Posted by Ruth D. Barth ® , Dec 11,2001,18:52 | Archive |
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Re: Doctor Indifference
Hi Ruth:
Re : Doctor Indifference --- Ruth D. Barth Posted by kerry horton ® (KERRY HORTON,kerry horton), Dec 11,2001,20:14 Top of Thread Archive
I just heard of someone else with BEB who sees a Doc in the Waterbury area. I can try to find out the name if that is close to you.
:) Kerry in Rocky Hill, CT (just South of Hartford)Re: Doctor Indifference
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Thanks Kerry. It is about a 45 minute ride, definitely doable. Would appreciate it.
Re : Re: Doctor Indifference --- kerry horton Posted by Ruth D. Barth ® , Dec 12,2001,06:59 Top of Thread Archive Re: Doctor Indifference
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Ruth:
Re : Re: Doctor Indifference --- Ruth D. Barth Posted by kerry horton ® (KERRY HORTON,kerry horton), Dec 12,2001,21:41 Top of Thread Archive
I'll give her a call tomorrow and let you know.
:) KerryRe: Doctor Indifference
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Hi again, Ruth,
Re : Re: Doctor Indifference --- kerry horton Posted by kerry horton ® , Dec 13,2001,18:40 Top of Thread Archive
I just wanted you to know that I have a message in to the woman that I spoke of who goes to a doc in Waterbury. As soon as I hear back from her, I'll post. I know how hard it is to wait for treatment - after about 10 different docs ( of all makes and models) my Mom finally got hooked up with Dr. Susan Bressman in NYC. She is doing a lot of research on Dystonia and is not only brilliant but kind as well.
I'll be in touch soon.
:) Kerry in CT where they are calling for a white Christmas.Re: Doctor Indifference
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Hi Ruth,
Re : Doctor Indifference --- Ruth D. Barth Posted by Dee in OR ® , Dec 11,2001,21:13 Top of Thread Archive You can contact the BEBRF and they will be able to give you a list of neuro opthalmologists in your area.
Good luck and welcome to the BB.
Dee in OR
Re: Doctor Indifference
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I suggest you call Mass. Eye & Ear in Cambridge, MA and set up an appointment. They are certainly very much aware of BEB I was diagnosed there in 1990) and will give you an authoritative diagnosis.
Re : Doctor Indifference --- Ruth D. Barth Posted by Lynn Yarbrough ® , Dec 12,2001,01:09 Top of Thread Archive --- Lynn
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Thanks Lynn. I will do this if I can't find someone a little closer. I know they are good because I was diagnosed with glaucoma there five years ago.
Re : Re: Doctor Indifference --- Lynn Yarbrough Posted by Ruth D. Barth ® , Dec 12,2001,07:03 Top of Thread Archive Re: Doctor Indifference
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he sounds like an ignoramous to me.
Re : Doctor Indifference --- Ruth D. Barth Posted by kathy ® , Dec 14,2001,06:29 Top of Thread Archive
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