Blepharospasm Bulletin Board

Newbie with eye muscle D
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Posted by: covetwo
02/20/2004, 23:17:32


My neuro says I have dystonic eye muscles which control movement of the eyeball itself. Does anyone have this problem or are you all sufffering just from the big D in the lids?



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Re: Newbie with eye muscle D
Re: Newbie with eye muscle D -- covetwo Top of thread Archive
Posted by: Lynn Yarbrough
02/21/2004, 00:56:07


Hi,

I assume the eye-muscle dystonia causes double vision or something akin to that. It's interesting that Botox was initially tried as a counter to cross-eyedness but that condition is so rare that you hardly hear about it in comparison with BEB. At any rate, the fundamental issues are the same: spastic muscles and nerves and their treatment. So we appear to have a lot in common.

So I'll tell you what I tell a lot of BEB patients: We're sorry for you and your condition, but stick around here because we might be able to help. And perhaps you can help some of us.

Cheers,

--- Lynn




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Re: Newbie with eye muscle D
Re: Newbie with eye muscle D -- covetwo Top of thread Archive
Posted by: June in Toronto
02/21/2004, 05:36:33


Hi there and welcome to the board - not sure I understand the difference between what you have and what we all have - Blepharospasm. My eyelids spasm and this causes my eyeballs to spasm also I'm sure. After I get botox injections the eyeballs spasm independently -like the charlie horses (charming!) people experience in their legs. Let us know more about yourself if you feel comfortable doing so. Take care.

June in Toronto, Canada that is




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Re: Newbie with eye muscle D
Re: Newbie with eye muscle D -- covetwo Top of thread Archive
Posted by: Mary, upstate NY
02/21/2004, 10:25:40


Could that possibly be what is called "Lazy Eye Syndrome"? Mary



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Re: Newbie with eye muscle D
Re: Re: Newbie with eye muscle D -- Mary, upstate NY Top of thread Archive
Posted by: covetwo
02/21/2004, 17:47:35


I'm 76 so it's a little late for lazy eye.

My dystonia started with my tongue which has been rather constant. I have also lost my voice after ENT procedure and have had neckk problem helped by botox. The latest was growing a club foot. That is my great toe began to stick up and the foot turned so I walk on the outside of my foot.

I began to have double vision in one eye. "Complete" eye exam sahowed nothing. Told neuro on a regualr visint and he did some simple eye test and at acertain point I went cross eyed. He said all eye stuff rom dystonia. That didn't amke sense to me. Doble vision with two eyes I can see. But with one eye D doesn't make sense.

ent back to eye doc who turfed me out to a specialist who said I had scar tissue in the sac holidng the lens implant and cleared it up with laser and now with glasses no more double vision in one eye. I can'gt discount the crossing of my eys on certain "follow the finger test".

That's the story. My eye lids seem fine and those muscles don't seem affected.

Neuro thinks I am going into generalized dystonia. I ulnderstand this is usually childhood stuff and rarel as late as forty. I started with my tongue in my early 60s.

WOW!n Long winded.

Sign me,

Just lucky I guess.

Catherine




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Re: Newbie with eye muscle D
Re: Re: Newbie with eye muscle D -- covetwo Top of thread Archive
Posted by: Moderator-JB
02/24/2004, 22:29:06


Catherine,

A Neuro-Opthamologist might be able to give you a better answer.

"I understand this is usually childhood stuff and rarely as late as forty. I started with my tongue in my early 60s."

Don't always believe the written word. My Dystonia started with Blepharospasm at age 50 (now 57) and Dystonia has progressed to anywhere, anytime, whatever. Here's a link you might find enlightening.

http://www.tardivedyskinesia.org/

Take care,

Judy




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Re: Newbie with eye muscle D
Re: Re: Newbie with eye muscle D -- Moderator-JB Top of thread Archive
Posted by: Ann Doyle
02/25/2004, 09:38:55


Last time I had a an eye exam, I couldn't line up the boxes to be horizontal. He said the only time that happened before, the person had a brain tumor but he knew of my condition and it was the botox. One eye looked 15 degrees higher than the other and I did have double vision which did go away with when the botox left. I still have double vision sometimes and I don't know why but I'm sure it has to do with the dystonia. I have bleph/Meige/ Oromandibular. It started with one and keeps on going. I am 73 1/2. Ann Doyle



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