Re: Light Sensitivity frustration & FL-41 glasses
I'm really sorry to hear that Owen. I know you were hoping for some relief. That's a big disappointment.
I was wondering if those that do like their glasses could tell me what the advantages are over regular glasses. Ann D.
Re: Light Sensitivity frustration & FL-41 glasses
Ann, The FL-41 rose tint was developed for photophobia. The FL-41 filter blocks 80% of short wave light(which is blue light) which enhances Beta activity in EEG. Long wave or red light suppresses it. Increased Beta activity seems to be involved in the onset of Migraines, BEB and visually induced Epilepsy. The FL-41 filter seems to provide relief for all three conditions.
Relief ranges from low to dramatic, depending on the individual and the consistency and duration of wear.
Above information taken from the Knighton Optical handout at the conference.I do find that my rose colored glasses help with my light sensitivity. When outside, I do still put wrap-around Solar Shields on over them.
Before I got the FL-41's, I used just a medium tint on my glasses and would also at times wear sunglasses over that. I find that I am quite comfortable in the house, now with the lightest FL-41 tint and inside lighting rarely bothers me unless I go to a store or am sitting in a conference with bright directed lighting. They have been a help to me. And like I said, I've tried using just regular glasses recently without the tinting and I couldn't stand it. Shirley in AR.
Re: Light Sensitivity frustration & FL-41 glasses
Shirley , do you have the address for the FL-41 glasses? Owen gave me the phone number and I lost it. Ann Doyle
Re: Light Sensitivity frustration & FL-41 glasses
Ann,
Here is a link to the Knighton Optical web site, which will give you address and phone number.
Related link: http://www.knightonoptical.com/vision/vision.htm
Re: Light Sensitivity frustration & FL-41 glasses/shirley
i can only tolerate my regular ones for short periods also. i noticed in the conference photos that you have exactly the same shape in your lighter ones that i do.
Re: Light Sensitivity frustration & FL-41 glasses
Owen, sorry to hear that the FL41 has not worked for you. I have been using the FL41 for about two years now and they have been a blessing to me. I have had all my glasses treated, even the wrap around ones I used to use. They are all Prescription glasses. Because the tint works so great for me, I rarely ever wear the wrap around glasses any longer. I don't know what % tint I have but they are perfect for me. I am really surprised that you do not get any relief from them but everyone is different as we all have learned from this disorder. I hope that you can find something that works for you. I know that is sometimes awkward for us when we have to wear goggles all the time. Good luck...Alan
--modified by Alan Phair at Sat, Sep 01, 2001, 17:44:46
Re: Light Sensitivity frustration & FL-41 glasses
Hi Owen,
I'm sorry to hear that the FL-41s didn't help at all. I have two pair and am going to send him another pair of prescription glasses to tint. I wear mine all the time-but then I have to wear glasses. I recently had an eye exam and my prescription had changed a little so I did get a new pair of glasses. I had the optician just put an anti-glare coating on them and I have tried using them several times but I can't stand the light and wind up putting the FL-41s back on. I've had to have the anti-glare coating removed and will be sending them off to Knighton Optical very soon to be coated with the medium coating.
I guess what helps one person doesn't always help another. I am sorry that you are out that amount of money. Why was it that much? Did you purchase special glasses from him? It is usually only around $25 or so to have glasses coated that you send to him.A thought is that since they do fit snuggly around the face that they might help someone with an apraxia problem that doesn't need prescription glasses. Sort of like the goggle thing that they were talking about at the conference. Are they not dark enough or what is it about your regular dark goggles that is more helpful than the FL-41s. I'm just curious and also disappointed for you that they didn't help and you are out that expense. Shirley in AR.
Re: Light Sensitivity frustration & FL-41 glasses
Shirley: $25.00 for coating? That wasn't mentioned to me. I was told I needed to buy these special lenses though I could send him frames and he would charge just $200 to put the lenses in them.My regular dark goggles are by PanOptx and I think they help because no light gets around them. They still don't make the outdoors and flourescent lights tolerable though. Thanks for the info,
Owen
Re: Light Sensitivity frustration & FL-41 glasses
Hi Owen,
Yes, it was around $25.00 for the tinted coating be be put on a pair of my prescription glasses. I have sent him two different pair in the past of my own glasses and that has been the approximate charge for the coating.
