Shirley, where are you?

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Re: I'm back-just went for botox

Re : Shirley, where are you? --- kathy
Posted by Shirley-Arkansas-USA ® , May 24,2001,22:16		Top of Thread	Archive

Hi Kathy, I can't leave you for a day, girl! What on earth did you do without me while I had my surgery?
The Vitamin E doesn't seem to be a problem. I'm mostly using Moisture Pm eye ointment, right now, anyway. I kind of switch things around. The swelling is slowly going down. I've always had a problem with swelling so this doesn't really surprise me, just annoys me. Thanks for the advice, though, as I hadn't really thought about having an allergic reaction to it.

Shirley in AR. It's getting late and I've had a long day. Talk to everybody tomorrow.
Nite, Nite.

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Re: I'm back-just went for botox

Re : Re: I'm back-just went for botox --- Shirley-Arkansas-USA
Posted by kathy ® , May 25,2001,08:12		Top of Thread	Archive

I just suffered, hoped your surgery would work, and worried about if i'm ever going to have to have it. Some of your messages started to worry me when you said you couldn't tell if your eyes were open or not!!! is that because of the numbness? can you feel anything in that area?

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Re: I'm back-just went for botox

Re : Re: I'm back-just went for botox --- kathy
Posted by Shirley-Arkansas-USA ® , May 25,2001,12:05		Top of Thread	Archive

Kathy,
I think regarding my comment that I couldn't tell if my eyes were open or not that my typing got ahead of my brain or my brain got ahead of my typing. It could be either on any given day. I meant to say that I could not tell yet if the surgery was going to help my eyes to open or not. My forehead is somewhat numb and also places around my brows and upper lids. I can still feel the area but there is a numbness, also. Just not totally numb.
When I saw Dr. Perlmutter on Wednesday, he was very impressed that I could open my eyes without hesitation on command, now. I have not been able to do this. He would tell me to close them and then open them and in the past it would take me anywhere from 5 to 30 seconds to struggle to get them open.
I am not trying to encourage or discourage anyone from getting the surgery done. I am merely telling what is going on with me. I am still having to take the medicine that I wanted to stop. The swelling could go on for months. Just think of me as a teaching tool with visual aids.
Apraxia is one of the more difficult aspects of Blepharospasm to treat. Even though, I have no squeezing in my upper lids, now, I still have the apraxia. It will be awhile before I can tell how much that is improved.

Shirley in AR.

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