Re: Feedback on Artane?
Hi Joanna, sorry that you haven't received any responses from people who take Artane that it is effective for. It is one of the drugs that I tried over a year ago but I couldn't tell that it helped at all and the side effects of short term memory loss led me to stop it. I attempted trying it a couple of different times for a 2 to 3 week period each time. Had the same results each time I tried it.I know that some people are helped with it. Shirley in AR.
Re: Feedback on Artane?
Hi Joanna,
There used to be someone who posted here who was
helped with Artane.
There is very likely many more getting good results.
I think they are doing well and thus the reason they don't feel the need to post.
The other reason I think many have good results is because Artane is
usually the first med. the doctors prescribe.
I hope that is encouraging for you.
I was not able to tolorate the side effects, that was 8yrs. ago.
If I were to start it today, knowing how my body reacts to meds.
I would have to increase the dose every 7 days for example, instead of
every 3 days.
I would keep a very good daily record.
And stop increasing when I got to a point that gave my eyes good results, even if it meant a lower dosage than the recommended.
I Always do this With my doctor's OK.
And if after some time you start to be bothered by a side effect, ex.
memory loss, I would cut back to the previous dose, and a lot of times
that's all that is needed.
And remember with BEB each person is different in what works for them and what doesn't. So, just because it doesn't work for someone else,
it might be the perfect med. to help you.
Best wishes,
Mindy in NY
Re: Feedback on Artane?
Joanna,
I am taking Artane just to prolong the injections and it works pretty good for a while. My injections usally last about 3 months and starts going downhill about 2 months. That is when I start taking the artane and start with a very low dosage,usually 1/2 mg a day for 3 days then gradually add another 1/2. for another 3 days. I level off when I see that is working. The only drawback is that I can't go over 3mg without having side effects. It will make me nervous and seems to affect my memory. I am very sensitive to any medication so when over 3mg start to bother me, it may not bother anyone else. It does work for me but not an answer to the disease. When I do go back for injections, I start to slowly come down on the artane, the same gradual way that I started going up on it.
I haven't been on the board for a long time, sorry about that. If you want to ask me anything else. Feel free to e-mail.
Carolyn,from Plano, Tx.
Re: Feedback on Artane?
Joanna, I usually don't reply to messages regarding medications from people who are just beginning to take them as I don't want to influence their opinion of whether it is helping or not in any way. However, since you have had little response and seem concerned, I thought that I would make an exception this time. Artane was the first medication that was prescribed to me back in 1997 when I first was diagnosed with this disorder. I took it for several weeks before I had to stop because I did not like the way that it made me feel. I felt as though I did not have control over myself and had memory losses that really bothered me. I learned however that a lot of the meds have the short term memory loss effect. Anyway, I did not want to take the Artane or any medication where I did not feel I had control over my actions so I stopped taking it. Maybe if I tried it again today, the results may have be different but I will never know.Having been in the Pharmaceutical business all my adult life, I also learned that each medication reacts differently to each person. What works for one may not work for another and vice versa. Stay with the Artane if it does not bother you and you think it may be helping. Good luck in any case and keep trying different things if one does not work right for you...Alan
Re: Feedback on Artane?
sorry joanna, i am so preoccupid with what's happening. i took artane when first diagnosed and it didn't do anything at all, it seemed.
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