Re: abstracts
Thanks for posting the abstracts--great idea--in contrast to Susan
Hasselle's comments, I have never had problem with dry eyes--opthamologist kept giving me moisturizing drops but I have been tested several times for dry eyes and they are normal--interesting,
yes? Now that I have been receiving the botox injections for a year,
I may have a bit of dryness but the dryness did not seem to have an effect with regard to the onset of the condition. Joanne M. San Diego, CA
Re: abstracts-Dry Eyes
Joanne,
I'm another one that can't really say that I have had the dry eye problem. I did somewhat when I wore contacts prior to BEB. But it wasn't a major problem. I would just put drops in a couple of times a day if they started feeling dry or tired. When I stopped wearing my contacts because of the BEB, I did not notice a problem with dry eyes. I also was tested for this and was told that dry eyes was certainly not the problem. I do notice more of a problem now with my eyes feeling dry and burning if I have had too much Benadryl or if the botox is working and I'm not blinking normally.Shirley in AR. PS-I think the abstracts are a great idea.
Re: abstracts-Dry Eyes
I can't relate to the dry eyes either. I may have had it and never known? I did have filaments that regularily grew in the film that covered my eyes, and every few years would have to go in and have them removed. They made my eyes burn, and feel scratchy. I still feel that stress was the precipitating factor for me.
Re: abstracts-Dry Eyes
joanne, were those called teregiams?
Re: abstracts/dry eyes
Sorry to be dense, but I can't find the abstracts you guys (pardon the term; I mean you, plural) are referring to--I'm new to the board and all. I DO have dry eyes (almost no measurable moisture) and yet standard dry eye treatments don't help me because they add to the light sensitivity and aggravate the BEB. So I'd very much like to see the abstracts, but I followed the thread to the top and the answer wasn't there. I also did a search for "abstracts," but that didn't help either. Thanks for your help.Carol
Re: abstracts/dry eyes
Carol,
Go to the top of the bulletin board page and click on BEBRF Main Page. When you get there, at the very top, it says "What's New". Click on that and then scroll down to almost the bottom where it will say 1999 abstracts. Click on that and it should take you to all the abstracts from that conference.You're not dense, it just takes time to learn your way around and it doesn't help when you can't see well. Shirley
Re: abstracts/dry eyes
I think this thread is referring to the abstracts from the 2000 conference that were posted in pdf format for us to "vote" on. Those seem to be gone. They didn't really address help for dry eye - just mentioned it as a precipitating factor in developing BEB. There is a link to something on dry eye on the main page, though. I included it below.Virginia in AL
Related link: http://www.blepharospasm.org/blephar2.html#A1
Re: abstracts/dry eyes
were these absracts also printed transcripts of the conference discussions and presentations?
Re: abstracts/
Kathy, the 99 abstracts were from the conference presentations at the conference in California.
I have not seen any of the 2000 abstracts from the last conference posted under the Main Pages. They did put a large majority of them in one of the recent newsletters, though. These had come directly from what had been presented at the conference. Is that what you were asking?
Re: abstracts/
yes. Does that mean the 2000 ones will eventually be posted in this form or format so we can read them?
Re: abstracts/
I kind of assumed that they would be but I'm thinking at this point, probably not. Someone has to go through and type them in and proof them and it is very time consuming. I can't remember who did them for 99, but I certainly appreciated all their hard work.
You can still obtain the cassette tapes from the 2000 conference for $35 which would have the same information on tape.Shirley in AR.
Re: abstracts/dry eyes
Thank you, Virginia, for posting that link. It was a great article and one I will be taking to my regular eye doctor.graceanne in port orchard
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