thanks kelly saffell


Posted by r coutant , Dec 06,2001,13:10   Archive
thanks kelly for always being at the ready
to help others.

i had 100 units of botox tuesday, & i'm hanging
around waiting for the meds to take effect
so i can drive & xmas shop. hopefully, the
meds will last at least 2 months.

when i get down i think of you and your
upbeat attitude. as you've said, however,
it did take you time to accept things.
i've had a bad case of beb only since may.

rhonda coutant




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Re: thanks kelly saffell

Re : thanks kelly saffell --- r coutant
Posted by Kelly Saffell , Dec 06,2001,19:50 Top of Thread Archive
I hope this round of botox helps you. I got my injections Nov 7 but they didn't kick in until last week. I usually feel better 1-2 weeks after and sometimes even a few days later. I'm like you, scambling to get my shopping finished while I still can. Are you still working? If I remember correctly you are a CPA (like I was). Believe me, I still get VERY discouraged and feel down right sorry for myself on many occassions. I have had beb for 6 1/2 years now and I finally reached the point that I could "accept" it less than 2 years ago. Go easy on yourself and continue to come here for support. One thing I had to give up was reading. I loved to read mystery/suspense novels and finally gave it up a couple of years ago. I was so stubborn that I refused to give audio books a try until this summer. I love them and just received my tape player and first book from "Talking Books" Library of Congress Library for the Blind. They were so nice and knew about beb. You can check out books by mail and everything is free (my tax dollars at work for me!). I took me 2 years of refusing to admit that I could qualify for a service for the blind before I took advantage of something that is now giving me some pleasure. Baby steps!

Kelly




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Re:Talking books

Re : Re: thanks kelly saffell --- Kelly Saffell
Posted by Sally - in - Idaho , Dec 08,2001,00:09 Top of Thread Archive
Hi Kelly,

I, too, have been stubbornly holding out and refusing the audio books. I have been able to read some again but it is difficult and very tiring. Someone posted a link to the Library of Congress Library, but I didn't save it. Do you have it? I think I'm ready to give in and try those talking books and let my eyes rest while I "read." Thanks.

Sally in North Idaho who LOVES books




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Re: Re:Talking books

Re : Re:Talking books --- Sally - in - Idaho
Posted by kathy , Dec 08,2001,05:17 Top of Thread Archive
i think mindy found that link for us? she has not been on this bb in awhile. i wonder how she is doing.



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Re: Re:Talking books

Re : Re:Talking books --- Sally - in - Idaho
Posted by Kelly Saffell , Dec 08,2001,11:23 Top of Thread Archive
Go to the website and find your state. There will be an application for you to download, fill out, and have your doctor sign. Then mail it off and they will contact you to confirm your info and explain the program. The tapes are 4 sided so you have to use their recorder. It is HUGE but the tapes reduce the cost. They will also send you a catalog and they have a website listing the books as well. They were so nice when they called and the woman knew of beb. It was so nice for once not to have to explain my disorder or defend it!

Kelly in Dallas
I'm not good at links so if it doesn't work the site is www.loc.gov/nls
Related link: http://www.loc.gov/nls




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Re: Re:Talking books

Re : Re: Re:Talking books --- Kelly Saffell
Posted by Sally - in - Idaho , Dec 08,2001,21:47 Top of Thread Archive
Kelly, do you have to buy the recorder? Thanks.

Sally in North Idaho




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Re: Re:Talking books

Re : Re: Re:Talking books --- Sally - in - Idaho
Posted by Evelyn , Dec 09,2001,00:21 Top of Thread Archive
Hi Sally, When I went to Community College several years ago, they signed me up for the talking books. I think it was from Library for the Blind and Handicapped. They sent me tapes and a machine to play them on. They even paid all the postage. At the time, there was one located in Seattle.
Evelyn



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Re: Re:Talking books

Re : Re: Re:Talking books --- Sally - in - Idaho
Posted by Kelly Saffell , Dec 09,2001,15:25 Top of Thread Archive
You don't have to buy the recorder. They send everything to you free of charge. You even return the books postage free. You have to check out at least one book per year to keep the recorder. I use my headphones from my little cassette player and it plugs into theirs. I believe each state has its own Library for the Blind. Mine comes from Austin, Tx.

Kelly in Dallas




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Re: Re:Talking books/kelly

Re : Re: Re:Talking books --- Kelly Saffell
Posted by kathy , Dec 10,2001,06:46 Top of Thread Archive
thanks ,kelly. do you know if the magazines, such as national geographic are condensed or edited in content? their print is awfully small.



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Re: Re:Talking books/kelly

Re : Re: Re:Talking books/kelly --- kathy
Posted by Kelly Saffell , Dec 10,2001,08:11 Top of Thread Archive
I don't know that but I don't think they are condensed. I read somewhere that some magazines are on loan and others you can keep but I haven't checked out the magazine section.



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Re: Re:Talking books/kelly

Re : Re: Re:Talking books/kelly --- Kelly Saffell
Posted by kathy , Dec 10,2001,08:21 Top of Thread Archive
thanks for replying. i might have to do this sometime also. i'm not fond of condensed books or other written material.



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Re: Re:Talking books/kelly

Re : Re: Re:Talking books/kelly --- kathy
Posted by Dee in OR , Dec 10,2001,16:37 Top of Thread Archive
I know you can get magazines on tape also and I think that includes National Geo. And Reader's Digest, People, and some other magazines.

Dee in OR




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Re: Re:Talking books/kelly

Re : Re: Re:Talking books/kelly --- Dee in OR
Posted by kathy , Dec 17,2001,06:21 Top of Thread Archive
thanks , dee.



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Re: Re:Talking books/Previous post about location

Re : Re: Re:Talking books/kelly --- kathy
Posted by Vicky Johnson , Dec 12,2001,14:31 Top of Thread Archive
Kathy,
I asked where you were located last Dec. 5. When I went to answer your question about posting and did I have BEB I couldn't remember my password. Anyway as you can tell I don't post much but yes, I have had BEB since 1998. I do read the bb every few days however.

Just looking for a contact in Georgia--I live just above the FL line in Thomasville. We're about 4 1/2 hours from Norcross, I guess. I'm thinking it's near Atlanta. If you are ever down this way let me know, I 'd love to visit with you.

Since I've broken in on your post about talking books I'll tell you my experience. The regional library in Bainbridge didn't have many books that I was interested in although it did give me hope, during the time I couldn't read, to know there was still something I could do to entertain myself! Also, the machines that they sent were old and prone to breakdown. I was thankful for the service they provided. Since I take the botox injections I don't have so much problem reading...

Sorry to break in on you but wanted to answer your question and put it where you'd see it.

Thanks, and have a good day.
Vicky J




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Re: Re:Talking books/Previous post about location/vicky

Re : Re: Re:Talking books/Previous post about location --- Vicky Johnson
Posted by kathy , Dec 17,2001,06:18 Top of Thread Archive
not a problem at all , vicky. i was wondering where you went after seeming to pop up out of nowhere. you should post more often! any one who has an opinion, suggestion or thought about things that might help us is more than welcome. too bad we live so far away. i know it seems that i am the only one from georgia posting on this bb, altho i know some other women in Ga. who have this BEB .
how long have you had BEB?



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Re: Re:Talking books/Previous post about location/kathy

Re : Re: Re:Talking books/Previous post about location/vicky --- kathy
Posted by Vicky Johnson , Dec 17,2001,12:30 Top of Thread Archive
Kathy, I've had BEB since 1998 or at least that's when I was diagnosed. I think it was beginning in the fall of 1997 as I noticed in a video done on my 50th birthday that I was blinking a lot. Hadn't noticed this until reviewing the video a year or so later.

I guess I've come to the place where I just know I have to live with it and I may as well make the best of it. I'm very blessed to live in a small town where it's not too difficult to get around so all but about 2 weeks out of the 3 months that botox works I can drive to and from work. I've dicovered that I can watch TV (if there's anyting to watch) by reclining in the recliner and looking with my eyes almost closed. And sometimes that works in the car--put your head on the headrest and look out. Actually, this would not be good in traffic but it works on back roads!!

If you ever want to get a Georgia support group going I'm willing. Macon would be a good central location.

Take care,
Vicky




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Re: Re:Talking books/driving tips

Re : Re: Re:Talking books/Previous post about location/kathy --- Vicky Johnson
Posted by Kelly Saffell , Dec 17,2001,18:15 Top of Thread Archive
I drive the same way alot of the time. My 6 year old asked me if I was asleep once. Probably scared her to death but it helps me. I need to try the recliner for TV though. I listen to the books on tape now that I am able to order those thru Library of Congress more than anything now. I just started Icy Sparks - Oprah book club about the girl with Tourettes. I thought I could relate to her daily struggles and humiliation at being "different".
Kelly



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Re: Re:Talking books/Previous post about location/kathy

Re : Re: Re:Talking books/Previous post about location/kathy --- Vicky Johnson
Posted by kathy , Dec 18,2001,06:50 Top of Thread Archive
vicky, we are about the same age. i am a few years younger than you are. macon and athens( where there is a support group )are still to far for me to find someone to drive me.
there are quite few of us that have discovered taping our eyes can be effective, thanks to a woman on this bb's suggestion. the traffic where i live is still far too crazy for me to attempt driving , even if i had this crutch. keep posting.



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Re: Re:Talking books

Re : Re: Re:Talking books --- Sally - in - Idaho
Posted by Sally - in - Idaho , Dec 09,2001,23:06 Top of Thread Archive
Thanks, everyone. I'll check into it one of these days. I'm afraid that, like Dee, listening would put me to sleep and the story would go on without me. At least when reading with my eyes, if I fall asleep I can always find my place again.

Sally in North Idaho




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Re: Re:Talking books

Re : Re: Re:Talking books --- Sally - in - Idaho
Posted by Alan Phair , Dec 10,2001,15:41 Top of Thread Archive
Sally, that is always my problem. I fall asleep and the tape keeps going. What is worse is when you even fall asleep as you are rewinding it and then you have to go through the fast forward process. I keep saying that i am going to invent something to stop the tape when the mind falls asleep.

I have been using books aloud but I do not like the readers very much. I prefer getting the tapes at the local library as they are the ones by the original authors or readers. My local library has many. I keep track of them as I used to end up taking out ones that I already had listened to. The titles all sound alike now a days. Anyway, I counted the other day and I was well over 100 books that I had listened to. People donate them if they by them which I also do on occasion. A little secret for tax purposes. By them new and give them to the library before you open them. Then you can take them out later. You get the full tax write off for the donation of a new tape. ...Alan




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