Conference


Posted by Nilda Rendino , Aug 21,2001,14:41   Archive
Hi There,
It was so good to put names with faces at the conference. I thought it was wonderful. For those of you who were in Kentucky last year, you know this hotel was great. The food was delicious and they accommodated us for the most part with the lighting. The heat outside no one could do anything about.
The other highlight for me was being able to collect $20,000 for research from the participants. As the result of a challenge by a participant and his wife, (he'd match what we contributed dollar for dollar up to a maximum of $5,000) we managed to collect $7,000. He then said that if I could collect another $5,000 he'd give me the remainaing three to complete the $20,000 I had set out to collect this year. We managed to do it thanks to the very generous hearts of patients and two doctors.
Keep ordering those cookbooks, who knows how much we can still raise if we put our minds and efforts into it. Listening to what's going on with the genetics, light sensitiviy, etc, makes me want to fund more of the same. Mattie Lou has challenged the physicians to come up with a solution to our problem by 2004. May her wishes and ours be granted.
Nilda



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Re: Conference

Re : Conference --- Nilda Rendino
Posted by Christel-California , Aug 21,2001,20:12 Top of Thread Archive
WOW, $20,000, that's impressive, good going, Nilda.
Do you have any visors left?
Christel



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Re: Conference

Re : Re: Conference --- Christel-California
Posted by Nilda Rendino , Aug 21,2001,21:09 Top of Thread Archive
It's in the mail. Let me know when you receive it.
Nilda



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Re: Conference

Re : Re: Conference --- Nilda Rendino
Posted by Christel-California , Aug 21,2001,21:13 Top of Thread Archive
Thank you, Nilda, I will.

Christel




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Re: Conference

Re : Conference --- Nilda Rendino
Posted by Evelyn , Aug 22,2001,15:32 Top of Thread Archive
That's really great, Nilda, that you were able to raise that much. I've spent an enjoyable hour or so reading the bb. I'm trying to learn all I can about BEB. My daughter is blinking and squeezing a lot lately. She is under a lot of stress, and has a job as an account executive. She spends a great deal of time at the computer. I want to be informed, just in case her problems continue to develop.
Evelyn



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Re: Conference

Re : Conference --- Nilda Rendino
Posted by Joanne Matuzas , Aug 26,2001,23:08 Top of Thread Archive
Nilda, wanted to personally thank you for your hard work with the fundraising efforts. When the challenge to meet specific amounts was
given, you were right there busily encouraging us all to meet the challenge. It happened and I also thank all those who contributed
to the cause. Tee shirts, visors, bags, cookbooks and all were great.
Hats off to you, gal!!!! By the way, I'll be e-mailing you privately
regarding ordering more cookbooks. It has a two-fold function--it not only has wonderful recipes, but it gives recipients an idea about our disorder and what we are dealing with in a light, positive manner. I will be giving one to all my relatives and friends.
Joanne M. San Diego, CA



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Re : Re: Conference --- Joanne Matuzas
Posted by Kelly Saffell , Aug 27,2001,10:13 Top of Thread Archive
Nilda

I wasn't at the conference but I wanted to thank you for all of your hard work. The cookbooks are great - I ordered 8 to pass out to neighbors and friends. Some were for awareness but others were to thank those who have truly supported me over these last 6 years. Thanks again.

Kelly in Dallas - cool and rainy at last!




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Re : Re: Conference --- Joanne Matuzas
Posted by Nilda Rendino , Aug 27,2001,13:40 Top of Thread Archive
Thanks, Joanne. Please note that books should be oredered directly from the Foundation. Include your check for $12.50 per book.



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Re: Conference

Re : Re: Conference --- Joanne Matuzas
Posted by Sally - in - Idaho , Aug 27,2001,17:14 Top of Thread Archive
Inside each book, I enclosed one of the little cards that I got free of charge from the BEBRF office. They give a good description of BEB in concise terms.

Sally in HOT North Idaho




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