Speaker at conference


Posted by cliff (Cliff Gilinsky,cliff), Aug 31,2001,21:08   Archive
One of the speakers at the conference spoke about a kind of Blepharospasm in which the person would also make sounds and he mimiced the sounds that they made. Would someone tell me more about this? I make a grunting type sound when I have hard spasms. All information would be greatly appriciated. Thanks, Cliff



Recommend Current pageAuthor Profile
Replies to this message


Re: Speaker at conference

Re : Speaker at conference --- cliff
Posted by Virginia , Aug 31,2001,21:28 Top of Thread Archive
Cliff, Cliff, Cliff, where were you hiding? We would love to have met you.

The condition that I think you are referring to is spasmodic dysphonia and there is a link below to a site which will give you information as well as examples of the sounds made by persons with this condition. I don't remember grunting sounds being one of those mentioned, but you can check it out on their site.

Virginia in AL Related link: http://www.dysphonia.org/nsda/




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Speaker at conference

Re : Re: Speaker at conference --- Virginia
Posted by cliff (Cliff Gilinsky,cliff), Aug 31,2001,22:02 Top of Thread Archive
I would have loved to attend. So many questions to ask and it would have been nice to meet you folks in person. Since I'm going to lose my medical insurance the end of Sept. I decided that now would be a good time to have a cyst on my left foot removed. I thought that a local and about 16 minutes in a doctors office would do it. Boy, was I wrong. An hour in the hospital and put under was more like it. Also, I'm not to do extended walking and no climbing. But it had to be done and it will feel so much better when it heals. I'm going to try to get on line more often now. Thanks, Cliff



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Speaker at conference

Re : Re: Speaker at conference --- cliff
Posted by Virginia , Sep 01,2001,08:53 Top of Thread Archive
Sorry I misunderstood. Good luck with the foot and do try to chime in as often as you can.



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Speaker at conference

Re : Speaker at conference --- cliff
Posted by Christel-California , Aug 31,2001,21:38 Top of Thread Archive
Cliff, I don't have an answer to your question, just like to say
"welcome to the board".

Christel in Ca.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Strange sounds ...

Re : Speaker at conference --- cliff
Posted by Moderator-JB , Sep 01,2001,06:07 Top of Thread Archive
Cliff:

The grunting sound is fairly common. I did it in the past and still do on occassion. Now I will wake up in the night making a kind of hissing/k-type sound (I also have Oromandibular Dystonia that affects the jaw/lower face area.

Please e-mail me if I can perhaps answer some of your questions.

Judy
blkmn36@earthlink.net




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Strange sounds ...

Re : Strange sounds ... --- Moderator-JB
Posted by hilltops , Sep 01,2001,11:02 Top of Thread Archive
Hi friends,

Mine does that...way too often, I'm afraid. When the diaphraghm goes into spasm it pushes the air over your voice box, making these unusual sounds. Also, my words are repeated, or switched backwards, or any combination..."steak" when I want to say "cake". Happens to a lot of folks...

Hope this helps,
Blessings,
donna




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Speaker at conference

Re : Speaker at conference --- cliff
Posted by MaryNY , Sep 01,2001,15:32 Top of Thread Archive
Cliff - welcome to the BB! My husband tells me that I "sort of clear my throat " a lot just before it's time to get my Botox injections. I think I also am developing possible ad dysphonia...who knows? I try to "Go with the flow!" Mary



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile