You can call or email the BEBRF. They are very nice and will help you in any way that they can. I'll post the address and phone number for you.
Benign Essential Research Foundation
P.O. Box 12468
Tel: (409) 832-0788
Fax: (409) 832-0890
We have some people from Virginia that post on the board. They might also respond with some names of doctors that they are happy with.
There is also a doctor database for dystonia that you can look through. Many of these doctors treat BEB patients. This is just a list and no recommendations are made. Below is a link to that site.
Shirley in Arkansas-BEB/Apraxia
--modified by Shirley-Arkansas-USA at Sun, Jan 13, 2002, 22:09:21
I noticed that there wasn't much in the doctor data-base for your area. Actually nothing. More doctors keep being added to that list all the time. You might also check if there is a teaching hospital in your area. Call them and ask to speak with someone in the Neurology department regarding movement disorders or check with the Ophthamology department in the teaching hospital. I don't know if there is one in West Virginia.
I do know that you have some beautiful mountains and countryside, though. :-)
Thanks for the welcome back.
Shirley in Arkansas