BOTOX FOR VANITY AND WHAT IT TRULY WAS DEVELOPED FOR!!


Posted by RITA SILVER , Feb 18,2002,10:07   Archive
I AM AN AREA REP IN SOUTH EAST FLORIDA: WITHOUT BOTOX I WOULD NOT BE ABLE TO FUNCTION NORMALLY. I AM FED UP WITH HEARING ABOUT THIS WONDER
DRUG FOR THOSE VAIN AND RICH ENOUGH TO ERACE THEIR WRINKLES EVERY FEW
MONTHS. ALLERGAN THE MAKER OF BOTOX IS MAKING A FORTUNE ON THIS SO
CALLED MIRACLE DRUG. AS AN AREA REP FOR THE BEBRF FOUNDATION FOR 0VER
SIX YEARS AND MANY OF MY SUPPORT GROUP FINDING THAT THEIR DOCTORS ARE NO
LONGER ABLE TO GIVE BOTOX AS THE COST HAS NEVER COME COME DOWN IN PRICE AS ALLERGAN HAS NOT LOWERED THERE PRICE FOR MANY OF US WHO NEED IT TO KEEP THERE EYES OPEN AS WELL AS HOLD DOWN THE ABNORMAL MOVEMENTS FOR OTHER DYSTONIAS AFFECTING US DAILY. I MYSELF HAVE HAD FOUR SURGERIES TO KEEP MY EYES OPEN AND LESS THAN 8 WEEKS AGO I NEEDED 15 INJECTIONS JUST TO CONTROL MY (MEIGE). MANY OF US HAVE A DEADPAN EXPRESSION AND CAN'T SMILE AT OUR FRIENDS AND LOVE ONES.WHY ISN'T SOME BRAVE ANCHOR EXPOSING SOME OF THE TRUTH . MANY WHO CALL ME( WHO ARE IN AN HMO) AND NO LONGER CAN BE COVERED AS DOCTORS DO NOT RECEIVE ENOUGH TO COVER THE
COST OF THEIR TIME AND THE COST OF BOTOX. INSURANCE POLICIES WHETHER
IT IS MEDICARE OR FEE FOR SERVICE WILL ONLY ALLOW US TO GET COVERED ON AN 90
DAY BASIS.I AND ALL OF US WHO HAVE DIFFERENT DYSTONIAS FIND IT HARD TO
ACCEPT THE REAL TRUTH OF WHY BOTOX WAS DEVELOPED. NOT FOR THE RICH AND
FAMOUS.



Recommend Current pageAuthor Profile
Replies to this message


Re: BOTOX FOR VANITY AND WHAT IT TRULY WAS DEVELOPED FOR!!

Re : BOTOX FOR VANITY AND WHAT IT TRULY WAS DEVELOPED FOR!! --- RITA SILVER
Posted by Dee in OR , Feb 18,2002,12:14 Top of Thread Archive
Rita,

I agree with everything you've said but unless we confront Allergan as a group, nothing will happen. Also, the FDA has not yet approved botox for cosmetic purposes! When they do, I'm sure we will see allot more wrinkled faces out there because the cost will sky rocket!!!

Allergan sponsors the DMRF web page. You would think the DMRF and the BEBRF would do something to help our situation!

Dee in OR




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: BOTOX FOR VANITY AND WHAT IT TRULY WAS DEVELOPED FOR!!

Re : Re: BOTOX FOR VANITY AND WHAT IT TRULY WAS DEVELOPED FOR!! --- Dee in OR
Posted by RITA SILVER , Feb 19,2002,10:22 Top of Thread Archive
Hi Dee, I do not think anything will help to tell the real truth. We need to shame allergan. In of my support group a member with meige and blepharospasm went on a national station last summer with her doctor who gave her her Botox on the station
When it was aired a few days later most of what was taped was
deleted. This is a very well spoken woman who works for Broward County.
My son who is an exective with the Chicago Tribune which owns many news
papers as well as WGN in Chicago can't help me as he says they do not considerate this news worthy. I do not think the BEBRF is the solution as when I go to the yearly conferences Allergan kicks in some money and I think they do not want to spoil their relationship with Allergan. I can only hope someone somehow will expose them.