I think that he does prefer to make the lenses himself and have the coating put in the lenses-they supposedly come out better that way and are more effective, but I've never had him do that.I can relate to you liking the goggles that don't let any light in around them. That is why I always wear my wrap-around solar shields on over the FL-41s when I go outdoors or riding in the car. In fact, my husband took me for a drive a little while ago and I had my darkest FL-41s on but I had forgotten my wrap arounds to put on over them and within short order I was miserable and asking him to take me back home. Shirley in AR.
Re: Solar Shields?
Shirley, do you know perhaps if the solar shields come in varying degrees of darkness? I've only been able to buy on kind and, on especially bright days, have to wear a larger pair over them - which causes heaviness and annoyance on the bridge of the nose and behind the ear!I bought a pair of glacier glasses this past week and hope they help with cutting out the winter wind. June in Toronto
--modified by June in Toronto at Tue, Sep 04, 2001, 16:14:27
Re: Solar Shields?
Hi June,
Somewhat. I have a pair that are kind of a yellowish brown tint and a pair that are dark gray. The brown tinted ones are a little bit lighter than the gray. I find that most of the time it is enough to have on my FL-41s and the solar shields on over them. They don't seem to weigh my glasses down and fit on my glass frame and therefore don't bother my nose or behind my ears. I did notice at Wal-Mart and Target and drugstores that carry them that they do fit differently and I had to try on several pairs before I found ones that were comfortable.
I seem to be most comfortable with the light with my brownish ones rather than the darkest gray pair.
Judy had posted a link to Solar Shield glasses some time back. They are more expensive through that site, though.Shirley in AR.
Re: Solar Shields?
Thanks Shirley. I have the brown-tinted ones that I use sometimes for tv, exercise class or other things inside, but am now finding the other pair (lightish black (grey)) aren't dark enough - hence using the second pair. I just find they are a bit sharp on the nose and ear with the 2nd pair on! I get mine through an optician so I'll check with him.June in Toronto
Re: Solar Shields?
Hi June,
I bought new Solar Sheilds at Wal-Mart because it
was marked small.
I'm very happy with them because they are smaller,
the sides are flexable (not the hard plastic.
The front does not go straight across like the old ones.
The are shaped just like regular sunglasses.
I find the most important thing for me is making sure
they are polorized, it really cuts the glare.
I like the dark ones, and they do sell lighter ones
that say "for driving".
Now I've been hunting around to find another pair
in small to keep as a spare.
Mindy in NY
Re: Light Sensitivity frustration & FL-41 glasses
I sent him my glasses made up because I wanted to avoid adjustment problems. I have bifocals and need to be sure that the line is sitting where it should. However, you have to be sure that the lenses are not polarized, tinted or be the type that gets darker when exposed to sunlight. You send the lenses with your phone number and he'll call you when they arrive. If you give him a credit card number the $25-$30 are put on the card. He'll discuss what your needs are but as I said, if they don't turn out the way you want, discuss it with him.
Nilda
Re: Light Sensitivity frustration & FL-41 glasses
Hello, I have worn the FL-41 coated glasses for two years. I have found them very helpful for photophobia, I only have ones for inside,they really do help.Thinking about getting some darker ones for outside.
Corrie
Re: Light Sensitivity frustration & FL-41 glasses
Owen,
Did you talk to Chuck Swallow after you tried your glasses. In spite of the fact that I had a pair done at 85% for outside wear, I found that I still needed my Solar Shields. I spoke to Chuck and now have a pair that I'm happy with. I often wear a visor in addition when I'm outside or driving. Do call him if you haven't. He'll work with you.
Nilda
Re: Light Sensitivity frustration & FL-41 glasses
Nilda,
What did he do differently for you?
Virginia in AL
Re: Light Sensitivity frustration & FL-41 glasses
I don't know what he did the second time but they were darker. He'll work with you if you let him know what the problem is with the ones you received.
Nilda
Re: Light Sensitivity frustration & FL-41 glasses
owen ,this is a shame! mine help me so much i can't believe i lived without them for so long. you only got the very darkest ones? if you are wearing these inside or most of the time, you might be making your eyes overfocus and it would indeed be difficult to see. i only wear my darkest ones outside or during the intense light sensitivity following my injections; at that point even on my computer.
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