eyes


Posted by Ken Salisbury , Aug 21,2001,22:08   Archive
Have had three lots of injections so far ,the last ones didn't do much good . I go to get another lot on the 5th of next month ,if these don't work I don't know if it is any good to keep getting them.
Has anyone had them work after they failed before
Ken



Recommend Current pageAuthor Profile
Replies to this message


Re: eyes

Re : eyes --- Ken Salisbury
Posted by owen Taylor , Aug 21,2001,22:50 Top of Thread Archive
It's pretty frustrating isn't it... I had little luck my first series of injections. A really, really bad time my second series, and no am a little better after the third set. I know my doctor, (competant but no empathy or bed-side manner)has injected different ways each time.

I guess this is a long way of saying I at least have found improvement. Good Luck.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: eyes

Re : Re: eyes --- owen Taylor
Posted by Moderator-JB , Aug 22,2001,08:15 Top of Thread Archive
Owen:

It takes a doctor/patient team approach to get the best results. I've found that the 'God complex' attitude from a physician gets old real fast.

Take care,




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: eyes

Re : eyes --- Ken Salisbury
Posted by Shirley-Arkansas-USA , Aug 22,2001,03:20 Top of Thread Archive
Hi Ken,
Did the injections help at all the first two times that you got them? If they did, your doctor may have changed the sites a bit the third time and didn't get them in the right places for you or there could have been something wrong with the botox, rendering it ineffective-possibly the way that it was handled at some point as the toxin is very fragile.
It sometimes takes a while to get the correct dosage and sites for each individual. Talk with your doctor and let him know that these last ones didn't work very well and see if he or she might have a reason why.
Botox is effective to varying degrees in most people if given in the right amount and in the right sites. This varies from patient to patient.
Before giving up on the botox injections, I would try a different doctor that is very knowledgeable about giving the injections to BEB patients. Doctors inject differently, using different techniques and you may just need to find someone else.
It will also make a difference in how effective the botox is if you have droopy eyelids or apraxia. Sometimes the botox is working and other eye problems are getting in the way.

Hope this helps a little. Let us know how you do or if you have anymore questions.

Shirley in AR. being the night owl again.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: eyes

Re : eyes --- Ken Salisbury
Posted by Moderator-JB , Aug 22,2001,08:11 Top of Thread Archive
Ken:

It may be of help to change doctors. Each have a slightly different technique and level of expertise. A few signs to go by - does your doctor give shots in the upper eyelid just above the lash level? If so, does he angle the needle away from the midline of the lid towards the outer edge of the eye and away from the midline towards the nose area? How about the forehead area? Does he use an EMG machine to track muscle movement? Does he ask you where you feel the most movement?

Good luck,

Judy Blackman
blkmn36@earthlink.net
Moderator




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: eyes

Re : eyes --- Ken Salisbury
Posted by Kelly Saffell , Aug 22,2001,08:36 Top of Thread Archive
I went thru several sets of injections with 2 different doctors before finding my current doc of 4 years. Location and amount is EVERYTHING. I'm far from normal but at least I can drive the mile to and from school for my 1st grader and I can care for my house and kids. Instead of using the "standard" injection sites like my other 2 docs this one gives injections where I need them most. He has me squeeze several times so he can see the areas in my forehead, temple, upper cheek and eyelids where the muscles are hard at work. I remember after my first set expecting to be "well" and that feeling of fear when they didn't work at all but don't give up yet. And Shirley's right, botox isn't effective if you have apraxia.



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile