Re: what now????
Hi Pam,
Sorry to hear that your dad is having so much trouble. What did the pulmonary doctor suggest? There are so many things that could be going on. If it were me, I'd want a check up by an Internal Medicine Specialist and possibly a Cardiologist to rule out any heart problems. Another possibility is that it could be another form of dystonia. Some of the people on this board do have difficulty with breathing and shortness of breath. Maybe a diaphragmatic dystonia of some type. So much of this is all a puzzle. You might want to see a Neurologist specializing in movement disorders if you haven't already. Anxiety can also cause or be a trigger for the shortness of breath. Probably others will post that have this or a similar problem with their breathing.
There are many possibilities and I would think that your Pulmonary Specialist could point you in the right direction or at least give you some suggestions.Shirley
Re: what now????
Pam, I have the breathing difficulties as well. Neuro says it's
diaphragmatic dystonia as I do not have spasmodic dysphonia either.I
was told on the spasmodic dysphonia board that something else could
also be going on in the throat area, i.e. pharyx. Shirley had some good comments. Meds have been the only way I get a bit of relief but not near as much as I'd like. It's not an easy battle but you will eventually help him find some relief. Got to keep plugging.
Joanne M. San Diego, CA
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