Blepharospasm Bulletin Board

Ladies: shallow question ???
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Posted by: Linda In E. Tennessee
02/08/2004, 12:39:43


My eyelashes go in many different directions and even turn under. Do any of you have this problem and/or solution. I haven't worn eye makeup since being diagnosed. Even if I hold my eye open until the makeup dries, in five minutes it is all over my face. I don't know what causes this, do you?



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Re: Ladies: shallow question ???
Re: Ladies: shallow question ??? -- Linda In E. Tennessee Top of thread Archive
Posted by: Cynthia
02/08/2004, 13:14:38


I didn't have those problems until after my myectomy ... then my eyelashes grew back in in a crazy downward direction. I use eyeliner and eyeshadow, but rarely use mascara anymore. Maybe someone knows about a quick-dry, non-smear type that really works. I threw away my eyelash curler years ago, but am seriously considering trying one again. Oh, how VAIN we are, huh?
I know I didn't answer your question, but may I join you in your boat?
Cynthia in IL



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Re: Ladies: shallow question ???
Re: Ladies: shallow question ??? -- Linda In E. Tennessee Top of thread Archive
Posted by: Debbie
02/08/2004, 16:03:16


I like your "shallow question"! I have been wondering about eye makeup myself. Ihaven't worn it since I started using drops and/or ointment for BEB, because they seem to dissolve even waterproof mascara. I don't like to wash off the ointment in the morning because my eyes then get too dry. If I leave the ointment in, they stay comfortable most of the day.

I think it's a good question....and am curious as to how Cynthia is able to wear makeup on her lids without it smudging.

Thanks for bringing his up! Anxiously awaiting your "shallow replies"!! :-)
Debbie




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Re: Ladies: shallow question ???
Re: Ladies: shallow question ??? -- Linda In E. Tennessee Top of thread Archive
Posted by: Lyn Down Under
02/08/2004, 16:52:04


Yes, this is a real problem for me, too. I used to wear a lot of eye makeup as I am very fair but stopped it after BEB. It just wasn't worth the hassle. I find now I get a lot of ingrowing lashes which are extremely painful and as they are so fair, it is getting harder to see them to pull them out.

If I was 20+, I would probably persevere with eye makeup but as I am 50+++ I just don't care anymore. By that I mean I am not now concerned with other people's perceptions of how I look.




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Re: Ladies: shallow question ???
Re: Re: Ladies: shallow question ??? -- Lyn Down Under Top of thread Archive
Posted by: Shelley
02/08/2004, 19:52:26


Well, then, shallow is my middle name! I am also 50 +++ 1/2, but I am single, so still have to have my make-up, and I also wear contacs. I wear Lancombe, expensive, but not nearly as likely to smear. Also, they have a waterproof eye-liner. I just feel as if I look better with make-up on. Shallow.....



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Re: Ladies: shallow question ???
Re: Re: Ladies: shallow question ??? -- Shelley Top of thread Archive
Posted by: Ann Doyle
02/09/2004, 14:09:24


I'm 73 1/2 and stopped wearing mascara awhile ago but some of my eyelashes do grow inward and scratch my eye. This happened before my myectomy and after my myectomy. I can't see good enough to pull them. Luckily, I was at the eye drs office several times and he pulled the ones turning in. Big relief. Ann Doyle



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Re: Ladies: shallow question ???
Re: Re: Ladies: shallow question ??? -- Ann Doyle Top of thread Archive
Posted by: Shelley
02/09/2004, 14:12:49


Well, Ann, the next time you have a "hot date", call me and I will run over and apply mascara for you!!!!!
Shelley



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Re: Ladies: shallow question ???
Re: Re: Ladies: shallow question ??? -- Shelley Top of thread Archive
Posted by: Ann Doyle
02/12/2004, 20:59:14


All my dates are hot even if they are with my husband. Had the first five children in 4 years--4,3,2,1 and new. I went back for a 6 week check up after number 3 and told the DR. I thought I was pregnant. He said ' You can't be--after all , he didn't give us permission. I was. So we had them 10 months apart and 18 months apart. I'll take you up on the mascara. I'd like the full eye treatment.
Remember, I've been married 54 years--that is pp==pre pill. Ann Doyle



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Re: Ladies: shallow question ???
Re: Re: Ladies: shallow question ??? -- Ann Doyle Top of thread Archive
Posted by: Shelley
02/12/2004, 22:11:26


Anne - you must have been a child bride.... And a SAINT to still be with the same husband. Well, ONE of you must be a saint!!!



