Posted by Priscilla R ® , Feb 17,2001,18:59 | Archive |
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Re: Thanks to everyone
I can't believe the gall of your doctor! Where did he get his bedside manner training? University of Idiots? Shouldn't there be some kind of training in diplomacy and kindness before doctors are granted their MD? I had to learn about BEB 100% on my own. My doctor told me I had it and nothing else. Thanks to the net, I found this site immediately and learned all kinds of things I would have NEVER known if I had let it up to my doctor to tell me. Thank God for the net too! It sure has helped me! (I met my husband on America Online (he in IL and me in CA) and I never got married until I was 41!) OK that's my story and i'm stickin' to it!
Re : Thanks to everyone --- Priscilla R Posted by Shanasy in IL ® , Feb 17,2001,19:35 Top of Thread Archive Shanasy (also hit by Evelyn in the cyber hall today)
--modified by Shanasy in IL at Sat, Feb 17, 2001, 19:37:44
doctors
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At least not all doctors go to UI. I was very fortunate that the neuro-op I saw handed me both information on the BEBRF and the card of our regional rep who conducts support group meetings locally. There are informed doctors out there. Sometimes it just isn't easy to find them.
Re : Re: Thanks to everyone --- Shanasy in IL Posted by Virginia ® , Feb 18,2001,10:53 Top of Thread Archive Virginia in AL
Re: Remembering First Diagnosis of BEB
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Priscilla, we've all met doctors (perhaps for other diseases as well as beb) who have treated us like that. I try to remember that a lot of them are no longer dedicated to their profession, are human (and that means some do not have bedside manners) - no excuses, but the facts I think. In all jobs we can find good and bad people working them. I diagnosed my own beb - read about it in a woman's mag. whilst in London, U.K. and went to the clinic there and picked up all the paperwork. My Canadian doc had never heard tell of this disease!
Re : Thanks to everyone --- Priscilla R Posted by June in Toronto ® (June Floyd,June in Toronto), Feb 18,2001,10:22 Top of Thread Archive You're right about this bb being a great place, with great people - THANK THE LORD for them all.
June in Toronto
Re: Thanks to everyone
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Priscilla- you just brought tears to my eyes. My story is also similar and I just kept wondering if the doctor was wrong because I had never had anything to be major wrong with me. I got sick and went to the doctor and he gave me medicine and then everything was okay. I couldn't believe blepharospasm was going to be any different. I still have bad times when it comes time to get the botox injections again. I don't know what I would do if I didn't work and thank God, I can. I also thank God for this B. B. Board. It is my life-saver.
Re : Thanks to everyone --- Priscilla R Posted by Carolyn Smith ® , Feb 18,2001,11:14 Top of Thread Archive Carolyn
Plano, Tx.
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