Re: Light senseitive eyes
Hi Edith ... we've done this survey a couple of times and found that there is no relationship between eye/complexion coloring and light sensitivity. That is probably my most painful symptom and I have dark hair and brown eyes. I also have rosacea, which causes my face and any exposed skin to get very red and flushed from heat or sunlight. I don't know if that has anything to do with BEB or not, but the rosacea came several years before BEB. Glad you are hanging out here with us trying to find answers. If you figure out a good rain dance, we sure need moisture here in the Pacific Northwest. It's going to be a potentially disastrous summer as far as lack of moisture. We've had snow on the ground (at least an inch) for a record number of something like 113 days, but never enough to measure up to good use and the snow pack in the mountains is waaaaay down. Today feels like spring. I went out with just a short-sleeved shirt on and was plenty warm. Sally in North Idaho
--modified by Sally - in - Idaho at Sat, Feb 24, 2001, 16:35:21
Re: Light senseitive eyes
Hi Edith I have brown eyes& dark hair,
some of the time,coloring would not have any thing to do with it.You might be the oldest, buy i am trying to catch up will be 69 next month.
Wish you had some of our rain.Thursday we had 2in. of snow sleet & it was 20. Today a lot of rain it is 65 & we have severe storm warnings.
Colleen IL
Re: Light senseitive eyes
Hello everyone, Thanks for your replys about senseitve eyes, Sally, I too have Rosacea, along my nose crease and chin crease, my 52 yr. old daughter also has Rosacea. I developed it about the same time I got BEB, coincidence? That was about 5 years ago.I have found that using a good sunscreen on it helps as good as the expensive creams.85 today in s.w.Fl. no rain.I should tell you that the computer glasses can be used for reg. reading, but if you try to walk or do any thing else while wearing them, things are very out of focus.I live in a moble home park in fl.in the winter, lots to do, will return to ohio in April.Will have more questions for you later..Edith
Re: Light senseitive eyes
Hello everyone, Thanks for your replys about senseitve eyes, Sally, I too have Rosacea, along my nose crease and chin crease, my 52 yr. old daughter also has Rosacea. I developed it about the same time I got BEB, coincidence? That was about 5 years ago.I have found that using a good sunscreen on it helps as good as the expensive creams.85 today in s.w.Fl. no rain.I should tell you that the computer glasses can be used for reg. reading, but if you try to walk or do any thing else while wearing them, things are very out of focus.I live in a moble home park in fl.in the winter, lots to do, will return to ohio in April.Will have more questions for you later..Edith
Re: Light senseitive eyes
Hi Edith!Welcome! I have light skin, green eyes and blonde hair (OK... it was truly blonde many years ago) and am 44. I have read that light colored eyes (blue, grey, green) do tend to be more light sensitive, however, it has nothing to do with BEB. Ahhhh....it seems nothing to do with BEB makes much sense! Shanasy, going downhill fast after a wonderful 3 good eye days. Ahhhh!!!
Re: Light senseitive eyes
Hi and welcome to the group. Your question has been answered, but hope you get some of the rain coming our way because we don't need it. Delaine in TN who is also blue eyed but have met many brown eyed folks with BEB.
Re: Light senseitive eyes
Hi Edith. I am a dark skinned, dark hair and eyes woman of 54. The first beb symptoms that were noticible for me was nose twitching, whenever I was under more stress than I needed. My husband would say to me, "You're doing that rabbit thing again." I had that going on for about 4 years before I started with the eye spasms. After 9 months of eye spasms, I developed meige, involving my mouth and upper lip. I had to get a medical leave, and after a beb caused car accident, I was afraid to drive anymore. I have a native american background, and do know the rain dance. However, it will not be needed, as you will get plenty of rain over the next few days.
Re: Light senseitive eyes
Hi Joanne, nice to hear from you, and your difficulties with BEB. I will be looking for that rain you said we were going to get in a few days, I will let you all know about it. We have water restrictions, and my husband got up at 7 a.m. to wash the car on the grass, I told him it will rain since you washed the car. It has been 6 weeks since my botox, and my lid is in a normal position, my balance is o.k. now, and the eyes are working together, I am able to drive safetly.Since the eye spasms have stopped I notice my cheek and mouth spasms more, but they are not bad.It is 83 degrees here in Fl. Edith .P.S. I was unable to get spellcheck to work, please excuse mistakes
Re: Get out here and do your dance
Joanne, we need you to do some rain dancing in the Pacific Northwest. I live on an Indian reservation, as you know, but they must need help from a different tribe. We are terribly low on moisture and the predictions for summer are very bleak.Sally in North Idaho
Re: Light senseitive eyes
Hi Joanne, Just wanted you to know that this afternoon after I read your letter telling me that we were going to get some much needed rain here in Fl.I thought,"well I hope so", and 30 minutes later we had a nice shower, about one half inch.Don't know if you really had the power to do that, but thanks. I will be looking for the much more later in the week as you predicted.Eyes are doing good today, where it was 87 degrees in s.w. Fl.today.My mother always said that her Grandmother told her that she was half Cheerokee, nobody has been able to prove this however.Edith
Re: Light sensitive eyes
I might as well jump in here, too, since the shoe fits. To answer Edith's question, I have blue eyes, fair skin, and formerly blonde hair now somewhere between dishwater blonde and mouse brown. I also have rosacea and dry, light sensitve eyes. I first noticed the dryness when I was 24 and pregnant and found the contact lenses that previously had been merely uncomfortable had become excruciating. (They turned my eyes beet red and I had to spend a whole day in the darkened bathroom.) But that problem went away and the dryness and light sensivity didn't return again until blepharospasm and torticollis hit me together when I was 41. (I'm now 51.) My point is, I think that somehow dry eyes, rosacea, and blepharospasm all fit together. At one point I found a website linking dry eyes (but not rosacea) to blepharospasm. If I can find it again and anyone's interested, I can provide the link.Carol
Re: Dry eyes
Carol, If you go up to the top of this page and click on the BEBRF Main Page, it will take you to different topics related to BEB and one of them is on Dry Eyes. They are quite common in those that suffer from BEB. Some of the first symptoms are dry eyes, light sensitivity and eye irritation along with increased blinking.
It is also important to use preservative free drops and ointments.Shirley in AR.
Your link, if you can find it might be beneficial to many.
Re: Light senseitive eyes
Hi edith, just thought i'd add my 2 cents I am dark skinned and my eyes are dark brown, they look like they could be black and I have black hair that is graying I'm 45 and in Feb. I it had been 1 year that I had all the symtoms of bleph.I am american and my grandparents were of Mexican decent. I live in california. Have a nice evening
|