I ask the board and BEBRF... How many people have this disorder? This is the answer BEBRF sent to me this morning. Thanks to all that helped me with this! Cherie in Alabama Since many patients see more than one doctor, it is difficult to give anything more than an estimate. It is estimated that about 60 - 80 thousand people in the U.S. suffer from BEB. This makes it a rare disorder.
Mary Smith
Office Manager
BEBRF, Inc.
P.O. Box 12468
Beaumont, TX 77726-2468
409-832-0788
fax: 409-832-0890
email: bebrf@ih2000.net