Re: The View tv show:Botox next Tuesday
I walked into the living room a couple of days ago to turn off the TV which my husband had gone away and left on ... and they were talking about Botox on "The View." The gist of it was that it was cheaper and easier than a face lift. The one gal didn't get it on her forehead because she wears bangs. I turned it off after that.Would that all we BEBers had to worry about is facial wrinkles!! I also read this week where the governor of some state (I think it was Arizona) had just had a myectomy to tighten up sagging eye muscles. When I first began reading the article, I thought perhaps she was "one of us." Nope; just vanity. Sally in North Idaho
Re: The View tv show:Botox next Tuesday/ sally
sally, i'd be interested to know more about this light sensitivity study on those with BEB . i never received any info on it. did all of you? all i know is that my eyes are becoming more light sensitive, especially at this time of year.
Re: Light sensitivity study
Hi Kathy,
Maybe Sally will tell you some more about it. All I know is that it is being done by the Moran Eye Center in Salt Lake City, Utah (where we get our FL-41 lenses from). I think that you have to be able to go there to participate and they can't provide any transportation funds. I believe that Cynthia may know something about it as they sent her some information on it. Was that you, Cynthia? or have I led people astray again?
I did not receive any information on the study.Shirley in AR.
Re: Light sensitivity study
thanks. no i can't go there but wanted to know more about it. i am so dependent on my FL41's i can't believe it. it depresses me at times because it's always dawn or dusk with them on and i can't see colors as they really are.
Re: Light sensitivity study
Kathy - that's when a little denial is a good thing. I just pretend the colors really are the way I see them and don't worry about it. Of course, it doesn't matter quite as much to me as it might to someone who paints.
Re: Light sensitivity study
I've really gotten used to my rosy tint and like the colors that I see, especially the reds. They may not be true but isn't it about how we perceive them? Do we all see colors the same, anyway?Shirley in AR.
Re: Light sensitivity study
I had hoped to combine a trip to Salt Lake City with a visit to Chuck Swallow to decided which tint would be best for new glasses and, at the same time, participate in the light study. However, my appointment with the ophthalmologist is not until August 17 so I wouldn't have my new prescription yet.I am ready to try looking at the world through rose-colored glasses! Sally in North Idaho
Re: Light sensitivity study
sally, please don't get me wrong, they really do help!! i must be or know i am more aware of color than most people.
Re: Light sensitivity study
i know. i try to wear my clear glasses whenever possible and HAVE to when i paint, but was just wondering if anyone else felt a little disconcerted about the constant color and light dimming. i am really dependent on mine.(FL41's) and also notice my mood brightens when i am able to wear my clear ones.
Re: Light sensitivity study
My last eye glass prescription that I got, I didn't have them tinted with the FL-41 coating but with just an anti-glare coating. Every time I try to wear them, my squinting sets in and lighting bothers me more so I wind up not wearing them very long. I guess with me wearing the FL-41 tint most of the time, I really don't notice the change in colors to the degree that you do. If anything, I like the change in color or it seems more pleasing to me. The clear lenses do not make my mood any brighter-it probably worsens it as I am squinting when I have them on.
I wear the lightest tint most of the time. If I am going into a store that is very brightly lit, I will wear my darkest tint.(They are my shopping glasses).Shirley in AR.
Re: Light sensitivity study
I did get a letter about it and posted on June 27. I sent Sally more detailed info which she has shared below. Be glad to answer any other questions if I can. I am not going to participate because it requires a short examination in Utah, which is too far from IL right now - :-))
Cynthia in IL
--modified by Cynthia at Sat, Jul 21, 2001, 10:15:23 --modified by Cynthia at Sat, Jul 21, 2001, 10:16:50
Re: The View tv show:Botox next Tuesday/ sally
Kathy ... My information came from Cynthia, who had received a letter informing her about it. I called the number she gave me and had a long conversation with the person in charge of the study.You have to go to Salt Lake City for it and they plan to have the "patients" (can't think of the word I want right now) finished with the experiment by the end of July. No reimbursement, etc. It only takes about 45 minutes to do the procedure. What they will do is expose you to continually brighter lights of different kinds until you say it is getting painful. Then they will give you two (I believe) different lenses and repeat the same thing. They will also do this with "normal" persons and then compare their results. I still have the phone number if you want it. I can't work it out to get there on such short notice, but really wish that I could. Light is probably my worst problem and it gets more painful as time goes on. Sally in North Idaho
Re: The View tv show:Botox next Tuesday/ sally
sally, that is the reason why i have 2 pairs of these FL41's , both the lighter tint that i am wearing now to use the computer and darker ones for outside. bright lights did cause me pain and set off intense spasms. i certainly don't need that study. i know you will enjoy yours. i mean the new lenses.
FL41
Hi Kathy,
I just got my second pair of FL41 (new Rx) by calling, sending my new clear lenses (for a super cool new kind of frame), and getting them sent back to me. I had no idea there are a lighter and darker tint of FL41 - how would I know which one I have?
jj
Re: FL41
They might be able to tell you if you called and asked. I didn't realize they came in different degrees of tint either when I ordered my first ones, but they were too light for outdoors and so I got a darker pair later. Last year at the conference someone had sample lenses of three variations and I matched up my first pair to one of those and that's the only way I know what mine are. I have a pair tinted at 55% and 85%. I mostly use the 85%, but do use the others in less bright situations (watching TV, for instance).Virginia in AL
Re: FL41
Hi Virginia in AL,Wow, I had no idea ... Ill have to call and find out - but based on what you say here, I'd guess mine are more like what you use for TV. I use them indoors or at night. My dark glasses for outdoors are glacier glasses (with side shields and area across bridge filled in to keep out more air). Those are tinted gray at 95%. I JUST reordered a new pair when my last one (the frame) broke after a few years of wear and tear. Wish I'd realized the FL41 could be made darker... jj in LA (that's Los Angeles, not state of LA)
Re: FL41
i wear my lighter ones for the computer, tv and it seems most of the time. my dark ones are for outside or after the light sensitivity following injections. i look forward to wearing my clear ones when i can as everything is much brighter to me.
Re: FL41
Hi Jaelline,
Here is a link to some pictures that I took of my two pair of FL-41 tinted glasses. An untinted pair and the lightest and darkest tint. The pictures are a little dark but will give you some kind of idea about them. I didn't know about the degrees of tints when I ordered my first pair either.Hope this helps a little.
http://www.blepharospasm.org/forums/beb/archive/10819.html#10819
Shirley in AR. --modified by Shirley-Arkansas-USA at Sun, Aug 05, 2001, 22:14:08 --modified by Shirley-Arkansas-USA at Sun, Aug 05, 2001, 22:15:42 --modified by Shirley-Arkansas-USA at Sun, Aug 05, 2001, 22:20:01
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