I have a diagnosis!


Posted by GailJ (gailJ,GailJ), Feb 21,2001,05:22   Archive
Hi All

Well I know I'm not meant to be elated about being told today that I have Blepharospasm, but I am! After more than a year, many visits to health specialists and lots of wasted money and time, I finally have the diagnosis that I had accepted long ago.

The new ophthalmologist today was everything I had hoped for. The best part was that what he told me was consistent with what I had read, so he was credible.

The bad news was that my last ophthalmologist permanently scarred my right tear duct when he slit it, trying to find the punctal plug that had first broken and then disappeared, when he tried to remove it. So I can't have another punctal plug placed in it. The new doctor first used a gauge to measure the size of my tear duct, so that he could choose the right sized plug and insert it painlessly in five minutes. Has this gauge technique been used on those of you who have punctal plugs??

Now that I have a diagnosis, I feel I have some control. I'm in a position to be able to make some decisions about my future, rather than feel powerless.

Best wishes
GailJ




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Re: I have a diagnosis!

Re : I have a diagnosis! --- GailJ
Posted by June in Toronto (June Floyd,June in Toronto), Feb 21,2001,06:05 Top of Thread Archive
So glad, Gail, the appointment went well and you liked the ophthal. Now that you had a diagnosis you can go from there and not be in limbo anymore. I'm sorry about the scarred right tear duct - perhaps others on the bb can talk to you about that.

Best wishes to You
June in Toronto - where its minus 10 C today!




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Re: I have a diagnosis!

Re : I have a diagnosis! --- GailJ
Posted by joanne johnson , Feb 21,2001,08:36 Top of Thread Archive
I know how you feel. I was getting worse and worse, and was told that I was "developing a bad habit" or that it was in my head, and caused by something I did "not want to see." The diagnosis was actually a relief, because it validated what I knew all along, but could not convince people of; that it was a condition I had no control over.



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Re: I have a diagnosis!

Re : I have a diagnosis! --- GailJ
Posted by Judi in NC , Feb 21,2001,11:51 Top of Thread Archive
Isn't it just the best feeling to find someone who agrees with you when you say that you are sick and not psychotic or over-emotional?

Congratulations!!!!!




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Re: I have a diagnosis!

Re : I have a diagnosis! --- GailJ
Posted by Mindy , Feb 21,2001,13:33 Top of Thread Archive
Hi Gail,
I'm happy for you to finally find a good doctor that can help you.
And you have many friends here to help and support you the best
we can.
Big Hugs,
Mindy



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Re: I have a diagnosis!

Re : I have a diagnosis! --- GailJ
Posted by Sally - in - Idaho , Feb 21,2001,20:41 Top of Thread Archive
Gail ... That's wonderful news! It's usually more comfortable dealing with the devil when he has his horns and pitchfork showing than when he comes in disguise.

Sally in North Idaho




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Re: I have a diagnosis!

Re : I have a diagnosis! --- GailJ
Posted by Shirley-Arkansas-USA , Feb 21,2001,20:59 Top of Thread Archive
Sometimes it is so good to hear the bad news. It comes with a sense of relief, a name, something that you can attack. It is also frustrating, though, when you have learned so much about your disorder that you literally may know more about it and its peculiarities than the physician and have diagnosed yourself. I'm very glad that you like your new physician. He seems to know what he is doing.
Group cheer!!


Shirley in AR.




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punctal ducts

Re : I have a diagnosis! --- GailJ
Posted by Susan Hasselle , Feb 21,2001,22:06 Top of Thread Archive
GailJ,

Most of the physicians who speak at the international BEBRF meetings favor punctal cauterization rather than the plugs. If your ophthalmologist doesn't do this, perhaps he can refer you to someone who does. I had mine done in 1992. I had the right one done twice, and I think I need the left one redone, but with anesthesia, it really wasn't a big deal. I work in a medical building. . .had it done in a few minutes, then went back to work. My eyes are well lubricated enough for me to even wear contact lenses, though I still use Refresh Plus eye drops, mainly at night. I'm very happy with the procedure.

Best wishes,

Susan Hasselle




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Re: punctal ducts & diagnosis

Re : punctal ducts --- Susan Hasselle
Posted by GailJ (gailJ,GailJ), Feb 22,2001,05:56 Top of Thread Archive
Hello everyone

Thankyou for your support and encouragement. I particularly liked Sally's analogy of the devil, and Susan's account of her punctal cauterization was helpful for me.

Cheers
GailJ, in late Summer




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Re: punctal ducts

Re : punctal ducts --- Susan Hasselle
Posted by Virginia , Feb 22,2001,21:54 Top of Thread Archive
I had punctal cauterization too, when the plugs wouldn't stay in. It has helped a lot, though I still lubricate at night. Most of the time I can go all day without drops.
Virginia in AL



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Re: I have a diagnosis!

Re : I have a diagnosis! --- GailJ
Posted by kathy , Feb 22,2001,07:48 Top of Thread Archive
good, june; i mean not good but at least you know.



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Cauterization too!!

Re : Re: I have a diagnosis! --- kathy
Posted by Marlyn Kinch , Feb 22,2001,19:47 Top of Thread Archive
Hi Gail, I had the punctual cauterization too. It is a great thing to have done. I don't have to use half the eye drops that I did and my eyes don't feel bad. I had the silicone ones inserted and inserted again and again. They never stayed in any length of time. Of course, it didn't "cure" the Blephro but it has helped. I spent 4 years before I got the right diagnosis. It is very frustrating. Good Luck!!



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