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STILL KICKING JUST NOT AS HIGH
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Posted by: Steve-In-Tennessee
03/04/2004, 10:34:25


HELLO, I HAVE NOT POSTED IN SEVERAL MONTHS, AND JUST WANTED TO LET A FEW OF YOU GUY'S THAT I HAVE MET KNOW WHAT HAS BEEN GOING ON IN MY LIFE. I STILL HAVE A GREAT DEAL OF TROUBLE WITH MY MEIGE AND OR LARYENGEAL DYSTONIA WITH STRIDOR. I HAVE A TOUGH TIME SPEAKING AND BREATHING, I AM STILL TAKING THE SAME DRUGS AS I HAVE BEEN FOR MONTHS NOW AND NOT MUCH IMPROVEMENT. I HAVE AN APPOINTMENT WITH THE VANDERBILT VOICE CENTER TO GET A SECOND OPINION ON GETTING BOTOX SHOTS IN MY VOCAL CORDS THE SOON. BOTOX NEVER WORKED FOR MY BEBRF. I WILL DISCUSS WITH THEM TO SEE IF THERE IS ANY THERAPY THAT THEY FEEL MIGHT HELP. JENNIFER AND I HOPE THAT EVERYONE IS DOING AS WELL AS THEY CAN BE DOING IN THERE STRUGGLE WITH DYSTONIA. JENIFER SAYS HELLO TO ALL. SORRY TO BE SO LONG. STEVE



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Re: STILL KICKING JUST NOT AS HIGH
Re: STILL KICKING JUST NOT AS HIGH -- Steve-In-Tennessee Top of thread Archive
Posted by: Cynthia
03/04/2004, 11:21:12


Thanks for the update, Steve. It goes without saying that we are sorry for the difficulties of these disorders and will pray with you that your trip to Vanderbilt results in more improvement and comfort for you. You don't sound like you have given up ... hang in there! Let us know how the Vanderbilt trip works out.
Cynthia in IL



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Re: STILL KICKING JUST NOT AS HIGH
Re: Re: STILL KICKING JUST NOT AS HIGH -- Cynthia Top of thread Archive
Posted by: Steve-In-Tennessee
03/04/2004, 15:07:29


THANK YOU VERY MUCH FOR YOUR PRAYERS AND YOUR HOPE THAT I FIND SOMETHING THAT WILL MAKE MY CONDITION BETTER. I FEEL THE SAME ABOUT YOU AND WILL ALSO KEEP YOU IN MY PRAYERS. HOPE TO GET TO MEET YOU IN ALABAMA THIS YEAR. STEVE



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Re: STILL KICKING JUST NOT AS HIGH
Re: STILL KICKING JUST NOT AS HIGH -- Steve-In-Tennessee Top of thread Archive
Posted by: Raymond Fudge
03/04/2004, 11:24:43


One thing I learned a long time ago, when you have something you feel needs saying and you have a willing and sympothetic audience, NEVER APOLIGIZE for being "long winded".

I hope all goes well with you. Raymond in Alabama, right next door to you, so to speak.




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Re: STILL KICKING JUST NOT AS HIGH
Re: Re: STILL KICKING JUST NOT AS HIGH -- Raymond Fudge Top of thread Archive
Posted by: Steve-In-Tennessee
03/04/2004, 15:10:27


ANOTHER SOUTHERN GENTLEMAN AND LIVING IN ALABAMA. HOPE YOU CAN COME TO THE CONFERENCE THIS YEAR IN BIRMINGHAM. I WOULD LIKETO MEET YOU. THANKS FOR YOUR KIND WORDS. STEVE



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Re: STILL KICKING JUST NOT AS HIGH
Re: STILL KICKING JUST NOT AS HIGH -- Steve-In-Tennessee Top of thread Archive
Posted by: Joanne Matuzas
03/04/2004, 12:48:25


Steve, thanks for the update re your dystonia and never stop
seeking an answer for relief. As you know from our conversation at the conference, I also struggle with the
irregular breathing and difficulty speaking together with a
few others who post on this BB. Continued experimentation
and sharing with each other on this BB is a great help for
me especially when I get frustrated and discouraged. Hi to Jennifer. Joanne M. San Diego, CA



