Another study - U of Utah


Posted by Cynthia , Jun 27,2001,18:23   Archive
I recently received a letter describing another study being done at the Moran Eye Center, U of Utah. The letter says they will be investigating light sensitivity in individuals with BEB. It requires a 15-30 minute visit to the center. It's pretty far for me to go but I'm wondering if any of you were taking part or thinking about it.
Cynthia



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Re: Another study - U of Utah

Re : Another study - U of Utah --- Cynthia
Posted by Sally - in - Idaho , Jun 27,2001,21:22 Top of Thread Archive
Hi Cynthia ... I was interested in your posting about the U. of Utah study as I am extremely sensitive to light. I could possibly get there and would appreciate any information you can send me. I've left my e-mail address above.

Thanks.

Sally in North Idaho




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Re: Another study - U of Utah

Re : Another study - U of Utah --- Cynthia
Posted by Joann Humphrey , Jun 27,2001,22:27 Top of Thread Archive
I'm interested in all studies going. Hopefully some more permanent help can be found & I'll participate if it seems right. I have info from Bethesda, MD re: Mexiletene. I plan to go to the conference before making any decisions re: research or surgery.



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