It's pretty frustrating isn't it... I had little luck my first series of injections. A really, really bad time my second series, and no am a little better after the third set. I know my doctor, (competant but no empathy or bed-side manner)has injected different ways each time.
I guess this is a long way of saying I at least have found improvement. Good Luck.
It takes a doctor/patient team approach to get the best results. I've found that the 'God complex' attitude from a physician gets old real fast.
Did the injections help at all the first two times that you got them? If they did, your doctor may have changed the sites a bit the third time and didn't get them in the right places for you or there could have been something wrong with the botox, rendering it ineffective-possibly the way that it was handled at some point as the toxin is very fragile.
It sometimes takes a while to get the correct dosage and sites for each individual. Talk with your doctor and let him know that these last ones didn't work very well and see if he or she might have a reason why.
Botox is effective to varying degrees in most people if given in the right amount and in the right sites. This varies from patient to patient.
Before giving up on the botox injections, I would try a different doctor that is very knowledgeable about giving the injections to BEB patients. Doctors inject differently, using different techniques and you may just need to find someone else.
It will also make a difference in how effective the botox is if you have droopy eyelids or apraxia. Sometimes the botox is working and other eye problems are getting in the way.
Hope this helps a little. Let us know how you do or if you have anymore questions.
Shirley in AR. being the night owl again.
It may be of help to change doctors. Each have a slightly different technique and level of expertise. A few signs to go by - does your doctor give shots in the upper eyelid just above the lash level? If so, does he angle the needle away from the midline of the lid towards the outer edge of the eye and away from the midline towards the nose area? How about the forehead area? Does he use an EMG machine to track muscle movement? Does he ask you where you feel the most movement?