Blepharospasm Bulletin Board

tapiing up the eyes - techiques to keep them open
  Archive
Posted by: pdb
03/28/2004, 01:57:49


I wonder if anyone had worked out a technique for taping up the eye lids to avoid apraxia? Ive been trying it with bits of clear sticking plaster, and it seems to give a good effect. It seems to relieve basic apraxia, i.e. the times when the eye lids are hanging down regarless of the absence of a spasm, something that I get a lot of the time. When the spasm are on then nothing much helps, except that the eyes are open again immediately after the hard spasm, not some while later as normally happens. So the question is about taping techniques of other means of keeping the eyelids open (Ive seen the material on props being added to glasses, so I dont mean that approach).



| |   Current page

Replies to this message


Re: tapiing up the eyes - techiques to keep them open
Re: tapiing up the eyes - techiques to keep them open -- pdb Top of thread Archive
Posted by: Diane in Virginia
03/28/2004, 09:49:28


Greetings..
Where exactly do you apply the tape?
To the upper eyelashes? The upper eyelids?
Thanks!
Diane



| | Where am I? Original message Top of thread Current page
Re: tapiing up the eyes - techiques to keep them open
Re: Re: tapiing up the eyes - techiques to keep them open -- Diane in Virginia Top of thread Archive
Posted by: Anita Croce
03/29/2004, 19:57:04


This is my suggestion, if you wish to try it. When I need a little brow lift, I use Johnson Surgical tape. Instead of placing the tape across the brows, I cut a small piece of tape off, place it directly under the arch of the eyebrow and give the tape a lift placing it onto the forehead. You can use eyebrow pencil to cover the tape and if you wear makeup, you can use makeup on the forehead to cover the tape. If you need a little more assistance, try placing some tape near the outer edge of the eyebrow,(toward hairline) doing the same thing - place the tape under the eyebrow and gently lift it onto the forehead. Good luck and I hope this might help many. I recall going to a meeting some years ago and found a lady with about 4 strips of tape going across the lids, but I can't figure out how that could give the lift that I'm referring to. I have used this method for years as needed.
Anita Croce



| | Where am I? Original message Top of thread Current page
Re: tapiing up the eyes - techiques to keep them open
Re: tapiing up the eyes - techiques to keep them open -- pdb Top of thread Archive
Posted by: Shelley
03/28/2004, 12:32:28


When I was first diagnosed around 3 1/2 years ago, and we were still working on getting my blephs under control with Botox, I used to just use plain, ol' Scotch tape to tape my upper lids open so I could drive to school and teach. I just pulled my bangs down over the tape and no one noticed 'til one day, one of my first grade girls said "Mrs. Chambers, do you know you have TAPE on your eyes?!!

Worked better some days than others. Had an "eye job" which helped immensely - got rid of that hereditary, heavy, excessive lid and tightened everything up.
Shelley




| | Where am I? Original message Top of thread Current page
Re: taping up the eyes - techiques to keep them open
Re: tapiing up the eyes - techiques to keep them open -- pdb Top of thread Archive
Posted by: Ann Doyle
03/28/2004, 13:50:00


I use Nexcare Flexible Clear First Aid Tape. It is transparent and moves with you. It is also hypoallergenic. I get it in a Drug Store. Not all Drug stores carry it. Johnsons also makes some. I think it comes withoout the case, just like gauze but it tears easily. You don't need a scissors. It works best for me across my eyebrows but OUCH! getting it off. The Nexcare comes in a thing like scotch tape. You find both of them with the Band Aids. Ann Doyle


Modified by Ann Doyle at Tue, Mar 30, 2004, 12:20:54

| | Where am I? Original message Top of thread Current page
Re: taping up the eyes - techiques to keep them open
Re: tapiing up the eyes - techiques to keep them open -- pdb Top of thread Archive
Posted by: Ann Doyle
03/28/2004, 13:55:31


My insurance or Medicare paid for my "eye lift" 7 years ago because it was so bad that it was a hindrance to my driving. This was before I had Bleph and my eye Dr. suggested it. However it is getting bad again and even with the Myectomy I sometimes use the tape. It is so comfortable, I forget I have it on. You can't put anything over on those little kids. They notice everything. Ann Doyle , a retired teacher.


Modified by Ann Doyle at Tue, Mar 30, 2004, 12:21:22

| | Where am I? Original message Top of thread Current page
Re: tapiing up the eyes - techiques to keep them open
Re: tapiing up the eyes - techiques to keep them open -- pdb Top of thread Archive
Posted by: myrna j
03/28/2004, 21:14:47


I've used "paper" tape. It's thin, white medical tape that comes on a roll. It is gentle on the skin. I taped it onto my eyelids horizontally, just above the lashes, and then pulled the tape and lids up, sticking the tape to my eyebrow area. Taping the lids saved me as far as driving for my job. I would've needed to apply for disability without that. Now that I've recently had a successful myectomy, I don't need to tape any more.
I was glad to hear, however, that others use tape! I was feeling a bit crazy doing so, but figured it was a whole lot safer driving with tape than without!
Myrna


Modified by myrna j at Sun, Mar 28, 2004, 21:17:20

| | Where am I? Original message Top of thread Current page
Re: taping up the eyes - techiques to keep them open
Re: tapiing up the eyes - techiques to keep them open -- pdb Top of thread Archive
Posted by: Beth
03/30/2004, 07:25:53


Oh, the things we do.... I've done this too when I'm by myself at my office. Had not considered having it along when driving. Thanks for the suggestion.



| | Where am I? Original message Top of thread Current page
Re: tapiing up the eyes - techiques to keep them open
Re: tapiing up the eyes - techiques to keep them open -- pdb Top of thread Archive
Posted by: pdb
04/01/2004, 22:01:20



Thanks for the advice re the different tapes and techniques. Ive been using off cuts of clear band aid, and while that works, it feels like amateur dermabrasion pulling it off. I also find that my eyelids sag during the day, so a second treatment retightening is useful during the day, I t can turn an un productive day I to a real purposeful one I find. Doesnt stop the spasms, but does lift the lids straight after instead of having to wait for it to do away on its own.
Peter



| | Where am I? Original message Top of thread Current page