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: BOTOX FOR VANITY AND WHAT IT TRULY WAS DEVELOPED FOR!!

Re : Re: BOTOX FOR VANITY AND WHAT IT TRULY WAS DEVELOPED FOR!! --- RITA SILVER
Posted by Delaine Inman , Feb 21,2002,12:04 Top of Thread Archive
I agree Rita, that the BEBRF will not bite the hand that feeds it. Allergan does do some good things and can we blame them for wanting to make more money for themselves and the stockholders? That is the way it works. I don't agree with everything or like it, but oh well. All we can do is keep trying to get our stories told. My story is FINALLY suppose to be in the Sunday paper on Feb. 24th, an interview and an article I wrote that was used in the BEBRF newsletter, except more detailed for lay people to understand the disorder. I can't wait to see if they edited it. I do tend to be long winded. I'm going to keep calling the news stations in Nashville until somebody gets so sick of me they'll do something to shut me up. Maybe now that I'm going to be the TN Rep. I'll have a new angle to present as news worthy! Don't give up guys or "Ya'll".



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: BOTOX FOR VANITY AND WHAT IT TRULY WAS DEVELOPED FOR!!

Re : Re: BOTOX FOR VANITY AND WHAT IT TRULY WAS DEVELOPED FOR!! --- Delaine Inman
Posted by joyce whitt/NC (Joyce Whitt,joyce whitt/NC), Feb 21,2002,14:38 Top of Thread Archive
Hi everyone, I was on my way to my eye doctor Monday and I normally listen to a area Christian station and guess what I heard? Chuck Colson of Breakpoint was reporting about the latest fab, Botox. It seems he said that tired housewives were wanting to get rid of their wrinkles and were using Botox. He spoke of this in a very sarcastic manner , like women who had this done were vain and emptyheaded (which might be true). I e-mailed my local station trying to get Chuck Colson's web site but I found it on my own. I e-mailed him a letter telling him that there were other uses for Botox which were Medical and for people who needed it, it was a necessity. I explained what blepharospasm was and gave him the Blepharospasm web site and also people with Dystonia used Botox to improve the quality of life. It seems everyone is jumping on the bandwagon in order to have something to report before checking out the facts. If anyone is interested in e-mailing Chuck Colson his web site www.breakpoint.org For you who do not know who Chuck Olson is, he was in President Nixon's cabinet and part of the Watergate scandal. Since then He has become a "born-again" Christian.

Update on my visit to the eye doctor this past Monday. I had woke up that morning with a terrible headache and the "briars" in my eyes, even tho I use a humidifier and my husband puts the ointment in my eyes. After talking to the doctor about my eyes being so dry he did put the "plugs" in my tear ducts. It really wasn't too bad. I asked him to inject more Botox around my eyes. He only used 54 units which means he used 27 units around each eye. (No change from his prvious injections) His method is to inject small amounts into more places around the eyes. He said he did inject in different places this time. On the way home my eyes were open but that has not been the case since then. I wake up each morning with a headache and I have to spend the next couple of hours laying on the coach with hot cloths on my eyes.

I believe it was Ann Doyle who posted a while back about the futility of this disorder. I know what she means. I keep saying that I am going to stop the injections but when the eyes shut down and do their "squeezing" thing and the headaches and virtualy being blind when we have to go out. (I walked around the grocery store this morning with my eyes closed most of the time. If I stop they open when I start walking again they close. I am constantly pushing up on the forehead thinking that will help open the eyes. I walk with my head down. Well you all know this.

Joyce in NC BEB/Meige?Apraxia (?) the reason that has the question mark, one doctor told me I did and then He said I didn't. The second doctor I went to said that I did and now my current doctor said that it was "hidden" in the closing of my eyes.

Thanks for listening!




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile