Alert! Please Watch Your Mailbox.(Please skip this if you read it before. To keep it fresh and at the top of the Bulletin Board we are listing it as a new entry several times. )
Questionnaires were mailed late last week by BEBRF to all patients on their mailing list, which includes most of the participants of this Bulletin Board. This is a study being done by Dr. Mahant at Barrows Neurological Institute in Phoenix, AZ. Dr. Mahant is a member of Dr.
Stacy’s group at Barrows. Dr. Stacy and the Barrows Institute are sponsors of the BEBRF Conference this August in Scottsdale.
As with any study, there is an Informed Consent form and Release of Medical Information form. These are standard forms to protect the researchers and to assure the patients that only qualified medical personnel will have access to the information. You name, address and medical information will not be available to anyone not related to this study.
This is an opportunity for each of us to aid in a research project that may shed some light on the cause (or causes) of blepharospasm and Meige. Please do your part and return the completed questionnaire by JUNE 30th.
Re: Please Watch Your Mailbox
Don, I got my questionnaire in the mail today. I'll have to get my husband to help me with it. I still don't read so good.Shirley in AR. (Bump)
Re: Please Watch Your Mailbox
Hi Don - would be very interested to see this Questionnaire. How would I go about getting one?
Lyn
Questionnaire
Lyn:e-mail the BEBRF Foundation office at: bebrf@ih2000.net
Re: Questionnaire
Thanks, Judy, will contact bebrf foundation. Email I sent last night has come back. Tried again this am and again it said your server is rejecting it. Will keep trying!
Lyn
Re: Please Watch Your Mailbox
Don, As Lyn mentioned, be glad to fill it out. Haven't received it
as of yet. Joanne M. San Diego, CA
Re: On the Mailing List ?
Joanne, you should be getting one if you are on the BEBRF mailing list and get the newsletter.Shirley in AR.
Re: On the Mailing List ?
I am and do Shirley so hopefully it will arrive soon. Joanne M. San Diego, CA
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