What is a "Good Eye Day" to You?


Posted by sally - in - idaho (Sally - in - Idaho,sally - in - idaho), Jun 21,2001,14:18   Archive
Shirley's comment in a posting below that she and Virginia have changed their criteria for a "good eye day" made me wonder what constitutes such for each of us.

I consider it a "Good Eye Day" when ...

My eyes stay open willingly more than they are closed

Both eyes open and work together

There is no blurriness

Light is tolerable, or at least not extremely painful

There is no headache in my temple

Even when only a few of the above are true of a particular day, that's cause to feel optimistic!

Sally in North Idaho, having a so-so eye day




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Re: What is a "Good Eye Day" to You?

Re : What is a "Good Eye Day" to You? --- sally - in - idaho
Posted by lunakitty , Jun 21,2001,16:28 Top of Thread Archive
At this point a "good eye day" to me is:

My eyes don't hurt, even when I read

I don't feel like I have an object somewhere between the size of a pea and a golf ball stuck behind my right eye trying to get out

Margarita, having a good eye day today and very grateful




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Re: What is a "Good Eye Day" to You?

Re : What is a "Good Eye Day" to You? --- sally - in - idaho
Posted by June in Toronto (June Floyd,June in Toronto), Jun 21,2001,16:48 Top of Thread Archive
A good eye day to me is also no blurriness, headache or pain behind the eyeballs and one where the meige isn't acting up. I love a dull day in the summer and being able to go around without super-dark glasses. A stupendous day would be one where I could read a book again - but that hasn't happened in 6 years, so I'm not holding my breath, and I enjoy the short articles that I can read! A terrible day is one when the botox is wearing off and I'm squinty eyed and they spasm a lot also just after the botox injections whenI feel like the eyes have barbed wire holding them open - oh the joys of this condition.

June in Toronto where the day today is `perfect' - dull and cooler.




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Re: What is a "Good Eye Day" to You?

Re : What is a "Good Eye Day" to You? --- sally - in - idaho
Posted by Shirley-Arkansas-USA , Jun 21,2001,22:01 Top of Thread Archive
Good question for us Sally.

In the beginning when I developed BEB, a good eye day was if I was almost symptom free that day.

Then it quickly changed to when I could see to walk down my hallway without tripping over the dog.

Then we progressed to a good eye day being that I didn't stay in bed all day with a cold rag over my eyes.

Next was when I could manage to go shopping with my husband without holding on to his arm or pants pocket while he would tell me of the impending curbs and steps.

A good eye day was when I was able to spend intermittent time on the computer at this bb and actually see what I was typing and work on preparing supper in steps throughout the day so that when my hubby came home we could have a home cooked meal. My eyes could/would still be closed down at this time of day but I would just have to take something out of the oven and manage to blink my way over to the table. I would still at times leave the table in tears and make my way upstairs to bed to hide once again as my eyes wouldn't stay open to eat.

Before my surgery, a good eye day was having 2-3 hours several times a day with my eyes open as a result of taking 50mg of Benadryl, three to four times a day, .5mg of Klonopin three times a day and 10mg of Adderall, three times a day. This allowed me to be semi-functional at intervals through the day but at what price? And many days this didn't work-they were bad eye days.

Now, a good eye day is not having the excessive tearing which blurs my vision and minimal swelling and my eyes staying open for moderate segments of the day with 25mg of Benadryl 2-3 times a day and 5mg of Adderal once a day and .25mg of Klonopin twice a day.

What I consider a good eye day now would have been considered a bad eye day in the beginning. It is ever changing and we do have to allow ourselves to be flexible.

Shirley in AR.




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Increasing the odds

Re : What is a "Good Eye Day" to You? --- sally - in - idaho
Posted by Virginia , Jun 22,2001,22:39 Top of Thread Archive
At this point I have mostly good eye days - the OMD (or whatever) is usually more of a problem. As Sally said, it's sometimes a matter of definition (and redefinition), but also of being proactive. I am more aware of what I need to do - and not do - to increase the odds of having a good eye day. I have to have botox, take clonazepam, use ointment nightly, get plenty of shut-eye with a sleep mask, send my husband to the grocery store, wear sunglasses (sometimes two pairs) even indoors, use drops or gel during the days when I am outside in the sun (most days), stay out of the wind, and probably other things that I do unconsiously out of habit now. I can't guarantee that these things will always work, but I know that if I don't do them, I'm assured that it won't be a good eye day. I know that I can't go back to pre-BEB routines and expect my eyes to cooperate, but these new routines have become part of my life now and I think I have better days because of them.

Virginia in AL (Of course, the surgery has made a difference, too.)




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Re: Increasing the odds

Re : Increasing the odds --- Virginia
Posted by penny , Jun 23,2001,08:49 Top of Thread Archive
Virginia, after using the ointment at night do you have a problem with blurriness during the day and if not, how do you clean the ointment out of your eyes? My biggest problem now is not the double vision, etc. etc, I know that will go away, its the blurriness during the day that I feel is caused by ointment at night. My dr. suggested getting dacriose to irrigate my eye but so far I've been unable to find it. Right now things are ok with the computer, not clear but I can read. However I can't read printing in book etc. Just takes to long to figure out what is there, so frustrating. This is only my second set of injections, my first made me just about perfect from minute one. thanks, penny in oklahoma city



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Re: Increasing the odds

Re : Re: Increasing the odds --- penny
Posted by Virginia , Jun 23,2001,15:18 Top of Thread Archive
I don't have a problem with blurriness during the day. Sometimes I will use drops when I get up if it seems a little blurry, but usually it is no problem. My husband brings me a warm washcloth in the mornings before I get up and I lie with it over my eyes for a while - I don't know that it makes a difference, though, because he's only done it since my surgery and I've been using ointment for years. You might try cutting back a little on the amount that you use or using one with less petroleum jelly in it.

I did have a problem with blurriness right after my operation. It was caused by my right eye drying out overnight because it didn't close completely while I slept. That's when I started using a sleep mask, which I still use most of the time, even though I could probably do without it now.

Virginia in AL




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