Myobloc


Posted by Bob Auten , Feb 28,2001,10:20   Archive
Can anyone relate their experience with Myobloc? I had been receiving Botox injection but this time we tried Myobloc. It has been two weeks since the injections and my eyes feel like they are full of sand and have a cross-eyed feeling. Artificial tears do not seem to releive the feeling of sand in my eyes. I am also experiencing bluring which I have not had with Botox. What has been your experience with Myobloc?



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Re: Myobloc

Re : Myobloc --- Bob Auten
Posted by colleen , Feb 28,2001,11:00 Top of Thread Archive
Hi Bob I got my Myobloc Feb.2 they are working really well for me.No more side effects than with botex a.My eyes are staying open longer than before&feel good. Hope yours starts working better for you.

Good Luck Colleen




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Re: Myobloc

Re : Re: Myobloc --- colleen
Posted by john de , Feb 28,2001,11:33 Top of Thread Archive
Colleen hi did yuor insurance cover ur myoblock injections? my neuro wont inject my eye muscles .think because medicare wont pay.really would like myoblock since im immune to botox A.glad it working for you.thanks john



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Re: Myobloc

Re : Re: Myobloc --- john de
Posted by colleen , Feb 28,2001,14:29 Top of Thread Archive
John My Doc assured me medicare would pay for them Hope he is right.

Take Care Colleen



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Re: Myobloc

Re : Re: Myobloc --- colleen
Posted by Larry Garrett , Mar 08,2001,23:40 Top of Thread Archive
To Colleen, Would you be so kind as to supply me with the name and phone number of the Dr. who injected you with Myobloc. My Dr. has already promised to use myobloc as soon as it is approved for Blepharospasm, but since it hasn't yet been approved he doesn't know what the proper dosage is. Maybe if he talked with your Dr. I might get it sooner, and since I am immune to Botox A it seems to be my last best chance for relief. My e-mail address is larryg5@prodigy.net
Thank you, Larry Garrett in Tennessee



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Re: Myobloc

Re : Re: Myobloc --- colleen
Posted by Linda Ostheimer , Mar 09,2001,10:10 Top of Thread Archive
Hi Colleen, I do not post alot on the board but was interested in this
treatment of Myobloc. I have not heard of it and was wondering if you could give me some info on it. I am having good luck with botox but I do worry about botox not helping me in the future. Thank you Linda



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Re: Myobloc

Re : Re: Myobloc --- Linda Ostheimer
Posted by Colleen (colleen,Colleen), Mar 09,2001,21:33 Top of Thread Archive
Hi Linda Myobloc is still a botox it is called botex b.It has not been approved by the FDA for the eyes,but my Doc.& I decided to try it since a was not working for me.It works real well for me.
Take Care

Colleen




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Re: Myobloc

Re : Re: Myobloc --- Colleen
Posted by June in Toronto (June Floyd,June in Toronto), Mar 10,2001,06:13 Top of Thread Archive
Hi Colleen - that's great to hear that Myobloc is working for you, when botox a wasn't. Good news is always welcome and we need more of it on this bb. I hope Linda gets to try it and finds it as successful.
Tell us - did you get as many units as you did with a? I believe its a thicker solution, so perhaps more painful?

Best wishes for continued success with Myobloc.

June in Toronto




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Re: Myobloc

Re : Re: Myobloc --- June in Toronto
Posted by Colleen (colleen,Colleen), Mar 10,2001,08:37 Top of Thread Archive
Hi June,I don,t know about units but the Doc.said that he gave me one 2 fifty ratio whatever that means.He told me the shots would be more painful& they were about twice as painful.I can take the pain if they help my eyes stay open.

Have a nice day.
Colleen





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Re: Myobloc

Re : Re: Myobloc --- Colleen
Posted by Shirley-Arkansas-USA , Mar 10,2001,20:51 Top of Thread Archive
I asked Dr.Perlmutter a few questions about Myobloc the last time that I saw him. He is in the same clinic as Colleen's doctor. I was also told that they mixed it in a 1-50 ratio. I was told that it was not a thicker solution and they give it with a 30 gauge needle like the botox. He had found it to be more painful for his patients that were receiving it. He just said that it was another alternative, not necessarily better or worse.
It has not been approved for Blepharospasm, yet, like Colleen was saying.

Shirley in AR.




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Re: Myobloc

Re : Re: Myobloc --- Colleen
Posted by kathy , Mar 14,2001,14:17 Top of Thread Archive
isn't there something else we can do about the pain having our injections? Emla cream did almost nothing for me. my last set of injections were so painful i could barely stand it.



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Re: Myobloc

Re : Re: Myobloc --- kathy
Posted by Dan McNellis , Mar 14,2001,15:29 Top of Thread Archive
Make sure you put the cream on real thick and keep reapplying it as it evaporates, or use saran wrap to cover it. Make sure you have it on for at least one hour if not longer. When I use it that way I cant even feel the injections.

Dan




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Re: Myobloc

Re : Re: Myobloc --- Dan McNellis
Posted by kathy , Mar 14,2001,19:37 Top of Thread Archive
i didn't know it evaporated. thanks , maybe i'll try it again.



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Re: Myobloc

Re : Re: Myobloc --- kathy
Posted by Sally - in - Idaho , Mar 14,2001,16:43 Top of Thread Archive
Kathy ... I believe that in the past some people have posted re: having good results with taking a couple of extra strength Tylenol BEFORE the injections ... NOT ASPIRIN or similar products.

Sally in North Idaho




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