Wonderful conference


Posted by Joann Humphrey , Aug 20,2001,16:35   Archive
Enjoyed the conference immencely. Glad to meet several of the
BB friends. I now have more confidence in my neurologist as he's doing what the panel of Drs recommends (Botox & clonazapam)
Think I'll order the rose colored glasses soon for the light sensitivity. Didn't get home till midnight last night, but happy to be here.
Joann in Ark. Hoping more of you will join us on this BB.



Recommend Current pageAuthor Profile
Replies to this message


Re: Wonderful conference

Re : Wonderful conference --- Joann Humphrey
Posted by Kelly Saffell , Aug 20,2001,18:29 Top of Thread Archive
I'm glad to hear that is what is recommended. That is what I am doing as well. I recently saw a neuro at the medical school and he told me I should get off the clonazapam because it is addicting and I am too young (32) to be on a med like that. I only take .5mg/day as it is. Any more makes me tired and the kids are only 3 and 6 so resting is out of the question. I am down to half tablet but I am feeling horrible so I am going to go back up to 1 tablet like my neuro suggested. If being "addicted" is what I have to do to "survive" then that is what I am going to do. I hope to attend next year's conference in Houston since I live in Dallas. Can't wait to hear more about it!

Kelly in Dallas




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Kelly addictive meds

Re : Re: Wonderful conference --- Kelly Saffell
Posted by Mindy , Aug 21,2001,21:27 Top of Thread Archive
Hi Kelly,
Meds. such as these taken for a cronic disorder if taken as prescribed
is not likely to become addictive. If a person has an addictive personality, and increases for the "high" that's a different story.
You will be able to tell if you need an extra and it helps, means you needed it. As time goes on, if your spasms are more under control, and you fall asleep no matter where you are, that means it's just putting you to sleep and can cut back. Always cut back slowly, cutting back too quickly can cause side effects.
Mindy in NY



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Kelly addictive meds

Re : Re: Kelly addictive meds --- Mindy
Posted by Kelly Saffell , Aug 22,2001,09:05 Top of Thread Archive
Thanks Mindy. My botox didn't work well this time and I'm not feeling too hot. I have decided to take my tablet and spread it out, so to speak. I am going to try 1/4 am, 1/4 afternoon, and 1/2 evening and see if I can tell a difference. I have been on klonopin for a year and a half and haven't increased so I guess I'll continue as is because I truly think it is helping.



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Wonderful conference

Re : Re: Wonderful conference --- Kelly Saffell
Posted by Susan Hasselle , Aug 22,2001,09:30 Top of Thread Archive
Kelly, I am a psychiatric nurse practitioner, my husband is a psychiatrist, we as well as all the doctors that regularly participate in the BEBRF conferences would agree with Mindy. . . good advice.

Susan




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Wonderful conference

Re : Re: Wonderful conference --- Susan Hasselle
Posted by Joanne Matuzas , Aug 22,2001,13:22 Top of Thread Archive
Thanks for the post, Susan. I value your opinion and also wanted to
thank you for our chat in the lobby on Sun. Enjoyed seeing you and meeting your husband. Joanne M. San Diego, CA



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Wonderful conference

Re : Re: Wonderful conference --- Susan Hasselle
Posted by Kelly Saffell , Aug 22,2001,16:07 Top of Thread Archive
I really appreciate your input. I'm going to stick to the klonopin!

Thanks Kelly




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile