Re: Interviewed for article today
Atta girl, Delaine - good for you. Hope they give you a good write-up - we can do with all the awareness we can get.June in Toronto (beb/meige)
Re: Interviewed for article today
Way to go Delaine. I'm proud of you. Let us know when it gets in the paper for sure and post links if possible so we may see it, too. I'm glad that you "did" blue. I'm sure that you looked beautiful.Off the subject-if you don't have one of the blue sweatshirts, you really must get one. I like it even better than my blue T-shirt. Same shade of blue as the T-shirt with white lettering. Once again you've gone above and beyond the call of duty. Thanks for spreading the word. Every little bit or big bit helps. Shirley
Re: Interviewed for article today
what does the t-shirt look like? do I contact the foundation for one?
Re T-shirts
You can email the foundation or contact Nilda Rendino at VABERF@aol.comThe t-shirts come in three colors-slate blue, gray and red. They all have blue lettering that says Help Us Keep Our Eyes Open. Benign Essential Blepharospasm Research Foundation. They are quite nice. I have all three colors and also a blue sweatshirt with white lettering saying the same as above. I really like the sweatshirt. It's my favorite. I don't remember exactly how much they cost but I believe that it was around $12 for the t-shirts and of course the sweatshirt was more expensive (around 20 dollars, I think) Maybe Nilda will see this and respond with the colors that she has available and prices. Shirley in Arkansas
Re: Re T-shirts/shirley
is the sweatshirt all cotton or a blend? i overheat in a lot of polyester.
Re: Re T-shirts/shirley
Kathy, the sweatshirt is 90% cotton, 10% synthetics, couldn't quite read what it said. I have the blue one also and love it, it's sooo comfortable. I don't think there are any more sweats available, after the conference there seemed to be only some T-shirts left. I would like to get a couple more sweatshirts.Christel in Ca. who has a blue T-shirt also.
Re: Re T-shirts/shirley
Kathy, I see that Christel has answered your question. I have also emailed Nilda and asked her to post and tell us what she has available as far as T-shirts, sweatshirts, visors, bags and cookbooks go with sizes and prices for everything and how to order. Hopefully we will hear from her soon.I'd like to see her post that every couple of months, if possible. She would probably pick up some orders that way from new people and us oldies. Shirley in Arkansas
Re: Re T-shirts
The T-shirts are $13. I just bought one for my doctor. Whenever I get my botox shots I wear my T-shirt and he always comments on it, so I got him his own!Dee
Re: Interviewed for article today
Congratulations! I am really envious -- I would like to do something like that for our local newspaper. It seems to me that there is some service org. like Kiwanas or Elks etc. that specializes in supporting the sight-impaired but I don't recall who it is -- can someone fill in my ignorance? I am as a rule even more comfortable giving a talk than writing an essay, and would like to organize a presentation locally.Keep up the good work! And let us know of any feedback you get from readers. --- Lynn
Re: Interviewed for article today
Lynn, The Lions club is the organization you are thinking of. They do a lot to support the blind, including collecting old eye glasses and providing canes, etc.Sally in North Idaho
Re: Interviewed for article today/lynn
how are you doing lynn? you've done a great deal for us already with your description of the method used that was successful for prolonging your injections. i'm sure that there is some sort of community education program where you would be an asset and could give your talk on it, continuing education for seniors, lunch and learn, your church, etc. i have intense fear of public speaking, stemming from having to read a compositon i wrote in the 8th grade where i felt i was going to pass out i was so shy, so that is why i write better than speak.
if you are comfortable with public speaking we should help you pursue this as it is more effective in reaching a lot of people, i think sometimes because of the publicity and it seems like alot of people are just too lazy to read .
Re: Interviewed for article today/lynn
Kathy, That seems like a very innovative idea and I hope that Lynn (and/or others) might be able to follow up on it. (I could never do this as I panic having to talk in front of people. I'm much better at writing something.) I agree with you that many people are just too lazy to read, particularly if it's more than a paragraph or two.Sally in North Idaho where we have a little bit of snow again
--modified by Sally - in - Idaho at Fri, Jan 18, 2002, 14:30:50
Re: Interviewed for article today/lynn/sally
i hope he does also especially if he enjoys giving talks.
as i said i panic, too when having to speak in front of alot of people. i have forced myself to try and overcome this on several occasions but that awful feeling is not worth it i've decided. you'd think you'd outgrow things like this.
Re: Interviewed for article today
That's great, Delaine. I have been trying to generate some interest with my local paper, no luck so far. I'd sure would like a copy of the article and picture for my files, when it comes out.Christel in Ca.
Re: Interviewed for article today
Nice going, Delaine. I hope there will be some way that we can hook in to the paper and see the article when it comes out. I'm sure you represented the cause very well!!Sally in North Idaho
Re: Interviewed for article today
No Shirley I didn't get a blue sweat shirt! I wish I had. Do you think there are any left? I'll have to ask. I ordered 2 T-shirts for me and a red for Rusty that I'm actually using at my meetings to encourage people to get one. I bought 17 cook books as Christmas gifts. Gave one to myself. I'll have to get Judy or Shirley to help me do the "link" or "Post" of the article. I have never done that. I had so much I wanted to tell the reporter that I have no idea what I said. But I know I filled her ear full and loaded her down with info from the foundation, about Mattie Lou, about me, the BB, the support group. Her husband had Parkinson's disease and passed away in 1999, so she was very interested and understanding. I believe she'll do a good job. I just hope I didn't ramble too much. My eyes were wide open while I talked, because I was so passionate about everything. Of course at the end when she started making pictures and talking about her husband, my eyes shut. Fortunately I had warned her that if she talked that would happen and it was part of the disorder and not boredom or getting sleepy. She made lots of pictures, so hopefully she caught one with my eyes open, but if not, oh well! Maybe that is what I should look like for the article.
Re: Interviewed for article today/delaine
that's great!!! we all want to read it if you can get us access to it. let's hope it helps!
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