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Re: STILL KICKING JUST NOT AS HIGH
Re: Re: STILL KICKING JUST NOT AS HIGH -- Joanne Matuzas Top of thread Archive
Posted by: Steve-In-Tennessee
03/04/2004, 15:04:55


THANKS TO ALL FOR YOUR RESPONCE TO MY UPDATE I HOPE TO SEE YOU IN ALABAMA THIS YEAR. I WILL TELL JENNIFER HELLO FOR YOU, GOT TO GO. HOPE TO SEE YOU IN ALABAMA IN AUGUST. STEVE



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Re: STILL KICKING JUST NOT AS HIGH
Re: STILL KICKING JUST NOT AS HIGH -- Steve-In-Tennessee Top of thread Archive
Posted by: June in Toronto
03/04/2004, 15:17:38


We've never met Steve but I feel I know you and Jennifer from your posts. I do pray that your appointment with the Vanderbilt voice center will bring about some relief for you. Best wishes

June in Torotno (Canada)




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Re: STILL KICKING JUST NOT AS HIGH
Re: Re: STILL KICKING JUST NOT AS HIGH -- June in Toronto Top of thread Archive
Posted by: Steve-In-Tennessee
03/05/2004, 10:51:34


THANKS FOR THE WELL WISHES AND THE PRAYERS, I ALSO HOPE THAT THE VISIT WILL HELP ME. THANKS FOR YOUR CONCERN. STEVE



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Re: STILL KICKING JUST NOT AS HIGH
Re: STILL KICKING JUST NOT AS HIGH -- Steve-In-Tennessee Top of thread Archive
Posted by: APhair
03/04/2004, 15:22:12


Steve, Jan and I have been away on vacation in Aruba and then Vegas so we haven't posted in awhile. Sorry to hear that you are still having the problems with the dystonia particularly as it affects your breathing and talking. I know how this has been a problem for you in the past. We will keep you in our prayers. Tell Jennifer that we said hello and hope to see you in Alabama. Don't forget, if you ever want to come to New England, we would love to have you stay with us for awhile. God Bless and keep smiling. Perhaps we need to get you and Joanne together more often so you don't feel alone with your problem. I can still picture the two of you that last day after the convention was over. I think that was the first time that you heard someone going through the same problem you were. Talk to you later. You have my EMail and phone if you need to talk to someone. I am always available...Alan



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Re: STILL KICKING JUST NOT AS HIGH
Re: Re: STILL KICKING JUST NOT AS HIGH -- APhair Top of thread Archive
Posted by: Steve-In-Tennessee
03/05/2004, 11:03:41


HOW WAS ARUBA? DID YOU OR JAN WIN BIG BUCKS IN VEGAS?
JENNIFER & I LOVE LAS VEGAS & WOULD LIKE TO GO BACK, MAYBE NEXT YEAR. WHEN WE BOTH LOVE TO GAMBLE IT CAN GET VERY EXPENSIVE QUICK. UNLESS SOMETHING HAPPENS WE WILL SEE YOU YALL IN ALABAMA THIS YEAR. TELL JAN THAT JENNIFER AND I SAID HELLO, AND HELLO TO YOU ALSO. THANKS FOR YOUR PRAYERS. STEVE & JENNIFER



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Re: STILL KICKING JUST NOT AS HIGH
Re: Re: STILL KICKING JUST NOT AS HIGH -- Steve-In-Tennessee Top of thread Archive
Posted by: APhair
03/05/2004, 15:52:36


Aruba was great as usual although the Casino's there fon't particularly like me. As for Vegas, it was a pretty profitable trip. I hit one slot machine for $18,000 and a couple other jackpots. We put some back obviously but we got to eat like kings and stayed for a week for free at Caesors and the Venetian so it was fun. They even gave us money back when we left with the points that we accumulated.

I actually have been on a wild winning streak. About three weeks ago I won $25,000 on a 25 cent slot machine at the Mohegan Sun Casino in Connecticut and the week before that, I won $20,000 on one at Foxwoods in Connecticut. I am really not a big gambler but I am just lucky. I usually only play slots adn stay away from the tables as I have no luck there. I wish my wife had the same luck, but she never wins.




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Re: STILL KICKING JUST NOT AS HIGH
Re: Re: STILL KICKING JUST NOT AS HIGH -- APhair Top of thread Archive
Posted by: June in Toronto
03/06/2004, 17:48:50


Way to go Alan - winning at the casinos - that's great. Glad you had such a great time and staying at The Venetian - that's a grand place for sure.

June in Toronto, Canada




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Re: STILL KICKING JUST NOT AS HIGH
Re: Re: STILL KICKING JUST NOT AS HIGH -- APhair Top of thread Archive
Posted by: Steve-In-Tennessee
03/08/2004, 14:59:51


IT SEEMS THAT I MAY NEED TO HANG OUT CLOSE TO YOU MAYBE SOME OF THAT LUCK WILL RUB OFF. JENNIFER & I WILL BE GOING TO TUNICA, MISS IN THE NEXT 2 TO 3 WEEKS TO MAKE OUR DONATION. OF COURSE WE WOULD LIKE TO WIN A BUNCH AND I LUCK IS WITH US WE WILL. GLAD YOU GUY'S HAD A GREAT TRIP SOUNDS LIKE A LOT OF FUN. GOT TO GET BACK TO WORK. SEE YA SOON. STEVE & JENNIFER



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Re: STILL KICKING JUST NOT AS HIGH
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Posted by: Virginia in AL
03/04/2004, 17:55:19


Hi to you and Jennifer. Thanks for the update. Since I, too, share some of your problems, I watch for updates on your condition and treatment. Do keep us informed. Planning for the conference is in full swing and I'm looking forward to seeing you two (again) and as many others as can come to Birmingham in August.

Virginia in AL, where it's looking a whole lot like spring. My daffodils are all in bloom and my star magnolia is gorgeous. I'm loving the warm temps, but the rainy weather is the pits.




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Re: STILL KICKING JUST NOT AS HIGH
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Posted by: Steve-In-Tennessee
03/05/2004, 11:08:15


THANKS FOR THE REPLY TO MY POST. I HOPE THAT YOU ARE DOING WELL. I HOPE THAT THE VOICE CENTER WILL BE ABLE TO HELP ME A BIT, A LITTLE IMPROVEMENT WOULD BE WONDERFUL. HELLO FROM JENNIFER AND ME. SEE YOU IN ALABAMA LOOKING FORWARD TO SEEING EVERYONE. THANKS FOR THE WELL WISHES AND THE SAME GOES TO YOU. TAKE CARE. STEVE & JENNIFER



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Re: STILL KICKING JUST NOT AS HIGH
Re: STILL KICKING JUST NOT AS HIGH -- Steve-In-Tennessee Top of thread Archive
Posted by: Claire from Canada
03/04/2004, 19:58:59


Hi Steve,

Please say hello to Jennifer and keep us posted. I too have some breathing and speaking trouble, so I really feel for you. Hopefully, we will see each other again, in Alabama; I hope to be able to make it. If you recall, my husband Michel and I sat with you at the dinner in Philly.

Can you tell us when your appointment is so that we can think of you that day and send you some positive vibes?

Good luck and take care. (You can go on and on and on; I'm long-winded myself often, so I really appreciate details!! And it's helpful for everyone.)

Claire from Canada




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Re: STILL KICKING JUST NOT AS HIGH
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Posted by: Steve-In-Tennessee
03/05/2004, 11:45:10


I WILL TELL JENNIFER THAT YOU SAID HELLO, AND YES WE DO REMEMBER YOU GUY'S. MY APPT. IS 3/29/04 @ 9:50AM AND WOULD APPRECIATE YALL SENDING ALL VIBES YOU CAN. WE ARE PLANNING TO BE IN ALABAMA UNLESS SOMETHING HAPPENS IT IS JUST A 4 HOUR DRIVE FOR US. I DO HOPE YOU GUY'S WILL BE ABLE TO MAKE THE TRIP. TAKE CARE OF YOU'RE SELF, AND TELL MICHEL WE SAID HELLO. STEVE & JENNIFER



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