Posted by dolores schoppman ® , Jan 14,2002,22:20 | Archive |
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Re: info and invitation to ..wemove dystonia chat room
Thanks for the info. Dolores, but I'm one of the beb people who can't tolerate the `flashing' in a chat room - wish I could.
Re : info and invitation to ..wemove dystonia chat room --- dolores schoppman Posted by June in Toronto ® (June Floyd,June in Toronto), Jan 15,2002,07:12 Top of Thread Archive June in Toronto (beb/meige)
Re: info and invitation to ..wemove dystonia chat room
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thank you dolores for the information. i have never used the chat room before , clicked onto it one and there were a bunch of flashing lights. do they have to have those? what is the purpose of those lights? only to make it more attention getting?
Re : info and invitation to ..wemove dystonia chat room --- dolores schoppman Posted by kathy ® , Jan 16,2002,06:11 Top of Thread Archive
so you have meige seperately from beb ? that would mean it is a seperate form of dystonia.
Re: info and invitation to ..wemove dystonia chat room
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Hi kathy and all. sorry i was not aware of the flashing lights .
Re : Re: info and invitation to ..wemove dystonia chat room --- kathy Posted by dolores schoppman ® , Jan 17,2002,21:04 Top of Thread Archive
do you all have a chat room , that is comfortable for you. let me know and i will see if wemove can make changes to make it easier to use. we all need to have the benefits of community. take care , DeeRe: info and invitation to ..wemove dystonia chat room
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dee, yes we have one but i've never used it yet. ours has flashing lights also. do you only have meige, you said, without the beb? i mean that's bad enough but i wasn't aware that it could be a seperately occuring disorder.
Re : Re: info and invitation to ..wemove dystonia chat room --- dolores schoppman Posted by kathy ® , Jan 18,2002,04:56 Top of Thread Archive Re: info and invitation to ..wemove dystonia chat room
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hi kathy, will contact wemove and see if they can come up with a solution .. dee..
Re : Re: info and invitation to ..wemove dystonia chat room --- kathy Posted by dolores schoppman ® , Jan 18,2002,07:47 Top of Thread Archive
the movement disorder doctor dx me as meiges.
at that time i had symptoms of face mouth and jaw movement and my vioce was sporatic. Since then my neck and left shoulder are spaazing . but eyes are still ok not to sure about the toes:)
will get back to you on what i find out take care dee
Re: info and invitation to ..wemove dystonia chat room
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I'd like to use a chat room, but CAN'T tolerate those flashing lights!
Re : info and invitation to ..wemove dystonia chat room --- dolores schoppman Posted by June in Toronto ® (June Floyd,June in Toronto), Jan 18,2002,07:06 Top of Thread Archive June in Toronto (beb/meige)
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