Re: BOTOX - to freeze or not to freeze& long threads
Hi Lyn,Allergan has not replied to me, yet. They may be carefully considering what they say, (something that I should do more often) as when I emailed them, I told them that the matter had come up a couple of times on the Blepharospasm bulletin board and I would be posting their response. If I haven't heard anything within a few days, I'll email them again. You are not the first one that has commented on this so it is being done here in the US, too.
How are your symptoms, now? Have you had some improvement? The threads do get long sometimes. I think that is what happened to a recent posting with Kathy and Shelley and Mindy and me. That particular thread got so long that it had used an entire page itself and then when Kathy replied to it, Mindy's response had a red "more" attached to it but you couldn't see anyone's response to her without opening up her post and then there they were.
So when we can, it is best to start a new thread. I'm just guessing that was the problem. It could have been something else, though.
Maybe Bob, our webmaster, will let us know. Shirley in AR.
Re: BOTOX - to freeze or not to freeze& long threads
A couple of years ago I called Allergan on the phone.
They were extremely friendly and helpful.
They answered all my questions and mailed me a packet
of information.
When I was using the mail away drug plan from my Insurance Company,
my Botox were delivered to my house frozn. I would take it frozen
to my doctor. I did it this way because there was no $-cost to me.
Mindy in NY
Re: BOTOX - to freeze or not to freeze
Hi Mindy,
That was the correct procedure in your instance. The botox should be frozen if it is mailed to you in the original vacuum dried frozen powder before it is reconstituted by your doctor.We (or I am) are questioning the practice of mixing the botox with the diluent and then freezing this reconstituted mixture in a syringe for later use. It says not to do this in the botox package information. But it apparently is being done as I have heard people mention this several times on this bb. I emailed them about it last week but they have not as yet responded to me. I doubt if they will give me the specifics on why it shouldn't be done or what actually happens to it, which is what I want to know. They will probably just say what is said in the information that I have already read. Surely Shirley in AR.
--modified by Shirley-Arkansas-USA at Sun, Jun 17, 2001, 16:07:26
Re: BOTOX - to freeze or not to freeze& long threads
Hi Shirley
I also emailed the contact you gave me for Botox in Australia. I received an auto-reply saying he was out of the office until 28 June but is checking his emails and will get back to me. Will let you know what I hear when I hear.It has been 3 1/2 days since my injections and I can't say that anything much is happening yet. I think it will take a few more days. I shall have to do a fair bit of driving tomorrow so that will be the first real test to see if it is starting to kick in.
Lyn
Re: BOTOX - to freeze or not to freeze
Hi Lyn,
Sometimes it takes 7 to 14 days to get the full effect of the botox so you're still early into this. In the past, how soon could you tell that the botox was working? How many units did he give you this time? I can't remember if you told us or not. CRS thing.Shirley in AR.
--modified by Shirley-Arkansas-USA at Sun, Jun 17, 2001, 22:06:10
Re: BOTOX - to freeze or not to freeze
Hi ShirleyI think at the beginning it took at least a week and probably a bit longer until I found I was no longer thinking about it. When I was managing to get injections so that I no longer regressed and kept getting topped up so to speak it was not so noticeable. This time I was back to severe symptoms so I expect it may well be a week or two before it kicks in completely. I told him I was having 75 units so I assume (hope) this is what he would have given me. I shall be driving tomorrow - that will tell me something.
Lyn
Re: BOTOX - to freeze or not to freeze
Lyn & everyone:Botox should never be refrozen. It needs to be treated very gently as it is reconstituted (rolling the bottle). There have been times when a session of shots produces absolutely nothing in the way of relief. In these cases, something has happened either in shipping or storage of the Botox to undermine the potency. If you've been one of the unlucky persons that this has happened to (I have) and you need to run back to the doctor to have it done all over again in a couple of weeks you'll understand that you don't want this to happen to you. Judy
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