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Re: Ladies: shallow question ???/Shelley
Re: Re: Ladies: shallow question ??? -- Shelley Top of thread Archive
Posted by: Debbie
02/09/2004, 14:20:21


Dear Shelley,

May I ask which Lancome products you use...specific names/types? Are they all waterproof? And they don't smudge? I am willing to spend the money IF I think I won't end up looking like a clown, or a raccoon. You mention a waterproof liner, but how about mascara and shadow? I also feel I look better with eye makeup, but I definitely look worse with dark smudges under my eyes and on my cheeks!

Superficially yours,
Debbie




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Re: Ladies: shallow question ???/Shelley
Re: Re: Ladies: shallow question ???/Shelley -- Debbie Top of thread Archive
Posted by: Shelley
02/09/2004, 15:24:41


Okay, the mascara is called Definicils High Definition Mascara. The eyeliner is LeStylo Waterproof Long Lasting Eyeliner. They are completely foolproof, but they are pretty darn good!! Go for it!
Somewhat Less Than Perfect Shelley



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Re: Ladies: shallow question ???/Shelley
Re: Re: Ladies: shallow question ???/Shelley -- Shelley Top of thread Archive
Posted by: Shelley
02/09/2004, 15:25:43


Sorry, that should read "they are NOT completely foolproof"!



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Re: Ladies: shallow question ???
Re: Ladies: shallow question ??? -- Linda In E. Tennessee Top of thread Archive
Posted by: Shirley Barr in New Mexico
02/09/2004, 23:07:51


You're certainly not alone in this. When Blepharospasm started, the contacts and the eye make-up went out the window. I really hate having to wear glasses. My eyelashes also turn every which-a-way and began this after BEB started and before my upper myectomy. They were much worse for a time after the myectomy but have settled down somewhat at this point. I used to use a lash curler on occasion and always wore mascara. I really think that wearing mascara and having to remove it and using the curler and such actually keeps the lashes going the right direction and also the removal of the mascara probably helps to loosen and remove lashes that don't want to behave themselves. At least I think that is why the lashes were in better shape before BEB.
Trying to use a lash curler now (yes, I've tried) will set off spasms in a major way for me and it isn't fun to have your eye spasm when the lashes are gripped in the curler. My eyes would have to be doing really well to even attempt to put the mascara on and then it doesn't stay on. Heck, somedays I have trouble looking in the mirror to put on a bit of lipstick or to even fix my hair. Some times I try and give up after a few minutes and go back later to try again.
I even fleetingly thought about having my eyebrows tattooed (sp)a year or so ago as they are very blond (can barely be seen)and I'm glad now that I didn't as my brows aren't where they were a year ago due to the pulling and spasms.

I'll just try to be happy with my bronzer/fake tanner for that natural looking healthy glow. ;-)

Shirley in New Mexico




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Re: Ladies: shallow question ???
Re: Re: Ladies: shallow question ??? -- Shirley Barr in New Mexico Top of thread Archive
Posted by: catherine pender
02/10/2004, 11:11:35


Putting on eye makeup is definately the hardest part of my daily routine mainly due to the fact I can't see without my glasses even with a magnfying mirror. I saw somewhere that there are glasses with 1 arm. I guess you have to get one for each side. I have not been able to find them at the makeup counter here in Canada. Maybe someone out there knows where you could order them from.

I use Bobby Brown makeup. It has water proof everything. I find a cream eyeshadow is better because the there is no dust to get in the eye. There is also a eyebrow mascara for people with very light brows. It just helps define them so there is no need for a tatoo Shirly.
I use it because my brows are very dark and I can lighten them just enough to go with my hair.
I have started taking better care of my skin also. Maybe its the age 53 today. I use to get compliments about my beautiful blue eyes and now I get compliments on my skin.

The things we go through!

Catherine in Calgary shopping for a bathingsuit for a trip to Dominion Republic on Thursday




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Re: Ladies: shallow question ???
Re: Re: Ladies: shallow question ??? -- catherine pender Top of thread Archive
Posted by: Shelley
02/10/2004, 19:39:51


Hey, I'm bathing suit shopping, too, for a trip to Cabo San Lucas with a bunch of 24-year olds over Spring Break! YEAH! And I'm going right down to get some of that Bobby Brown eye shadow! I'm not going down easily!!!!!! 54 - here I COME!!!!
Shelley



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Re: Ladies: shallow question ???
Re: Re: Ladies: shallow question ??? -- catherine pender Top of thread Archive
Posted by: PattiA
02/14/2004, 00:23:43


Catherine, I think Merle Norman Studios have reading glasses in various strengths that have flip up lenses so you can do one eye at a time. ~Patti in Houston



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Re: Ladies: shallow question ???Botox after myectomy,Shirley
Re: Re: Ladies: shallow question ??? -- Shirley Barr in New Mexico Top of thread Archive
Posted by: Ann Doyle
02/17/2004, 17:37:58


Shirley, you seem to have gone right before me in everything.
I had the myectomy and waited 3 months at DR. Andersons advice--terrible. When I did get the Botox, my Botox Dr. had never had a patient with such an extensive myectomy but did read the papers written by DR. A describing the procedure. He was afraid of giving me too much Botox and causing droopy eyes. He didn't give me enough. I think I would prefer droopy eyes.
My next Botox is March 11. I think I would like as much as usual. Do you get the same ammount now as you did before the myectomy or did you build up to it?
I know your Dr gives you shots every 8 weeks. Mine says 12 weeks but for the past 2 years, I have made them for every 10 weeks. He hasn't noticed. I'm afraid if I made them more often he would notice. I could certainly use them every 8 weeks.
I'm glad I had the myectomy and would do it again. For one thing, I can keep both eyes open for awhile but toward the end it is difficult. One hour open and one hour closed is the usual for comfort.
I also have Meige and ormandibular.
I guess what I am asking is ; Do you get the same ammount now?Any other advice? My face hurts, my jaw hurts. I am not a nice person right now. Ann Doyle



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Re:Botox after myectomy,Shirley
Re: Re: Ladies: shallow question ???Botox after myectomy,Shirley -- Ann Doyle Top of thread Archive
Posted by: Shirley Barr in New Mexico
02/18/2004, 12:58:42


Hi Ann,
I assume that your corneal abrasion cleared up you didn't have any permanent damage? I hope that is the case...I know that you were very worried about it and I haven't heard you mention it lately, though.

I used to get my injections every 8 weeks...the past year or so I've gotten them every 10 to 12 weeks. I've had four different doctors inject me since my myectomy for one reason or another. I've been given anywhere from 32 units to 75 units total each time that I have gotten my injections since my surgery. The 32 units worked just as well as the 75 units did but were given by different doctors. I'm trying to work with another new physician since I moved to New Mexico 5 months ago. She has injected me on two occasions now and things aren't working out real well. She gave me 50 units about 3 weeks ago and things haven't really improved much at all. But then I'm not really sure how "old" the botox was when she gave it to me or how it had been handled as she got it out of her fridge and it had already been drawn up. In questioning her, she got evasive. I would have refused it but I was on my way out of town for a memorial service and it had been 12 weeks since my last injections and I wasn't sure when I'd be able to be worked in for more. She had no other botox available.
Let's just say that she and I had a chat about the circumstances and neither one of us were happy campers when I left.
Back to your question. ;-) Before my surgery, I routinely got 100 units of Botox for my eyes. I wouldn't expect to need near that amount after surgery. There will be areas that just won't need to be injected because the muscle was removed. Dr. A probably gave you a diagram of where you might need the injections post surgery. Your injecting doctor can use this as a guide and watch your face to see where you need the injections.
As far as your doctor being concerned about causing droopy eyes, he shouldn't need to be injecting anywhere around the levator as that won't be necessary. As long as he knows where the muscles were removed...he just needs to avoid these areas. Next time that you go in let him know where you are still having the pulling and spasms and hopefully he can change the dosage and or sites a bit to relieve this.

