meds causing beb


Posted by r coutant (R COUTANT,r coutant), Sep 17,2001,13:38   Archive
Where on the dystonia web site does it list meds that might
cause BEB?

Thank you.

rhonda




Recommend Current pageAuthor Profile
Replies to this message


Re: meds causing beb

Re : meds causing beb --- r coutant
Posted by Shirley-Arkansas-USA , Sep 17,2001,17:16 Top of Thread Archive
Rhonda, this is a link to a site where they discuss drug induced dystonia and list drugs that may cause dystonia (BEB included). At the conference, the doctor's discussed the fact that they primarily saw neuroleptics as the drugs that caused dystonia. Everyone is different, though, and what may trigger a reaction in one person might not bother another. Some drugs that people feel have caused their particular dystonia are not in this list. There can be individual reactions to any drug out there.
Benadryl is a drug known to cause dystonia but is also the drug used for acute dystonic reactions in the hospitals. I take it on a daily basis. You must weigh the pros and cons of anything that you take and be knowledgeable about them. In the long run, anything is a risk and we hope for the best and only take what we have to.
Hope this helps.

Shirley in AR.

http://www.dystonia-foundation.org/defined/second.asp#drug




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: meds causing beb

Re : Re: meds causing beb --- Shirley-Arkansas-USA
Posted by Christel-California , Sep 17,2001,17:27 Top of Thread Archive
Shirley, I tried Benadryl and wish I could take it, but being tired all the time anyway, Benadryl make me almost comatose. How do you function if you take it daily, doesn't it make you tired?

Christel in Ca.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Benadryl

Re : Re: meds causing beb --- Christel-California
Posted by Shirley-Arkansas-USA , Sep 17,2001,18:17 Top of Thread Archive
Hi Christel,
Yes, in the beginning, it did make me tired. It had always been a drug that if I took one 25 mg. tablet, I would be wasted for a day.(Comatose-like you said).
When I first heard about it on this bb, though, and how it was helping some people, I did decide to try it anyway. I found that if I stayed up and moving around that it did help to lessen the squeezing, helped to get my eyes open and I found that I was also less light sensitive. If I sat down or reclined, I would go right to sleep, though. I didn't want to do much more than that in the beginning anyway as I was extremely frustrated and depressed. Gradually, it didn't make me sleepy anymore and I usually take 50mg, three times a day, now and Klonopin. I have tried stopping it but my symptoms are better on it than off it so I continue it. So, yes it did make me tired but it doesn't bother me anymore.

Shirley in AR.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Benadryl

Re : Re: Benadryl --- Shirley-Arkansas-USA
Posted by Christel-California , Sep 17,2001,20:05 Top of Thread Archive
Thanks, Shirley, for your response. If I try Benadryl again, I guess I have to make sure to take my meals standing up and walking around until my system gets used to the Benadryl. Wonder how long it will take. :-)

This is a heck of a disorder, isn't it?

Christel in Ca.

P.S. Why can't we say hell, it's not a dirty word or is it?




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Benadryl

Re : Re: Benadryl --- Christel-California
Posted by Shirley-Arkansas-USA , Sep 17,2001,21:07 Top of Thread Archive
Christel, it is ok with me if you say "hell". I can think of a lot worse things to say. And it is a hell of a disorder.

When my kids were in elementary school and would come home and ask about a certain word that they had heard, I would tell them exactly what it meant (in terms that they could understand) and then we sat down and learned how to spell it. I told them that if they were going to use a word like that they had better know what it meant and how to spell it. After they were told what the words meant, they didn't really want to use them anymore. They quickly learned that the kids that were saying all the bad words didn't actually know what the words meant nor how to spell them. They were surprised at what the words meant and couldn't figure out why some kids were saying those things. And they also thought that it was funny that they were seeing them spelled incorrectly. I literally took all the mystery and fun out of the "dirty words" for them. Bad words have never been a problem in my household, they are occasionally used but always in proper context and never in front of someone that might be offended by them. I drilled that into their little heads at an early age. They still rib me about the "spelling bees" that we used to have in private. Yes, I'm strange, but it worked. :-)

Boy, did I get off the subject. If you do try the Benadryl again, make sure that it is ok to take with any other medication that you might be taking (as in check with your doctor). Wal-Mart has an inexpensive generic. You might try taking it at bedtime for a while. Maybe just 25 mg at first and gradually increase it. You will be taking lots of naps for a while, though. zzzzzzz :-)

Shirley in AR.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Benadryl

Re : Re: Benadryl --- Shirley-Arkansas-USA
Posted by Ann Doyle , Sep 18,2001,07:33 Top of Thread Archive
In colonial times, prisoners would be kept in wooden stocks for all the see with their crime listed. Sexual crimes were listed
For Universal Carnal Knowledge
Now doesn't that 4 letter word seem less applicable the way it is used today. They are not using it in context. Ann Doyle



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Benadryl

Re : Re: Benadryl --- Christel-California
Posted by Ann Doyle , Sep 18,2001,07:25 Top of Thread Archive
Hell's Bells no. Ann Doyle



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile