Blepharospasm Bulletin Board

BEB and sleep?
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Posted by: Beth
03/01/2004, 19:45:32


Haven't been on for awhile. Eyes are bad, so I tend to withdraw which is probably when I should be on here. Anyway, I have found that I have difficulty sleeping when the BEB is bad. But, I've only had one round of botox that has worked--slept well then--so I am not sure if there is a correlation. Any comments?



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Re: BEB and sleep?
Re: BEB and sleep? -- Beth Top of thread Archive
Posted by: June in Toronto
03/02/2004, 04:12:18


My eyes are very bad lately - can't wait for March 17th when I get my botox injections. During the past few weeks I hven't been sleeping well either or long enough either. For example this morning I'm awake at 3.45 am - the nightime cream I put in (twice) last night is still active and everything is blurry! The meige yesterday was bad as well. I don't know if sleeping badly is part of all this or not. I know I've had some awful experiences in the last two weeks with venues that have had candles and flashing camera lights - each time I've had to leave and was in a miserable state with my beb/meige which also affects my emotional state. Perhaps I'm just aggrevated and that's why I can't sleep! I've started using Benadryl to see if that helps - it has the active ingredient in it that's in a night-time sleeping pill - I'm using it for the meige and beb though. Keep on trucking:-)

June in Toronto (Canada)




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Re: BEB and sleep?
Re: Re: BEB and sleep? -- June in Toronto Top of thread Archive
Posted by: dottie
03/02/2004, 11:56:00


When I don't sleep well there must be some connection my eyes are terrible, but if I get a good nights rest my eyes aren't to bad. It probably has nothing to do with good eye days and bad days. When I have a really good day I try to do everything I did that day when my eyes were good, but that doesnot work either.
Dottie


Modified by dottie at Tue, Mar 02, 2004, 11:56:37

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Re: BEB and sleep?
Re: Re: BEB and sleep? -- dottie Top of thread Archive
Posted by: June in Toronto
03/02/2004, 14:47:29


When I don't sleep well and long enough all my body is affected, and those parts (eyes) that already have a problem are affected more. Today I'm useless - been up since 3.45 am - tried to sleep around noon but didn't, but at least got some eye rest time. Better nights ahead we hope!

June in Toronto (Canada)




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Re: BEB and sleep?
Re: Re: BEB and sleep? -- June in Toronto Top of thread Archive
Posted by: Ann Doyle
03/07/2004, 11:32:14


Tylenol PM helps a little too, June. Ann Doyle



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Re: BEB and sleep?
Re: Re: BEB and sleep? -- Ann Doyle Top of thread Archive
Posted by: catherine pender
03/07/2004, 18:51:00


To be able to sleep through the night without medication is something I have not been able to to since Christmas. I posted a week or so ago and now that it has been brought up I realized that is probably my problem. Sleep deprivation. Today I put in drops and saran over the eyes with a eye mask for a 1 hour rest. It did help. I feel cranky most days but keep on trucking along. Seem this happens when my eyes are bad or is it the other way around. Well whatever it is, it is a pain in the butt!!!!!!
My mom has been here for a week and even though she is 74 and uses a walker, she has more energy than I do. (She still doesn't get BEB. Just get over it is her thoughts. She is leaving tomorrow.
I have the house to myself on Monday - Wednesday as my husband is out of town and I am doing nothing. Just relaxing and enjoying the quiet time for a change.

Ann- We don't have Tylenol PM here so I have to get my stash when I go to Flordia.

Catherine in Calgary looking forward to being alone




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Re: BEB and sleep?
Re: BEB and sleep? -- Beth Top of thread Archive
Posted by: Mary, upstate NY
03/07/2004, 20:57:55


Just a thought - Has anyone been tested (in a sleep clinic) for sleep apnea? I was amazed when I found out that I have it. I wear an apparatus - "C-Pap" every night, and it's helped tremendously, to get a good, sound night's sleep. I only have wierd things going on, lilke sleep apnea and BEB ! Mary



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Re: BEB and sleep?
Re: BEB and sleep? -- Beth Top of thread Archive
Posted by: Amy
03/08/2004, 04:43:47


Beth,
So glad you postd this message. I developed the blepharospasms and Meige's this fall and ever since then I have had the worst time sleeping. I don't seem to be able to sleep more than four or five hours at the time. It has nearly driven me nuts as then I am tired all day and the rest of my dystonia is worse.
I kept telling myself it was stress or depression or something. However, now that you mentioned it, the time the BTX worked, I slept well. I had not remembered that. It is interesting others have the sleeping problem also and I will be interested to see what kind of replies there are.
My luck it is a circular thing (isn't everything) and the eyes lead to lack of sleep which leads to stress which leads to lack of sleep which leads to worsening of the eyes!! I hate those situations.
I already take 8mg of zanaflex at night so I cannot take anything else. This used to knock me out before the blephs.
Still getting up at 3a.m.
LOL,
Amy



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