red hot lumps in various places, and that Id lost my job, he asked me why I was so negative - duh. So I told him.

Anyway, any info would be brilliant

Thanks

Love yus all

Jenny




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Re: You heard of Lamotrigine

Re : You heard of Lamotrigine --- Jenny Robo
Posted by Sally - in - Idaho , Feb 12,2001,21:31 Top of Thread Archive
Oh Jenny, I'm so very sorry that things aren't going well for you. I had high hopes after your show and tell session with all those doctors, that they would come up with positive treatments. I'm glad you came back to us to let us share your sadness and comfort you. What is causing the red, hot lumps ... do they know? Are they like a fatty tumour or what? Maybe Shirley will send you some cyber Rice Krispie treats. I'm sending a BIG HUG and prayers.

Sally in Idaho, USA




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Re: You heard of Lamotrigine

Re : You heard of Lamotrigine --- Jenny Robo
Posted by Dee in OR (Dee L.,Dee in OR), Feb 12,2001,21:51 Top of Thread Archive
Hello Luv,

The BIg Book says Lamotrigine (Lamictal)can cause serious rashes which may require hospitalization in 3/1000 adults. It is an antiepileptic drug of the phenyltriazine class and chemically unrelated to existing antiepileptic drugs. It mostly talks about using it as adjunctive therapy. It may cause dizziness, dyspepsia (indigestion), blurred vision, headache. Read everything you can find about it before taking it and just make sure your doctor knows what the side effects are. I wish you the best Jenny and I wish there was something more I could do for you.

Love you bunches,

Dee in OR




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Re: You heard of Lamotrigine

Re : You heard of Lamotrigine --- Jenny Robo
Posted by Delaine Inman , Feb 13,2001,08:37 Top of Thread Archive
Hey Doctor, you ever heard of putting yourself in someone else's shoes? Why are you so negative?....Would he be in a negative state of mind under the same circumstances every once in a while??? Yes, if he is human he would. Hope you find something that helps. We just had a full moon last week...maybe we're feeling something from the loss of that beautiful full moon. I'm rambling. Hope you feel better soon.



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Re: You heard of Lamotrigine

Re : You heard of Lamotrigine --- Jenny Robo
Posted by joanne johnson , Feb 13,2001,10:44 Top of Thread Archive
Hey girlfriend, glad to see your post. I am a little perturbed by you, because in your e-mails, you are always so upbeat and without a problem in the world. It's OK to whine...in fact, I kinda like it cause it gives me permission to whine right back atcha. I think of you everyday, and keep you in my prayers. I hope the new medication helps. I see it has some side affects, but sometimes it is a good tradeoff. If I were you, I would ask for a good pain pill. What is there to lose? I think you could cope and sleep better if you didn't have so much pain involved.



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Re: You heard of Lamotrigine

Re : Re: You heard of Lamotrigine --- joanne johnson
Posted by Jenny Robo (JENNY ROBINSON,Jenny Robo), Feb 13,2001,21:54 Top of Thread Archive
You are such a bunch of sweeties I luv ye!

Jo, they wont give me pain relief, they say the other drugs should deal with the pain, but admit they are not.

The Lumps are like an autoimmune thing I think. They last about 4 days, and make walking very difficult, then fade and its as if they where never there. I have a second one at present on the top of the other foot!

Also, I was diagnosed with a chest infection today, so in addition to all the rest, Im on antibiotics.

Im quite relieved about the chest infection actually, I thought I had the problem in my chest as well - Praise God.

I know, I try to be 'up beat', cos I am surrounded by loving people, and so much care! But I confess yesterday, after the visit to the doctor, I sat and cried in hubbies arms. I cried for me, cos this isnt supposed to happen, we where supposed to have a beautiful active life now. I cried for him, with this mill stone round his neck (which makes him furious - he says he likes being there for me mmmmmmm), I cried cos I didnt know what the future holds, or whether I will be strong enough to care for the baby when it comes, because I have no income or benefits.

Oh I could go on girls, I really could. But when I finished crying I went and read my gratitude diary, counted my blessings, and prayed that I dont get the rash with the new tablets, cos it appears to be a big deal.

Today, I have spent the day knitting a bit, watching tv, cooking dinner for a friend of howards, and chatting.

Tomorrow, Hubby has taken valentines day off to be with me!

Girls - how could I be sad, with a man like that by my side, I reckon a million women would trade places with me.

So yes I do get very down - but not for long.

I love all of you soooooooo muchhhhhh - I just wish we could all meet up sometime, and go wilddddddd - just cos we can !

Take care

Jenny




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Re: You've Got a Good Man There!

Re : Re: You heard of Lamotrigine --- Jenny Robo
Posted by June in Toronto (June Floyd,June in Toronto), Feb 14,2001,05:35 Top of Thread Archive
It sure sounds like you've good a good husband there Jenny - he stays by your side through thick and thin - and taking Valentine's Day off to be with you, well that surely is special. Enjoy your day (its about 11.30 am for you as I type this). You'll still have your ups and downs, but you will come through with flying colours. YOU TAKE CARE. June in Toronto



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