face draws up


Posted by mary ledbetter (MARY LEDBETTER,mary ledbetter), Dec 08,2001,20:11   Archive
I had my botox Nov 30th. I havehad different problems each time except the first set, Last time I had three good days and then lost sight for three days but couldn,t see to work. This time I was fine for three days and then I had what I think was a spasm that started in my left eye that felt terrible but it then went down the left side even my mouth twisted.This happened six times in an hour. Can this be from BEB? I assumed it was but hasn't happened since. My eyes are fair but the apaxia is terrible and my eyes just close and if I try to open them ,they sometimes open but spasm so much you can'tt see anyway.
I really read the BB and have gotten a lot of helpful information.

It is rainy in Seattle and over cast. If I don't raise my shades I am enjoying the dark days which all my neighbors think is odd for I am a or was a light person




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Re: face draws up

Re : face draws up --- mary ledbetter
Posted by Lynn Yarbrough , Dec 09,2001,01:24 Top of Thread Archive
>a spasm that started in my left eye that felt terrible but it then went down the left side even my mouth twisted.<

Check this out with your Dr., but that sounds like it might be Meige Syndrome. If so, the Dr. probably will have to ammend your injection points to include the muscles of the cheek and lower face. You must be miserable. I'm so sorry.

--- Lynn




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Re: face draws up

Re : Re: face draws up --- Lynn Yarbrough
Posted by mary ledbetter (MARY LEDBETTER,mary ledbetter), Dec 09,2001,12:31 Top of Thread Archive
Lynn, guess scared me with the spasm but has not happen so strongly since. I do get a week pull every so often in my cheek but ever so slight, What is meige ?
Thanks for answer.

In Seattle cool and without rain this morning




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Re: face draws up

Re : Re: face draws up --- mary ledbetter
Posted by Carol Brown , Dec 09,2001,12:44 Top of Thread Archive
Hi Mary -- Maybe I can answer your post. Meige Syndrome involves the muscles in the face, mouth and sometimes the neck. Of course it is a form of dystonia. Sometimes it comes with beb, sometimes alone. I was diagnosed with beb/meige both at the same time, so I get injections at different muscles in the face. Check with your doc when you go in. When my doc injects me in the face, I make darn sure he doesn't hit my smile muscles. You may want to do the same. The first time my doc injected my face, he did hit the smile muscles. The result was a droopy face which made me look like I was frowning all the time. It was awful let me tell you. Now when I go in, I say "Watch out for my smile!".

Hope I helped some. Good luck.

Carol Brown in Naselle, WA Rainey and dreary too!




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Re: face draws up

Re : Re: face draws up --- Carol Brown
Posted by Teresa Beaver , Dec 09,2001,14:36 Top of Thread Archive
Mary & Carol,
I have been having spasm for awhile now. My Neruo has just sent me to another Neuro that gives the botox injections. Bleph, and hemi facial has been mentioned, but no Meinge. My questiong is that this second doc said I have Bleph but I too have the pulling down of the mouth. It wouldn't really effect my smile because my mouth is pulled downward most of the time anyway. I did tell him how it pulls in my neck to, but he blew it off and said maybe i just thought it did. Well I know it does!! I haven't read to much on Meinge though how is it diagnosed? Is it just by obeservation as well. All i Know is that right now i would love to just pull my face off literally. Somedays its really painfull others I can tolerate it, today isn't one of those days. Thanks for all the information sorry we all couldn't be finding new friends under different circumstances, like a party or something lol.
Teresa
Florida, Sunny, hot 80 waiting for some cold...too feel like Christmas



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Re: face draws up

Re : Re: face draws up --- Teresa Beaver
Posted by carol brown (Carol Brown,carol brown), Dec 09,2001,15:02 Top of Thread Archive
Hi Teresa

No, your doc should not just "blow it off". Does he think it's all in your mind or what? Well, I have the same thing where I get this pulling on my neck -- kind of feels that someone has a hold of the cord on the side of my neck and is pulling on it. It gets painful, but it also doesn't last either. Sometimes it also radiates to the back of my neck and shoulders. I am positive ir is all related. The neuroligist who first diagnosed me, said it was meige syndrome, and told me this only from observation. One time, I was having spasms in my neck and back and told my doc about it. He injected me in the back of the neck and I couldn't bend over for a week. It scared me to death, so I won't let him touch me there anymore. There are phamphlets available on meige syndrome. Ask your doctor.

I think it's great to have all of you to talk to and sound off when I need to. I live with my husband, who is a love, but he doesn't like to hear me complain. I think he goes into denial or something. Yes, it's too bad we couldn't get together and have a party or something, but guess this is the next best thing. Hear are some Christmas cookies for you that I made -- 00000000000. Actually, you know, I thought I was the only person on the planet who had this when I was first diagnosed.

Carol in Naselle, WA who wishes she had some of your Florida heat instead of this cold, damp, rain and dreary weather.

--modified by carol brown at Sun, Dec 09, 2001, 15:05:23




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Re: face draws up

Re : face draws up --- mary ledbetter
Posted by Shirley-Arkansas-USA , Dec 09,2001,21:05 Top of Thread Archive
Hi Mary, I posted a link below that you can just click on and it will take you to a site that will talk about BEB and Meige. It doesn't talk about Apraxia but if you look at the top of this bulletin board page and click on where it says BEBRF Main Pages-there is information there about Apraxia and other things of interest. Check it out. If you have trouble getting to it or finding it, let me know.


http://www.dystonia-foundation.org/defined/bleph.asp

Shirley in Arkansas who can relate to your apraxia problem.




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Re: face draws up/shirley

Re : Re: face draws up --- Shirley-Arkansas-USA
Posted by kathy , Dec 10,2001,07:27 Top of Thread Archive
which is the more progressive of the two, the BEB or the Meige? does anyone know about this?



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