info and invitation to ..wemove dystonia chat room


Posted by dolores schoppman , Jan 14,2002,22:20   Archive
Hi all, i usually do not come to this bb ..i have meiges but so far no eye problem, so i usually post on the dystonis bb.
however i wanted to be sure, you all knew about the many people with all kinds of dystonias that are meeting every week in the WEMOVE DYSTONIA CHAT ROOM. Its offers friendship and support and more than a few laughs.
they have a variety of rooms for different types of movement disorders and they are allways open 7days a week 24hrs a day.
to be sure that someone is in the chat room however visit :
mon , tues, weds, thur, fri ...3 to 5 pm Eastern time
8 to 10 pm england /ireland
and altho no one is designated to be there ,usually a good group shows at nite around 9 pm eastern time. the nite chats can go on for hours. The directions are easy and its open to all types of dystonias and their care givers. you do not have to be on aol to access the chat either.
directions go to WWW.WEMOVE.ORG on the first page they have WHATS NEW , the sixth thing is OPEN CHAT ROOMS click on to Dystonia.
that brings you to a page that has some info and a disclaimer. then it will ask you for a nick name ,, you make one up (some folks get very creative:)) and your in the chat room .you are all welcome
i hope you all come , would be nice to meet you . dee in fla



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Re: info and invitation to ..wemove dystonia chat room

Re : info and invitation to ..wemove dystonia chat room --- dolores schoppman
Posted by June in Toronto (June Floyd,June in Toronto), Jan 15,2002,07:12 Top of Thread Archive
Thanks for the info. Dolores, but I'm one of the beb people who can't tolerate the `flashing' in a chat room - wish I could.

June in Toronto (beb/meige)




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Re: info and invitation to ..wemove dystonia chat room

Re : info and invitation to ..wemove dystonia chat room --- dolores schoppman
Posted by kathy , Jan 16,2002,06:11 Top of Thread Archive
thank you dolores for the information. i have never used the chat room before , clicked onto it one and there were a bunch of flashing lights. do they have to have those? what is the purpose of those lights? only to make it more attention getting?
so you have meige seperately from beb ? that would mean it is a seperate form of dystonia.



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Re: info and invitation to ..wemove dystonia chat room

Re : Re: info and invitation to ..wemove dystonia chat room --- kathy
Posted by dolores schoppman , Jan 17,2002,21:04 Top of Thread Archive
Hi kathy and all. sorry i was not aware of the flashing lights .
do you all have a chat room , that is comfortable for you. let me know and i will see if wemove can make changes to make it easier to use. we all need to have the benefits of community. take care , Dee



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Re: info and invitation to ..wemove dystonia chat room

Re : Re: info and invitation to ..wemove dystonia chat room --- dolores schoppman
Posted by kathy , Jan 18,2002,04:56 Top of Thread Archive
dee, yes we have one but i've never used it yet. ours has flashing lights also. do you only have meige, you said, without the beb? i mean that's bad enough but i wasn't aware that it could be a seperately occuring disorder.



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Re: info and invitation to ..wemove dystonia chat room

Re : Re: info and invitation to ..wemove dystonia chat room --- kathy
Posted by dolores schoppman , Jan 18,2002,07:47 Top of Thread Archive
hi kathy, will contact wemove and see if they can come up with a solution .. dee..
the movement disorder doctor dx me as meiges.
at that time i had symptoms of face mouth and jaw movement and my vioce was sporatic. Since then my neck and left shoulder are spaazing . but eyes are still ok not to sure about the toes:)
will get back to you on what i find out take care dee



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Re: info and invitation to ..wemove dystonia chat room

Re : info and invitation to ..wemove dystonia chat room --- dolores schoppman
Posted by June in Toronto (June Floyd,June in Toronto), Jan 18,2002,07:06 Top of Thread Archive
I'd like to use a chat room, but CAN'T tolerate those flashing lights!

June in Toronto (beb/meige)




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