Re: Myobloc |
Hi Bob I got my Myobloc Feb.2 they are working really well for me.No more side effects than with botex a.My eyes are staying open longer than before&feel good. Hope yours starts working better for you.
Good Luck Colleen
Colleen hi did yuor insurance cover ur myoblock injections? my neuro wont inject my eye muscles .think because medicare wont pay.really would like myoblock since im immune to botox A.glad it working for you.thanks john
John My Doc assured me medicare would pay for them Hope he is right.
Take Care Colleen
To Colleen, Would you be so kind as to supply me with the name and phone number of the Dr. who injected you with Myobloc. My Dr. has already promised to use myobloc as soon as it is approved for Blepharospasm, but since it hasn't yet been approved he doesn't know what the proper dosage is. Maybe if he talked with your Dr. I might get it sooner, and since I am immune to Botox A it seems to be my last best chance for relief. My e-mail address is firstname.lastname@example.org
Thank you, Larry Garrett in Tennessee
Hi Colleen, I do not post alot on the board but was interested in this
treatment of Myobloc. I have not heard of it and was wondering if you could give me some info on it. I am having good luck with botox but I do worry about botox not helping me in the future. Thank you Linda
Hi Linda Myobloc is still a botox it is called botex b.It has not been approved by the FDA for the eyes,but my Doc.& I decided to try it since a was not working for me.It works real well for me.
Hi Colleen - that's great to hear that Myobloc is working for you, when botox a wasn't. Good news is always welcome and we need more of it on this bb. I hope Linda gets to try it and finds it as successful.
Tell us - did you get as many units as you did with a? I believe its a thicker solution, so perhaps more painful?
Best wishes for continued success with Myobloc.
June in Toronto
Hi June,I don,t know about units but the Doc.said that he gave me one 2 fifty ratio whatever that means.He told me the shots would be more painful& they were about twice as painful.I can take the pain if they help my eyes stay open.
Have a nice day.
I asked Dr.Perlmutter a few questions about Myobloc the last time that I saw him. He is in the same clinic as Colleen's doctor. I was also told that they mixed it in a 1-50 ratio. I was told that it was not a thicker solution and they give it with a 30 gauge needle like the botox. He had found it to be more painful for his patients that were receiving it. He just said that it was another alternative, not necessarily better or worse.
It has not been approved for Blepharospasm, yet, like Colleen was saying.
Shirley in AR.
isn't there something else we can do about the pain having our injections? Emla cream did almost nothing for me. my last set of injections were so painful i could barely stand it.
Make sure you put the cream on real thick and keep reapplying it as it evaporates, or use saran wrap to cover it. Make sure you have it on for at least one hour if not longer. When I use it that way I cant even feel the injections.
i didn't know it evaporated. thanks , maybe i'll try it again.
Kathy ... I believe that in the past some people have posted re: having good results with taking a couple of extra strength Tylenol BEFORE the injections ... NOT ASPIRIN or similar products.
Sally in North Idaho