Re: Magic Powder or Sell?
Hi Dan,
I'm sure if there was a magic powder out there, most of us would be taking it by now. We all try different things and there will probably be some people that will privately e-mail you as they are desperate. The only way that I can personally see to make your post credible and not for personal gain would have been if you had not posted your e-mail address and just given the information and that it had helped you. End of story. Most people that can post on here can look up the information on the web if they are interested.It still looks like a sell to me. Shirley in AR. Just my opinion
Re: Magic Powder or Sell?
How can they look up the information if they don't know what to look up?
Many people here would not even know about botox or many of the different meds used to treat blepharospasm if they had not heard about it here first. If you buy from a source other than my friend who sold it to me, how could I possibly gain from it personally? That is why I suggested you plug OPC into a search engine. There are many different sources to buy from. I am just happy about the results I got and felt compelled to share so others might benefit as well.To answer a few of the questions I have been getting: DOSAGE- I started out pouring 2 capfuls into the prescribed amount of water, shaking it up and drinking it down 3 times a day. This is considered a loading dosage. COST- At that dosage, the cost is about $140.00/month. I now take about 1/3 the dosage, hence 1/3 the cost. CONTENTS- The contents are primarily grape seed extract, bilberry extract,and red wine extract. I tried grape seed extract in pill form some time ago because I heard about it on this bulletin board. It did nothing for me. Thanks, Dan
Re: OPC
well thanks, dan, for at least keeping us informed. i was the one who asked you to do this, if it's working for you, that's great . i must be pretty naive , i wasn't aware of any of the rules Shirley just outlined, nor have i ever thought anyone on this board was trying to sell something. i've been more than happy to read other's recommendations, such as the Moisture-eyes, lacrilube, etc. things that i have been completely unaware of.
Re: Just My Opinion
Hi Kathy,
I didn't outline any rules.
I'm very happy for people to share and recommend things that have worked for them or have made their life easier with dealing with Blepharospasm. That's what we are here for.This is the internet and there are people out there that would take advantage of desperate people seeking help for this or any other number of medical conditions. I AM NOT saying that Dan is one of these people. I voiced an opinion for which I am well known for. It is just my opinion and nothing more. Shirley in AR.
Re: Just My Opinion
okay, okay, i'm very grateful for a shepardess. as i said, i have been pretty naive for most of my life.
Re: OPC update
Dan I appreciate your update on how you are doing. I have tried dozens of supplements and formulas, some have not helped at all and some have helped a little. I think the Moisture Eye caps help me and the ingredients are good stuff that would be healthy for anyone. I also take Lutein and Bilberry and think they probably help. Hey, I'm open minded and I know what works for one may not work for another whether it is a magic potion or from the pharmacy prescription the doc wrote. Most of those didn't work for me either. I'm going to keep turning over every stone and trying anything that has worked for one single person if I can aford it. Thanks for sharing what is working for you. That is how I've learned the most about BEB, from those willing to share. Thanks for giving out the dosage you started and what you take now and for the ingredients. Delaine in TN who is not trying to sell conversion vans as a cure, just shared it because it has helped me.
Re: OPC More info,please
Can you tell me the ingredients and mgs for each.
Barbara in NY
Re: OPC More info,please
Sorry for the delay in responding.The ingredients per capful are: sugar 2g
grape seed extract 25mg
red wine extract 25mg
pine bark extract 25mg
bilberry extract 25mg
citrus extract bioflavonoids 25mg
potassium 93mg I am currently taking 6 capfuls per day
Re: OPC
After reading Dan's message. I decided to try using the OPC-3 because the last few Botox injections haven't been very effective. After about 3 weeks, I felt that my spasms had gotten less severe. It has been about 6 weeks since I started using the OPC-3 and I feel that considering that it's been almost 17 weeks since my last injections, the longest I've gone in over 2 years, I would definitely say that there has been an improvement in the symptoms of my blepharospasm. For the past 2 years, once it had been 10 to 12 weeks since my last Botox injections, my spasms were severe enough that they practically unbearable, but that isn't the case now. I haven't been taking or doing anything else different, so I think it must have something to do with the OPC-3. I plan to continue taking it because my eyes are at least as good as they've been after getting Botox injections. Thanks Dan, I appreciate you sharing this information with me.
Re: OPC
Hi Nancy,I would hope that you and Dan would contact the BEBRF and tell them what you are taking that is helping, so that they could be made aware of it, If they are not already. It does seem to be helping you and Dan and if I had found something that worked as well as the botox or better, then I would definitely want the foundation to be aware of it. I, myself, am taking Bilberry and grape seed extract and a number of other supplements. I can't say that what I am taking has really helped with my symptoms but everyone is different. We are all looking for an answer.
So share your information with the BEBRF. I'm glad that you are doing well.
Shirley in AR.
Re: OPC
After reading Dan's original message I ordered OPC3 off of the internet and tried it for one month with no change in my symptoms whatsoever. I guess what works for one person doesn't work for another but I don't regret giving it a shot. It can't hurt to try, especially when you are as desperate as most of us are.
Kelly in dallas
Re: OPC
Hi Shirley,I will contact the BRBEF but I want to wait until I've been on it for the full 3 months to see if the results improve from what they are at the present time. I still haven't felt the need to get any Botox injections, although I still have "bad eye days" every so often.
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