THROAT SPASM


Posted by Kelly Saffell , May 04,2001,09:32   Archive
I have a spasm in the left side of my throat. For a couple of years now it has been mild and only affects me occasionally when I drink or when my eyes spasm completely shut. Just recently I have noticed an increase in the spasm and can feel it when I swallow food. So far I haven't choked. My neck stays very tight and sore on the same side as the spasm. I have never received botox in my neck muscles but receive it every 3 months in my jaw muscles. Does anyone else have this problem and if so what helps control it? I have Meige as well as BEB. I have a dumb question - do you pronounce Meige with a hard G or with a J sound?



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Re: THROAT SPASM

Re : THROAT SPASM --- Kelly Saffell
Posted by Lynn Yarbrough , May 04,2001,12:34 Top of Thread Archive
>I have a dumb question - do you pronounce Meige with a hard G or with a J sound? <

Everyone I know pronounces it MEEJ.

--- Lynn




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Re: THROAT SPASM

Re : Re: THROAT SPASM --- Lynn Yarbrough
Posted by Sally - in - Idaho , May 04,2001,14:05 Top of Thread Archive
I'd like to know the answer to that also. I've heard it as mehj, mize, megh. I once asked my neuro, but didn't hear his answer!

Sally in North Idaho who hates always asking people to repeat.




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Re: THROAT SPASM

Re : THROAT SPASM --- Kelly Saffell
Posted by Shirley-Arkansas-USA , May 04,2001,12:55 Top of Thread Archive
I have something a little different and is just a tendency to choke easily. It almost feels like a spasm when swallowing that feels like the food or water or air or whatever made a mistake and is going down the trachea instead of where it is supposed to go. It is sometimes difficult to catch my breath after this happens and I get all red-faced and can't talk for a while. It has also occurred when I have been doing a lot of talking and my voice just gives out and I will start coughing. Eyes start to tear and it takes a while to get my voice back. My mother and sister and brother also have this problem.

Knowing how to pronounce meige is not a dumb question as I have heard many different doctors pronounce it differently. I know that I have seen the correct pronunciation listed somewhere but have been unable to locate it this morning. It is said with a long A as in May-the remainder being pronounced, I believe with a "j" sound. All one syllable. Where are our English majors, out there? I pronounce it the way that Mary Lou Thompson of the BEBRF does. I've heard it pronounced by doctors with a long "e" sound but I believe that the "e" is silent and it should be said with a long "a".
I know that there has got to be someone out there that is better at explaining this than I have done. Go for it. We need some audio feed, here.

Shirley in AR.




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Re: THROAT SPASM

Re : Re: THROAT SPASM --- Shirley-Arkansas-USA
Posted by Sally - in - Idaho , May 04,2001,14:07 Top of Thread Archive
I'm an English major, but I think that is a French word. So where are our French BEBers?

Sally in North Idaho




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Re:How to pronounce Meige?

Re : Re: THROAT SPASM --- Sally - in - Idaho
Posted by Shirley-Arkansas-USA , May 04,2001,14:35 Top of Thread Archive
We have to get this settled before Lynn and I get into a squabble over this. Only kidding, Lynn. I really have heard it pronounced many different ways.
Inquiring minds want and need to know. Someone out there in the know, speak up-or Lynn and I will go to our corners and Dee can be the referee. But then again, Dee and I always(almost) have opposing viewpoints so maybe someone else should be the ref. Maybe a telephone conference call with the BEBRF? Surely they know.

;-0)

Shirley in AR.




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Re: Re:How to pronounce Meige?

Re : Re:How to pronounce Meige? --- Shirley-Arkansas-USA
Posted by Virginia , May 04,2001,15:05 Top of Thread Archive
Last year at the conference I heard speakers pronounce it several different ways. If I remember correctly from my French (at least 20 years ago), it should be mezh with a short e (I used zh because it is like in Zhivago and that seemed descriptive). Maybe some of our Canadians speak French and could help out here.

Virginia in AL, who doesn't thinks that no matter how you pronounce it, it's a major pain.




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Re: Re:How to pronounce Meige?

Re : Re: Re:How to pronounce Meige? --- Virginia
Posted by Shirley-Arkansas-USA , May 04,2001,15:28 Top of Thread Archive
Virginia,
I love the Zhivago example. That is perfect. Roy and I sat around at lunch and tried to think of an example of a word to use and couldn't think of one that sounded like the last part of Meige. I told him that you would come up with something. And you did. My long "a" must come from my southern heritage.
Meige Syndrome was named after the French doctor, Henri Meige, so you guys are on track with your French.

Shirley in AR. who hasn't been bothered with it since her surgery no matter how you say it. My brain hasn't figured the surgery out yet. Can't wait till it does which I know will surely happen. Bummer




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choking

Re : Re: THROAT SPASM --- Shirley-Arkansas-USA
Posted by Virginia , May 04,2001,19:35 Top of Thread Archive
I am having exactly the same problem with choking. It is a fairly recent development and it doesn't run in my family.

Virginia in AL (took me a few minutes to think of Zhivago too)




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Re: choking

Re : choking --- Virginia
Posted by Sally - in - Idaho , May 05,2001,00:03 Top of Thread Archive
I often choke, too, and then have a real problem getting my throat cleared. Doesn't even have to be food ... saliva or water will do the deed.