Your lower facial involvement sounds like it is giving you a lot of difficulty. You may need to have those injection sites and dosages modified also. I wish you the best of luck with this. It ain't fun!

Shirley in New Mexico who should be at her best at 3 weeks post botox but isn't. :~(




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Re: Re:Botox after myectomy,Shirley
Re: Re:Botox after myectomy,Shirley -- Shirley Barr in New Mexico Top of thread Archive
Posted by: Ann Doyle
02/18/2004, 18:01:01


All DR. Anderson said was that I wouldn't need them in my forehead. I don't remember getting them there.
Thanks for answering all my questions.
I spent the afternoon in the dentist chair with that D___ bright light. I was expecting a cavity fill and ended up with a root canal. Been going to him for 10 years. I thought it would be 1/2 hour and it ended up being more than 1 1/2. I think I had my first panic attack. I started shanking. He was with another patient while they were waiting for an x-ray and left again while something was drying. His assistant was concerned about me and when I was ready to call my husband to pick me up and the phone was busy, she gave me a ride home.
Thank you again Shirley and I'm really sorry you have to find someone good again. At least you know now what is and isn't good and can let them know what you know. Ann Doyle



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Re: Ann
Re: Re: Re:Botox after myectomy,Shirley -- Ann Doyle Top of thread Archive
Posted by: June in Toronto
02/19/2004, 05:46:24


See my post under your Dental enquiry, Ann, re wearing a night mask for the d....lights - it works believe me. June in Toronto



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Re: Ann
Re: Re: Ann -- June in Toronto Top of thread Archive
Posted by: Ann Doyle
02/19/2004, 09:37:58


Sounds like an excellent idea. Where do you buy a night mask?
I also plan to take my walkman with me. Two hours is a long time. Ann D



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Re: Ann/Buying Night Masks/Blinds
Re: Re: Ann -- Ann Doyle Top of thread Archive
Posted by: June in Toronto
02/19/2004, 09:56:49


In Toronto we can buy masks/blinds in Shoppers Drug Mart (other drug stores might sell them as well), some lingerie shops sell them (prettier, fancier and more expensive) and I've collected quite a few when they were given out free (one time long ago) on airline flights. Make sure you wash them everytime you use them to stop any infections and I usually wear either a piece of cotton material or a kleenex underneath. One time Shirley suggested wearing a stretchy wide head band in lieu - that might work as well. Hope this helps Ann.

June in Toronto, Canada




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Re: Ann/Buying Night Masks/Blinds
Re: Re: Ann/Buying Night Masks/Blinds -- June in Toronto Top of thread Archive
Posted by: Ann Doyle
02/19/2004, 14:56:54


Thanks again June. If I can't find one, I will wear my swimming goggles with cotton balls inside. Isn't it crazy, the little things that upset us.
I'm having the work done the day before Botox, which my husband thinks is a mistake but I don't want to waste one of my "good eye days" in the dentist office. Ann D



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Re: Ladies: shallow question ???Botox after myectomy, to Ann
Re: Re: Ladies: shallow question ???Botox after myectomy,Shirley -- Ann Doyle Top of thread Archive
Posted by: Barbara
02/18/2004, 13:39:42


I've been waiting to hear how you are doing after your myectemy. Was going to e-mail you but I hate to bother people. For me it hs been very difficult to get the shots after surgery. It seems as if everything keeps moving and chaning and now that its been a year the doctor and I are still adjusting places and dosages. I also have meige and since the surgery alot of movement began under the eyes and that mainly were I get my shots now The meige has gotten worse. I don't get any shots around the eyes except the forehead nose and sides of eyes. Never in the lids. I try to go 12 weeks but seems as if 10 is the best I can do. Seems like I'm averaging 150 units for the entire face. Actually more than I need before. How many units do you get and where? Would love to hear from you and your post surgery travails if your time permits. This surgery was major for me and it's great to others who have had it. warmly Barbara


Modified by Barbara at Wed, Feb 18, 2004, 13:42:08

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