Us Recognizers


Posted by joanne johnson , Feb 23,2001,10:21   Archive
I can't ever remember seeing anyone with BEB or Meige, however, since my diagnosis, I seem to be much more aware of "us" and recognize people who are in the beginning stages. One that I met recently is a school bus driver. I pray for him every day. Someone on the BB said recently that they had cards which they passed out to people who had questions, or anyone who might need to know. I can't remember who it was. I am wondering if the cards came from the BEBRF? Frankly, I am getting tired of answering the same questions, and having BEB at the center of all my conversations. It would be nice to have some of these cards...



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Re: Us Recognizers

Re : Us Recognizers --- joanne johnson
Posted by June in Toronto (June Floyd,June in Toronto), Feb 23,2001,10:49 Top of Thread Archive
Joanne, I give out cards and pamphlets to as many people as I can - certainly if they question me at all, they get one. The cards (from the Dystonia group) have telephone numbers listed and a 1-liner of the various types of dystonias - its very popular and handy to keep in your purse. The pamphlets are from the Dystonia and BEB groups (2 different types) - I get mine from our Toronto support groups, but I would imagine BEBRF might have the same. I, too, am fed up with questions but try to look at it as awareness and an opportunity to educate, spread the word, etc. Best wishes. June in Toronto where its so cold again today (about -9C) but by Sunday its supposed to +9C - crazy!



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Cards

Re : Us Recognizers --- joanne johnson
Posted by Moderator-JB , Feb 23,2001,16:10 Top of Thread Archive
Joanne:

E-mail Mary at the BEBRF office. Ask for the business card sized handouts.

Judy




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