Sally in North Idaho




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Re: choking

Re : Re: choking --- Sally - in - Idaho
Posted by June in Toronto (June Floyd,June in Toronto), May 05,2001,06:35 Top of Thread Archive
I choke, on occasion, as well - nothing to do with food or drink - just happens. My husband was really worried the last time it happened a couple of weeks ago (me too!).

June in Toronto




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Re: choking

Re : Re: choking --- Sally - in - Idaho
Posted by Kelly Saffell , May 05,2001,12:36 Top of Thread Archive
My choking began with water and I noticed it was worse if I drank out of a water fountain. My neurologist told me to pull my chin back when I swallowed and that has helped. The increase spasm when I eat has just began.



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Re: THROAT SPASM

Re : Re: THROAT SPASM --- Shirley-Arkansas-USA
Posted by Edith Nalepa (edith nalepa,Edith Nalepa), May 07,2001,20:55 Top of Thread Archive
Hello Friends,I also have the chokeing problem, food, water, salava. or just talking, I was not connecting it to the BEB, I was assuming it might be my age, 71, and the effects of getting older.So I am now rethinking this problem, will mention it when I go for my next botox injections, which I have not scdeduled yet. Edith in Ohio



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Re: THROAT SPASM

Re : THROAT SPASM --- Kelly Saffell
Posted by Joanne Matuzas , May 04,2001,13:23 Top of Thread Archive
Kelly, I have what feels like spasming in the neck and/or throat area
but as of now, it has not affected my swallowing and the Ear/Nose/Throat surgeon has said my voice box is not affected. I have difficulties
breathing and the docs (which we already know don't sometimes know as
much as we do about this disorder :<)) say that my diaphragm is spasming although I feel nothing in my chest. It is quite strange as the only sensations are in my neck/throat area. I have been getting some relief
from Benadryl and an anti-anxiety med. Joanne Matuzas, CA



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Re: THROAT SPASM

Re : Re: THROAT SPASM --- Joanne Matuzas
Posted by Kelly Saffell , May 04,2001,16:02 Top of Thread Archive
I have some difficulty breathing as well. Sometimes I feel like I'm just not getting enough air and I get winded when I talk alot or too fast. I have recently begun to feel "anxious" although I don't know why. Maybe it's all related. I take Klonopin at night. What med are you taking and are there any side effects?



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Re: THROAT SPASM

Re : Re: THROAT SPASM --- Kelly Saffell
Posted by Joanne Matuzas , May 04,2001,18:08 Top of Thread Archive
Klonopin seems to be the drug of choice for most of us. I have read on
this board that some of us have problems sleeping when taking klonopin
before going to bed. Most take small dosage in am or mid day, the
latest recommended time being 4pm. Are you sleeping through the night?
Could be your system is adjusting to the klonopin. YOu didn't mention
how long you have been taking it. About a year ago I started with
a drug called Serax which is an anti-anxiety, anti-panic med which
helps me although it does tend to make me tired depending upon my
system and what's going on and how I slept. Take 10mg at mid am or lunch and another 5 or 10mg later in the day. Sometimes take a benadryl if I wake up at night and have trouble falling back to sleep due to the spasming. You do need to check with your doctor or pharmacist before mixing meds even ones that are over the counter as benadryl. I have not yet had personal experience with klonopin but probably will at a future date. Both Serax and klonopin are part of the benzodiazepem family and are addicting so you must be careful about increasing any dosages on your own. This is quite a disorder, we all react different to the meds so it's great to get lots of info and it's here on this board. Hope this
helps. Have a good weekend. Joanne Matuzas CA



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Re: THROAT SPASM

Re : Re: THROAT SPASM --- Joanne Matuzas
Posted by Kelly Saffell , May 05,2001,12:33 Top of Thread Archive
I have been on klonopin for a year. I used to take 1/4 to 1/2 tablet in the afternoon but it does make me drowsy. I was changed to 1 tablet in the evening because I clench my jaw so hard while I sleep in an effort to help relax my jaw. I sleep well and thru the night but I dream very heavily. I read on the board that alot of people do that on klonopin.



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Re: THROAT SPASM

Re : THROAT SPASM --- Kelly Saffell
Posted by Carol Arp , May 07,2001,14:56 Top of Thread Archive
I have choking spasms with water, saliva, and food. I also have experienced 2 episodes of neck muscle contractions where both sides contract at once and it knocks me out. As soon as I pass out the contractions have stopped. Very exciting for those around me though! Now I get shots down both sides of my neck and at the base of my neck in the front on both sides. Seems to help.



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Re: THROAT SPASM

Re : THROAT SPASM --- Kelly Saffell
Posted by June in Toronto (June Floyd,June in Toronto), May 08,2001,11:40 Top of Thread Archive
On the SD bb there is a link about Gastresophageal Reflux Disease (GERD) which is interesting. It talks about heartburn but also about regurgitation of gastric acid or sour contents in the mouth. More male/females get it between 45-64 yars of age. Check it out re your throat spasms, etc. - I've added the link here.

June in Toronto Related link: http://www.gerd.com/faq/gerd-faq.htm#1




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Re: THROAT SPASM

Re : THROAT SPASM --- Kelly Saffell
Posted by Judi in Nc (Judi in NC,Judi in Nc), May 11,2001,16:01 Top of Thread Archive
I receive Botox around the vocal cords for Spasmodic Dysphonia. I've had just the one injection set. Prior to that I was taking medication for vocal cord spasms which caused shortness of breath. Another symptom was that my voice would become very weak and often just cut off mid-sentence.



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