abstracts


Posted by Susan Hasselle , Feb 19,2001,00:09   Archive
Hey!

This function is really cool! I am very impressed! I just read both articles without any problem. I am particularly interested in the Craig Evinger article about the "permissive condition" of loss of dopamine neurons in people over 55 and the "initiating condition" of dry eyes. Although I was only 47 when my BEB occurred, I definitely had a severe dry eye condition. This was finally treated by punctal duct cauterization within the "window of opportunity," i.e. first 4 years. Although what I believe to be a "kindling effect" was created and the BEB symptoms continued, I was able to somehow reverse the process with the help of an anticholinergic medication and some supplements that have put me into remission for the past 5 1/2 years. I found the article very thought-provoking.

Susan Hasselle




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Re: abstracts

Re : abstracts --- Susan Hasselle
Posted by Joanne Matuzas , Feb 19,2001,16:59 Top of Thread Archive
Thanks for posting the abstracts--great idea--in contrast to Susan
Hasselle's comments, I have never had problem with dry eyes--opthamologist kept giving me moisturizing drops but I have been tested several times for dry eyes and they are normal--interesting,
yes? Now that I have been receiving the botox injections for a year,
I may have a bit of dryness but the dryness did not seem to have an effect with regard to the onset of the condition. Joanne M. San Diego, CA



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Re: abstracts-Dry Eyes

Re : Re: abstracts --- Joanne Matuzas
Posted by Shirley-Arkansas-USA , Feb 20,2001,14:37 Top of Thread Archive
Joanne,
I'm another one that can't really say that I have had the dry eye problem. I did somewhat when I wore contacts prior to BEB. But it wasn't a major problem. I would just put drops in a couple of times a day if they started feeling dry or tired. When I stopped wearing my contacts because of the BEB, I did not notice a problem with dry eyes. I also was tested for this and was told that dry eyes was certainly not the problem. I do notice more of a problem now with my eyes feeling dry and burning if I have had too much Benadryl or if the botox is working and I'm not blinking normally.

Shirley in AR.

PS-I think the abstracts are a great idea.




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Re: abstracts-Dry Eyes

Re : Re: abstracts-Dry Eyes --- Shirley-Arkansas-USA
Posted by joanne johnson , Feb 21,2001,08:45 Top of Thread Archive
I can't relate to the dry eyes either. I may have had it and never known? I did have filaments that regularily grew in the film that covered my eyes, and every few years would have to go in and have them removed. They made my eyes burn, and feel scratchy. I still feel that stress was the precipitating factor for me.



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Re: abstracts-Dry Eyes

Re : Re: abstracts-Dry Eyes --- joanne johnson
Posted by kathy , Mar 14,2001,19:47 Top of Thread Archive
joanne, were those called teregiams?



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Re: abstracts/dry eyes

Re : abstracts --- Susan Hasselle
Posted by Carol Thoma , Mar 14,2001,21:40 Top of Thread Archive
Sorry to be dense, but I can't find the abstracts you guys (pardon the term; I mean you, plural) are referring to--I'm new to the board and all. I DO have dry eyes (almost no measurable moisture) and yet standard dry eye treatments don't help me because they add to the light sensitivity and aggravate the BEB. So I'd very much like to see the abstracts, but I followed the thread to the top and the answer wasn't there. I also did a search for "abstracts," but that didn't help either. Thanks for your help.

Carol




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Re: abstracts/dry eyes

Re : Re: abstracts/dry eyes --- Carol Thoma
Posted by Shirley-Arkansas-USA , Mar 14,2001,21:52 Top of Thread Archive
Carol,
Go to the top of the bulletin board page and click on BEBRF Main Page. When you get there, at the very top, it says "What's New". Click on that and then scroll down to almost the bottom where it will say 1999 abstracts. Click on that and it should take you to all the abstracts from that conference.

You're not dense, it just takes time to learn your way around and it doesn't help when you can't see well.

Shirley




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Re: abstracts/dry eyes

Re : Re: abstracts/dry eyes --- Carol Thoma
Posted by Virginia , Mar 14,2001,21:57 Top of Thread Archive
I think this thread is referring to the abstracts from the 2000 conference that were posted in pdf format for us to "vote" on. Those seem to be gone. They didn't really address help for dry eye - just mentioned it as a precipitating factor in developing BEB. There is a link to something on dry eye on the main page, though. I included it below.

Virginia in AL Related link: http://www.blepharospasm.org/blephar2.html#A1




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Re: abstracts/dry eyes

Re : Re: abstracts/dry eyes --- Virginia
Posted by kathy , Mar 15,2001,07:57 Top of Thread Archive
were these absracts also printed transcripts of the conference discussions and presentations?



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Re: abstracts/

Re : Re: abstracts/dry eyes --- kathy
Posted by Shirley-Arkansas-USA , Mar 15,2001,14:13 Top of Thread Archive
Kathy, the 99 abstracts were from the conference presentations at the conference in California.
I have not seen any of the 2000 abstracts from the last conference posted under the Main Pages. They did put a large majority of them in one of the recent newsletters, though. These had come directly from what had been presented at the conference. Is that what you were asking?



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Re: abstracts/

Re : Re: abstracts/ --- Shirley-Arkansas-USA
Posted by kathy , Mar 17,2001,06:30 Top of Thread Archive
yes. Does that mean the 2000 ones will eventually be posted in this form or format so we can read them?



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Re: abstracts/

Re : Re: abstracts/ --- kathy
Posted by Shirley-Arkansas-USA , Mar 17,2001,14:27 Top of Thread Archive
I kind of assumed that they would be but I'm thinking at this point, probably not. Someone has to go through and type them in and proof them and it is very time consuming. I can't remember who did them for 99, but I certainly appreciated all their hard work.
You can still obtain the cassette tapes from the 2000 conference for $35 which would have the same information on tape.

Shirley in AR.




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Re: abstracts/dry eyes

Re : Re: abstracts/dry eyes --- Virginia
Posted by grace anne , Mar 15,2001,11:07 Top of Thread Archive
Thank you, Virginia, for posting that link. It was a great article and one I will be taking to my regular eye doctor.

graceanne in port orchard




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