DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?


Posted by June in Toronto (June Floyd,June in Toronto), Feb 23,2001,10:56   Archive
I can remember at about age 6, my grandfather telling me "not to blink so much" - he would have me hold a mirror in front of me to watch myself - of course I didn't blink when I did that!
I don't remember blinking a lot in my teens or early adult years - but, when I met up with a gal I used to work with 40 years ago in London, U.K. (hadn't seen her in all those years), and told her about my beb, she remembers me blinking a lot then - I would have been 19 then.
So, to me, it looks like I was having beb-attacks even then, although it didn't go into the squeezing, etc. until 6 years ago.
Anyone else follow this route?
June in Toronto



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Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?

Re : DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD? --- June in Toronto
Posted by Lynn Yarbrough , Feb 23,2001,12:45 Top of Thread Archive
Hi, June,

Actually, you can't see yourself blink in a mirror. In particular, you can't see the difference between normal blinking (which involves the eyelids only) and spasmodic blinking, which involves all the muscles in the facial mask, including eyebrows, nose, upper cheeks, etc. You can only observe yourself objectively by videotape.

You can observe others with Blephs, however, and I keep an eye open for them (yes, that's a bad pun) and have met about a half-dozen this way. The youngest I can recall seeing was about 30, which is also about the age I was when I first recall spasming. It doesn't surprise me that others might have BEB at an earlier age, it's just that I haven't met them. Curiously, a close friend of my wife's from Middle School days who was a bridesmaid at our wedding later developed BEB and was involved in early tests of Botox in the 1980's.

--- Lynn




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Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?

Re : Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD? --- Lynn Yarbrough
Posted by June in Toronto (June Floyd,June in Toronto), Feb 23,2001,14:58 Top of Thread Archive
Lynn, I never thought about not being able to see oneself blinking in a mirror - I guess you are right! When I do look in a mirror (as infrequently as possible!) I wonder who that slit-eyed creature is? Even after botox my eyes are not as big and well rounded as they used to be - oh well, not to worry, at least I can see.

June in Toronto




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Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?

Re : DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD? --- June in Toronto
Posted by Virginia , Feb 23,2001,17:49 Top of Thread Archive
I have always blinked a lot. I used to have people ask me all the time if I wore contacts (because of the blinking). But, since my eyes have always been dry, I never could wear contacts. Also I can't remember not being sensitive to light, though less so than now. Sounds like I've been headed here all my life.
Virginia in AL



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Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?

Re : DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD? --- June in Toronto
Posted by Shirley-Arkansas-USA , Feb 23,2001,20:01 Top of Thread Archive
The only symptoms that I had as a child or even before BEB were light sensitivity and squinting. I've always been a squinter. Pictures of me as a little girl, had me squinting or holding my hands over my eyes to shade them. No excessive blinking. As a young adult, under times of stress, I would develop a tic that sometimes would last for weeks.

Shirley in Ar. who gets to get her botox a week earlier than planned but a week later than needed. Now, if I can just make it until Wed.




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Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?

Re : Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD? --- Shirley-Arkansas-USA
Posted by June in Toronto (June Floyd,June in Toronto), Feb 24,2001,06:40 Top of Thread Archive
So I guess, Shirley, beb, was in your system from childhood - like me. I remember having to wear sun glasses in the UK even when it wasn't sunny (and that wasn't very often - LOL! (scus me Jenny in Liverpool).

June in Toronto, who wishes that SHE could get her injections a week earlier, but is REALLY GLAD FOR SHIRLEY that she is able to.




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Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?

Re : DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD? --- June in Toronto
Posted by Sally - in - Idaho , Feb 23,2001,22:16 Top of Thread Archive
I have always been sensitive to the sun. Squinted a lot, too. Never could have contacts because the eye doctors said my eyes were too dry.

Sally In North Idaho




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Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?

Re : Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD? --- Sally - in - Idaho
Posted by June in Toronto (June Floyd,June in Toronto), Feb 24,2001,06:41 Top of Thread Archive
Sally, it sounds like you had beb symptoms, too, in your childhood.

June in Toronto




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Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?

Re : DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD? --- June in Toronto
Posted by grace anne , Feb 24,2001,01:24 Top of Thread Archive
That's an interesting one. I remember when I was in early grade school that I couldn't see the blackboard no matter where I sat. I did the squinting. It wasn't until late grade school years that I finally got glasses. Other than that, I can't recall at the moment any signs of blinking a lot. Maybe no one said anything to me. Now I wish I could remember.

grace anne in port orchard




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Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?

Re : Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD? --- grace anne
Posted by June in Toronto (June Floyd,June in Toronto), Feb 24,2001,06:43 Top of Thread Archive
Grace Anne, do you have parents, siblings, to ask if they remember you blinking when you were young? I DON'T REMEMBER my blinking, but my grandfather sure told me about it - so I remember it that way!

June inToronto




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Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?

Re : Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD? --- June in Toronto
Posted by grace anne , Feb 25,2001,10:25 Top of Thread Archive
You know, June, I could ask my mom but I know it wouldn't do any good. For example, when a gyn asked me to find out from mom what age she went through menopause, mom said "How should I know! I just thought I was having a bad day". So I can imagine asking mom if she remembers me blinking. She'd probably say "How should I know! I just thought you had something in your eye."

graceanne in port orchard




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Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?

Re : DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD? --- June in Toronto
Posted by Mary , Feb 24,2001,11:25 Top of Thread Archive
I suppose I was an early candidate, too. I was always very sensitive to the sun (eyes and skin) and people kept telling me to stop squinting. Then MDH would often say, "why are you frowning?" and I wasn't frowning at all. And I blinked a lot, though it was seldom mentioned. Usually blamed it on my blue eyes.
Mary NY



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Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?

Re : DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD? --- June in Toronto
Posted by Delaine Inman , Feb 24,2001,19:34 Top of Thread Archive
Shirley described me pretty well, always squinting in every outdoor picture with head tilted and one hand up trying to shade my eyes or wishing I could. I remember people commenting to my family (as though I weren't there) about my squinting, blinking, frowning, and snurling my nose. I wore glasses from the age 13 and had headaches which the doctor said was sinus headaches all my life.



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Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?

Re : Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD? --- Delaine Inman
Posted by June in Toronto (June Floyd,June in Toronto), Feb 24,2001,20:35 Top of Thread Archive
So Mary and Delaine are two more to add to the list of early childhood beb - interesting isn't it, how many of us did have all the early symptoms?

June in Toronto




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Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?

Re : Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD? --- June in Toronto
Posted by Delaine Inman , Feb 24,2001,22:25 Top of Thread Archive
I certainly think I had some precursers to BEB as a child and things very slooo-----wly progressed. Nothing got my attention like the blinking everytime I got in the car to drive to work in Jan. 99; I thought I was losing my mind. Looking back, I remember sitting in staff meetings and blinking or having to look down under the bright lights or listening to someone else talk for maybe a year. By April of 99 when I could no longer look my patients in the eyes and my eyes closed when they were talking, it broke my heart. By May I could not drive or function at work.



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Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD?

Re : Re: DID YOU HAVE ANY SIGNS OF BEB IN YOUR CHILDHOOD? --- Delaine Inman
Posted by Sally - in - Idaho , Feb 24,2001,23:34 Top of Thread Archive
There we are back to that old sinusitis/headache that so many of us have in common. I just can't help but think there is some connection between the chronic sinusitis and BEB.

Sally




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