PD & blepharospasm


Posted by Bill Stewart , Jul 29,2001,01:43   Archive
I was diagnosed in May of this year with Parkinsons Disease & blepharospasm, I would like to hear from anyone who has had a similar diagnosis to talk about treatment. I am currently on Mirapexin which, my consultant advised will relieve the blepharospasm.
Bill



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Re: PD & blepharospasm

Re : PD & blepharospasm --- Bill Stewart
Posted by Delaine Inman , Jul 30,2001,23:12 Top of Thread Archive
So sorry you have both, my heart goes out to you. I don't know anyone else who has both. PD runs in my family. My mom's sister has it and does very well on the medication she is taking. She carries a cane just for balance and with BEB some of us have discussed carrying one for safety and balance. My grandmother's sister on my mom's side of the family also had PD. I have a first cousin who has vocal dystonia and has been getting Botox for about 13 years now, but it is less effective each time she gets it now. I don't know if they will try the Myobloc or not on her vocal cords.



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Re: PD & blepharospasm

Re : Re: PD & blepharospasm --- Delaine Inman
Posted by Christel-California , Jul 31,2001,09:53 Top of Thread Archive
Bill, I feel for you also having to battle both conditions, as though one isn't enough. I do believe there is another person on our BB who also has PD in addition to the blephs, just can't think at the moment who it is. She will doubtlessly come forward and compare notes with you

Delaine, I didn't realize that PD was a genetic disorder, as it seems to be since it runs in your family. I don't know my paternal family and my maternal family died rather young, so don't really know what genes are lurking in my background.

Christel in Ca.




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Re: PD & blepharospasm/genetics

Re : Re: PD & blepharospasm --- Christel-California
Posted by Delaine Inman , Jul 31,2001,10:13 Top of Thread Archive
Dr. Mawn said at our last support group that there is a 33% genetic chance with BEB. I don't know what it is for PD, but it is definitely genetically predisposed.



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Re: PD & blepharospasm/genetics

Re : Re: PD & blepharospasm/genetics --- Delaine Inman
Posted by Kelly Saffell , Jul 31,2001,13:54 Top of Thread Archive
Thanks for posting that. The literature I have states there is a 5-10% genetic link but it is much greater in my family. My grandmother and 2 siblings have/had beb, 1 had sd, and numerous family members have/had essential tremors. It's too early to know if my grandmother's kids have beb because they are all in their 50s so there is still a chance. Of all the grandkids I'm the only one with it so young.

PS-happy belated birthday!




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