myectomy


Posted by Joann Humphrey , Jun 19,2001,17:51   Archive
This is the 1st time I've been on the bulletin board. Please tell me how long it takes to recover from a myectomy? I plan to attend the conference in Scottsdale in Aug. & am looking forward to meeting many of you & learning more about blepharospasm.



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Re: myectomy

Re : myectomy --- Joann Humphrey
Posted by Shirley-Arkansas-USA , Jun 19,2001,18:25 Top of Thread Archive
Hi Joann, Welcome to our little world. I'm glad that you found your way here.
I'm sure that others will post to you also. Several people that post on this bulletin board have had myectomies.
You'll get different answers on this. Dr. Anderson, at last years conference made some mention of people going back to work within a week or two. I think that it probably depends on what you have done. I'm about 2 months post op and still have side-effects from the surgery. Still some swelling-especially in the mornings and excessive tearing that tends to blur my vision off and on. I'm slowly and gradually improving. I still haven't trusted myself to drive.
Are you working, now? Honestly, it would depend on your job, if you are working and what you have done and how quickly you heal. I was told that I could expect continued improvement for 6 months. It can takes months for all the swelling to go away.

I'm hoping that some of the others that have had surgery will respond to you, also. How about it, gang?

Shirley in AR.




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Re: Welcome

Re : myectomy --- Joann Humphrey
Posted by Sally - in - Idaho , Jun 19,2001,19:47 Top of Thread Archive
Hi Joanne ... I have not had surgery, but extend to you my welcome anyway! This is a good place to come with your questions, worries, suggestions and also ... a sense of humor!!

Sally in North Idaho




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Re: myectomy

Re : myectomy --- Joann Humphrey
Posted by MaryNY (Mary,MaryNY), Jun 19,2001,20:40 Top of Thread Archive
Joann-welcome to the very best information site on the web for BEB! I had a limited myectomy 2 yrs. ago (Dr. Anderson) and my recovery happened gradually over several weeks. I only had some pretty wild colored bruising (not as much as Shirley-did you see the pictures she posted?) I used the cream that he gave me for overnite for about 2 weeks, and never used the pain reliever prescribed. I did have to go back to Botox shots, but they work longer (8wks,) and I get a smaller dose. No apraxia, no tearing, and I would not hesitate to recommend the operation. It's very expensive-be sure your insurance will cover it first! Mary



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Re: myectomy

Re : myectomy --- Joann Humphrey
Posted by Virginia , Jun 19,2001,22:34 Top of Thread Archive
I had a limited upper eyelid myectomy last November. I was told that recovery time would be approximately 6 months to a year. I had blurred vision for a while, but didn't curtail my activities beyond two weeks. I was back driving after 3 weeks. The bruising and swelling was minimal (I've looked worse after Botox injections).

I do still need Botox in the lower lids and forehead. I've had them every three months since the surgery. That's not quite often enough, but I've made it okay so far (it's a two day trip to my doctor and I was trying to stretch it out). I know I have benefitted from the surgery.

I'll be in Scottsdale, too. I went to the convention last year just before my surgery to help me make up my mind about it. Hope to see you there.

Virginia in AL




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