Blepharospasm Bulletin Board

Social Security Disability approval
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Posted by: Kathryn K.
03/01/2004, 16:37:47


I want to pass along that I was approved for Social Security Disability without any problem, as well as disability retirement through my employment. I was diagnosed with BEB in 4/02 and continued my job as a government attorney until 1/03 when it just got too hard. Many thanks to the Foundation and its members for providing me materials to help with the process. -Kathryn



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Re: Social Security Disability approval
Re: Social Security Disability approval -- Kathryn K. Top of thread Archive
Posted by: June in Toronto
03/02/2004, 04:14:26


Congratulations Kathryn although I'm sure you wish you didn't have beb and could have continued your job (me too!). I hope this now allows you to smell the roses a bit more and be good to yourself. Take care

June in Toronto (Canada)




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Approval ...
Re: Social Security Disability approval -- Kathryn K. Top of thread Archive
Posted by: Moderator-JB
03/02/2004, 22:56:27


Kathryn,

Wonderful! Enjoy your relief.

Judy




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Re: Social Security Disability approval
Re: Social Security Disability approval -- Kathryn K. Top of thread Archive
Posted by: PDB
03/06/2004, 12:18:45


do you mind me asking what "it got too hard" means? I'm struggling with when too much struggle is enough to justify going for disability. I feel like I'm bailing out too early, yet it's impossible to concentrate, read items without a magnifying glass, walk between office locations with bright light changes etc. How long does one go on fighting this hoping for a fix before giving up? All advice and experience welcome.

Pete




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Re: Justifying going on Disability
Re: Re: Social Security Disability approval -- PDB Top of thread Archive
Posted by: June in Toronto
03/06/2004, 17:46:52


I justified applying for disability, Peter, when I could no longer commute to work by myself especially during the cold winter months when it was dark and the bright lights of the traffic caused my eyelids to spasm. I also couldn't read sufficiently at work to do my job or look at a computer screen (I still don't). I was a university administrator and dealt with plagiarism. Prior to leaving work I was lying down covering my eyes during my whole lunch hour and going to bed as soon as I got home. My quality of life was very poor and it certainly wasn't living! Each of us has to decide if and when we can't take the stress anymore - at least I was 55 when I left work, others might find it much more difficult at a younger age. Best wishes.

June in Toronto (Canada)




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Re: Social Security Disability approval
Re: Re: Social Security Disability approval -- PDB Top of thread Archive
Posted by: Linda Sue
03/07/2004, 00:48:04


I went on disability 3 years ago but not because of Bleparospasms that was diagnosed after I was already on disability. My first dystonia was focal dystonia of my R hand. Being a nurse I had to do a lot of writing and other tasks that required using fine motor skills. Botox was finally started after much PT, in and out of splints, changing my writing surface and trying to write left handed, but it was not the total answer. I was also fighting fibromyalgia, as have, I have noticed, others on this BB. One health problem led to another, including a couple of cancers, when finally one day my personal physician told me that I needed to quit my job because I was slowly killing myself. So my physician made that decision for me but I can tell you my health has improved immensely and I feel so much better. I wish you the best Pete.
Linda



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Re: A Great Physician Linda
Re: Re: Social Security Disability approval -- Linda Sue Top of thread Archive
Posted by: June in Toronto
03/07/2004, 06:51:55


It sounds like you have a great physician Linda. I'm glad since you went on disability you are feeling better - not 100% I'm sure but able to take the time to get R&R and smell the roses. If we went back to work the multitude of problems would again arise their ugly head to such a degree that we just wouldn't be able to cope. That's how I feel - the disability(ies) are still there but we can accommodate them so much more by not working. Unfortunately some people just don't have that option of not working and my heart and prayers go out to them.

In Toronto, Canada where rain and perhaps snow is forecast again for today - June




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Re: A Great Physician Linda
Re: Re: A Great Physician Linda -- June in Toronto Top of thread Archive
Posted by: Linda Sue
03/07/2004, 12:09:35


Yes I do. She has been behind me 100% and gotten me through some rough times both mentally and physically. Your right about not feeling 100% but it helps so much to be able to set your own schedule and be able to play lazy on the days you need to and ambitious on the days that allow you to be so. When my doctor told me that I had to quit I said "how can I afford to quit" and she immediately replied "how can you afford not to"? I did have a private policy plus one from work so things worked out for me. I realize there are people not that fortunate.
Linda (someday I am going to see more of Canada than just Vancouver. I am only a few hundred miles from the border, in Wisconsin)



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Re: Seeing Canada
Re: Re: A Great Physician Linda -- Linda Sue Top of thread Archive
Posted by: June in Toronto
03/08/2004, 05:57:31


I hope you do visit our country, Linda sometime - its a beautiful one. Vancouver is especially lovely with the ocean, mountains and temperate climate. Toronto is very multi-cultural and we are proud of our cultural differences that make it so very interesting. One can get any kind of food imaginable here (we have 5 Chinese communities for example) - its so diverse and if I didn't live here I would be taking photographs all the time of our beautiful city! I could go on and on, but you get the drift that I'm proud to be a Canadian even though I was born and raised in London, U.K. (now that's another story - the U.K. is spectacular as well).

June in Toronto who took a ill to get sleep last night - slept 6 hours and hope that has broken the cycle of sleeplessness.




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Re: Seeing Canada
Re: Re: Seeing Canada -- June in Toronto Top of thread Archive
Posted by: Linda Sue
03/08/2004, 17:37:44


June, I have traveled to England, Scotland, Wales and Ireland and especially fell in love with London! I was ready to look for employment in London but a lady that I was with from London said that I wouldn't like the kind of nursing that was done there since nurses in the "states" are allowed to be so much more independent. I have said that someday I would go back but haven't, even though I have been to Europe 4 times. I have no excuse not to get back to Canada since it is almost in my back door.
Linda



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