Re: question |
Insult or injury to the Basal Ganglia of the brain combined with loss of Dopamine due to aging is the recognized scenario for BEB. Hence the age bracket of 50-60 years of age at onset. Many have listed whiplash or other instances that may have brought on symptoms.
Doctors are not prone to treating you without insurance or the necessary money outlay. You may find some help by contacting Allergan (the makers of Botox A) and asking about their reimbursement policy.
Contact your State Insurance Commissioner's office and inquire about their lower cost insurance pools for people with no insurance.
Re: head trama
Boy, that's a good question....I have had two or three head trama incidents. When I was about 3 my mom said I had two black eyes from running into a doorway. When I was about 19 I broke the windshield of our VW with my head. Later when I was older my mentally ill mother boxed me in the nose with her fist. Medications, head trama, stressful situations....who knows what caused me to get this. Whatever did is important information to know so that others can have the chance to avoid getting this. As for me I already have it and need to find out how to deal with it the best I can. Knowing I am not alone is so wonderful. When I am stressed at work, I sometimes get on the BB and can find friends who are going through what I am. Thanks....
Coleen in Amish country where the weather is getting hot and humid. Summer is here!
Cliff in regard to your questions, I also have the blinking extra bad when chewing. That is really the worst time for me. I did have a head injury when I was small (Fell out of swing bumping my forehead & had a big knot for a while) I too had severe headaches & neck muscle spasms (according to the drs. was causing my headaches) but I do think it was the beb causing the headaches because since I've been getting the injections, I don't have the headaches as bad or as often. Doris John
Judy or Shirley ... can you recall .....
Hi Cliff, It seems to me that sometime back there was a man who posted fairly regulary who believed his dystonia was brought on by a head injury during a pickup accident. Can you recall this, Judy or Shirley?
Sally in North Idaho
Head injuries --- sylvia lew ( Jun 12, 08:46, 2001 )
Re: Judy or Shirley ... can you recall .....
Sally, your memory is better than mine on that one. I really don't remember who you are talking about.
I do feel that BEB and definitely Hemifacial Spasm could be brought on by an accident or trauma to the Basal Ganglia. That is one of the questions that was asked on the questionnaire. Any injury to face or head.
I know that I missed a step going down our stairs a short time before the onset of my symptoms. I landed on my elbows and rear-throwing my head forcefully back. (whiplash type injury) I could barely get out of bed the next day.
Sorry, Sally, that I can't remember that man that you are talking about. There was a young lady at last years conference in Kentucky that developed Blepharospasm as a direct result of an automobile accident that she was involved in that involved her upper cervical spine. She developed symptoms immediately.
Shirley in AR. where it will be in the mid 90's today and HUMID
I had a severe whiplash when I was 16 from a car accident. I was in physical therapy for 1 year and was told I wouldn't get any better. I then went with accupressure/chiropractic for a year and did improve. I developed beb when I was 26 and am now 32. I have just recently noticed that chewing, especially in the evenings when I'm already fatigued, makes my eyelid spasms alot worse. The spasm in my throat is getting worse as well so I really have to concentrate to swallow at the "right time" so I don't choke.
Re: question of head trauma
When I was 27 I received a blow to my face from an abusive husband which left me with a broken nose, 2 black eyes, and whiplash. The tip of my nose was numb for years and occasionally will still tingle and feel numb. FYI....that was the first and last time he had the chance to hit me...he was and still is a minister and is still nuts(my opinion)....which is sad for our daughter.
Re: Getting away from abuse
Good for you Delaine, for getting away from an abusive relationship. So many people don't have the strength or courage to do so. I'm very proud of you. I know that must have been a very difficult situation for you.
"Nuts" is probably right and it is sad for your daughter.
Shirley in AR.
Re: question of head trauma
I'm sorry you had to experience something so horrible but you are a very strong person to realize that you and your daughter deserved better. What a role model you are for her. I have never met you other than thru the bb but you seem to be such a kind and caring person that he truly must be nuts!