| Posted by Jean Pelham ® , Mar 10,2002,14:13 | Archive |
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Re: Voice Problems
Jean-Welcome to the greatest source of info for your questions! I have had BEB for about 15 yrs., and have been getting BOTOX injections for about 7 or 8 yrs.around my eyes. I, too, was a singer, in choirs and solo work. I cannot sing now at all. Very gradually, my voice just faded away. I can talk OK, but the dr. says I have a "hypophonic voice". Doesn't help that my husband is a littls hard of hearing. We're like an old couple - "Eh? what wuz that?" Other people remark that I have a very soft voice. I think, and my neurologist agrees, that I may be developing some dysphonia, although I have not been diagnosed nor treated for it. My family is very musical, and I can't tell you how much I miss singing! Last night I went to see a Madrigal Choir....it sure seems funny to just sit there and think how they take for granted how they can sing! But I'm treating the BEB...one thing at a time, I hope! Mary
Re : Voice Problems --- Jean Pelham Posted by MaryNY ® , Mar 10,2002,19:11 Top of Thread Archive Re: Voice Problems
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My inability to sing came after I went deaf, then got the Cochlear inplant. I really miss singing, and I miss being able to hear music...it seems like noise, both musical instruments and singing. Most of my family is musically inclined, and it's so hard to not be able to join in any more. My voice is considerably lower now and I can't even hear pitch. I had given two concerts in church and done a lot of solos before I went deaf. I can't see well either, so I have a lot in commom with all of you BEBers.
Re : Re: Voice Problems --- MaryNY Posted by Evelyn ® , Mar 10,2002,22:03 Top of Thread Archive
Evelyn in WA where the snow has melted and it's warmer than it was.Re: Voice Problems
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Jean, you might check out the SD bulletin board. (Spasmodic Dysphonia)
Re : Voice Problems --- Jean Pelham Posted by Shirley-Arkansas-USA ® , Mar 10,2002,19:30 Top of Thread Archive
http://www.dystonia-bb.org/forums/sd/They probably would be able to answer your questions about your voice.
Some of us do have voice problems or choking episodes to varying degrees. The hoarseness could be a form of dystonia or allergies or voice strain or polyps on your vocal cords or side-effects from smoking or any other number of things. You might want to check with a good ENT doctor if you haven't already.
Have you been diagnosed with Meige or Blepharospasm?Shirley in Arkansas with BEB/Apraxia
Re: Voice Problems
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Hi Jean,
Re : Voice Problems --- Jean Pelham Posted by Sally - in - Idaho ® , Mar 10,2002,19:46 Top of Thread Archive Welcome to the BEB BB. It's a great place to come for answers, suggestions, venting frustrations, and even fun. Please tell us as much about yourself as you feel comfortable doing.
I am 67 and have been diagnosed for about three years and get Botox injections around my eyes every two months. This helps to a degree, worth continuing anyway, but certainly does not enable me to do all the things I could do before BEB.
When I think back, it has dawned on me that losing my singing ability was perhaps the first thing that went wrong. All of a sudden several years ago, I could not sing and had no inkling of what had happened. Then all the other symptoms with the eyes came. I still have no voice range and am quite hoarse. There are times, often for several days or weeks, when I almost lose my voice (like laryngitis). My neurologist has said that is part of the Meige. So far he has just noted it and is watching its progress. Luckily (?) I was at my croakiest one time during an appointment with him, so he was able to know what I had been talking about.
The site that Shirley gave you should be helpful.
Drop in often and keep us posted. Good luck.
Sally in North Idaho where the melt down of our spring snow pile up has begun, and not it's turning ugly. BEB/Meige
Re: Voice Problems
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Same with me. My voice occasionally fades away, & I have trouble singing. I also have phlegm in my throat which started 4 yrs or so ago when I first had the blinking problem. I've always felt they were related. Gargling helps get rid of phlegm, but not the voice problem.
Re : Voice Problems --- Jean Pelham Posted by Joann Humphrey ® , Mar 10,2002,20:10 Top of Thread Archive
It's a strange disease to say the least. Breathing goes right along with the voice problem.
Joann
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