SENSORY TRICKS


Posted by June in Toronto (June Floyd,June in Toronto), Mar 13,2002,05:44   Archive
On the Dystonia board they talked about sensory tricks and the WeMove site. I checked it out and, indeed, they talk about "applying pressure on the eyebrows or touching the skin to the sides of the eyes may improve involuntary contractors of the eyes and blepharospasm". I have listed the link below if you are interested - click on Dystonia (in the left column), then on Patient Information. What do you use as a sensory trick?

June in Toronto (beb/meige) who sings in the car which helps eyes (God help those that can hear me!) Related link: http://www.wemove.org/hsp.html




Recommend Current pageAuthor Profile
Replies to this message


Re: SENSORY TRICKS

Re : SENSORY TRICKS --- June in Toronto
Posted by Kathleen Bowers , Mar 13,2002,08:24 Top of Thread Archive
Thanks....helps me understand better my bad day Monday with pain etc in left neck. Described it all to Neurologists just yesterday. Never this bad before or as persistant. He understands how much more severe Shingles has added to my BEB. Will look at this more closely when doing better. Kitty, (you must understand how I feel about my singing. Even after 10 years no improvement in voice. It's definitely a trick).



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: SENSORY TRICKS

Re : SENSORY TRICKS --- June in Toronto
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), Mar 13,2002,12:52 Top of Thread Archive
That's weird. I did many of these thngs the last injection period. none of them worked for more than a little bit. I used to sing at top volume in the car, a long,long time ago. I'm very glad noone heard me. Very satisfying and gets all your tensions out. I think singers are probably very happy people as their emotions are released thru their voices.



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: SENSORY TRICKS

Re : Re: SENSORY TRICKS --- Kathy in Atlanta
Posted by Gisela Rentmeister , Mar 16,2002,18:00 Top of Thread Archive
Hi Kathy, Singing always workes for me - at least so far. You certainly don't have to sing with full volume. Just engaging our vocal chords seems to distract that brain of ours. This comes handy especially when spasms would otherwise contribute to unsafe driving.

Gisela - who can't believe the amount of snow we have today in our otherwise sunny Okanagan Valley.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: SENSORY TRICKS

Re : SENSORY TRICKS --- June in Toronto
Posted by Shirley-Arkansas-USA , Mar 13,2002,13:39 Top of Thread Archive
Sensory tricks of touching different areas have never really worked for me. Talking and singing still works most of the time but it can't be counted on 100%, anymore.
Eating used to keep my eyes open and it now closes them.

Shirley BEB/Apraxia




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: SENSORY TRICKS

Re : Re: SENSORY TRICKS --- Shirley-Arkansas-USA
Posted by June in Toronto (June Floyd,June in Toronto), Mar 13,2002,16:20 Top of Thread Archive
We always knew you were different Shirley, but we love you all the same:-) Hope you are coping a little better now.

June in Toronto (beb/meige)




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Less stress at the moment

Re : Re: SENSORY TRICKS --- June in Toronto
Posted by Shirley-Arkansas-USA , Mar 13,2002,17:41 Top of Thread Archive
Thanks for accepting my quirkiness and being inappropriate at times.
I am coping better or actually would say that there is less stress for me right now. No one is sick or moving or dying and I do not have a house full of relatives at the moment and I have stopped taking the medicine that was causing a depression and the inability to laugh. My sense of humor has returned and I don't have a parent in the hospital (at the moment) although I am still getting calls in the wee hours of the morning with my dad having anxiety attacks thinking that he is dying of one thing or another.
Now, if I could just get my eyes to work------

Shirley in Arkansas who knows what stressed to the max means.

Different can be good




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Less stress at the moment

Re : Re: Less stress at the moment --- Shirley-Arkansas-USA
Posted by June in Toronto (June Floyd,June in Toronto), Mar 14,2002,02:37 Top of Thread Archive
Quirkiness YES, inappropriate NEVER:-)

Hugs June




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Less stress at the moment

Re : Re: Less stress at the moment --- Shirley-Arkansas-USA
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), Mar 14,2002,08:44 Top of Thread Archive
I'm glad you're better, Which med caused you to be depressed?if you don't mind my asking.



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re:Parsitan (Rx-Canada)

Re : Re: Less stress at the moment --- Kathy in Atlanta
Posted by Shirley-Arkansas-USA , Mar 14,2002,10:42 Top of Thread Archive
Parsitan, I believe, contributed to or caused my depression. I tried it for about 2 months and did a downward spiral while taking it. I tried to slowly increase the dose but side-effects like confusion upon awakening and just feeling bad (chest feeling tight)would increase every time. It did seem to improve my BEB symptoms somewhat but I was never able to get up to a therapeutic level to really have it help much. I had totally stopped laughing which is very unusual for me. I really wanted to give it a fair shot and hoped that the side-effects would go away but finally decided that it wasn't worth it. Others have tried Parsitan with very good results and did not have the side-effects that I did.

Shirley




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Re:Parsitan (Rx-Canada)

Re : Re:Parsitan (Rx-Canada) --- Shirley-Arkansas-USA
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), Mar 15,2002,05:18 Top of Thread Archive
Darn. I was wondering if it was that or the benadryl. Good thing you were able to pinpoint this drug as exacerbating your problem, especially with all you just went thru. Was it hard to get off of it?

--modified by Kathy in Atlanta at Fri, Mar 15, 2002, 05:19:35




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Re:Parsitan (Rx-Canada)

Re : Re: Re:Parsitan (Rx-Canada) --- Kathy in Atlanta
Posted by Shirley-Arkansas-USA , Mar 15,2002,10:18 Top of Thread Archive
It was not difficult to get off the Parsitan. I was never able to get up to a very high dose. I just slowly decreased it over a period of about 2 weeks and the side-effects went away as I decreased it. I was feeling much better by the time that I totally stopped it. So there was no withdrawal symptoms that I noticed.

Shirley in Arkansas




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Re:Parsitan (Rx-Canada)/Shirley

Re : Re: Re:Parsitan (Rx-Canada) --- Shirley-Arkansas-USA
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), Mar 16,2002,07:18 Top of Thread Archive
That's good. Kind of unexpected when you were counting on it to actually help the BEB apraxia problem.



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Re:Parsitan (Rx-Canada)

Re : Re:Parsitan (Rx-Canada) --- Shirley-Arkansas-USA
Posted by Kelly Saffell , Mar 15,2002,08:38 Top of Thread Archive
I have just recently started Parsitan. The only side effect I had was drowsiness but that seems better as long as I'm busy (which is most of the time.) If I stop midday and listen to my book on tape I fall asleep. I'm only taking 25mg morning and 25mg night so far.



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Re:Parsitan (Rx-Canada)/kelly

Re : Re: Re:Parsitan (Rx-Canada) --- Kelly Saffell
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), Mar 16,2002,07:20 Top of Thread Archive
Well i hope it works for you then.



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: SENSORY TRICKS/Shirley

Re : Re: SENSORY TRICKS --- Shirley-Arkansas-USA
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), Mar 14,2002,08:40 Top of Thread Archive
If i eat breakfast by myself, my eyes have been closing now for a couple of months. If I eat it with my manfriend, they stay open. Why?



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: SENSORY TRICKS/Shirley

Re : Re: SENSORY TRICKS/Shirley --- Kathy in Atlanta
Posted by Virginia , Mar 14,2002,09:07 Top of Thread Archive
Must just be one of those sensory tricks - doesn't seem to work with husbands. Just kidding. I have developed a bad habit (when I eat alone) of eating while reading or watching TV or even in front of the computer. My eyes stay open doing that, but if I just eat at the table (alone or with Carl) my eyes frequently close.

Virginia in AL, who thinks there's way too much about this disorder that defies explanation.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: SENSORY TRICKS/Shirley/Virginia

Re : Re: SENSORY TRICKS/Shirley --- Virginia
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), Mar 14,2002,09:18 Top of Thread Archive
Yes there is!! Do you have any theories , no matter how farfetched on why this is??
Now , back to the eye spasms that Rhonda was posting on. Isn't the squeezing of the eye muscles a prolonged spasm that won't release?



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
spasms/squeezing

Re : Re: SENSORY TRICKS/Shirley/Virginia --- Kathy in Atlanta
Posted by Virginia , Mar 14,2002,09:33 Top of Thread Archive
I don't think there is any time limit on a spasm. I used to think a spasm was like a tic or twitch, but I don't see it that way now. Yes, I think squeezing is a long spasm.



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: spasms/squeezing

Re : spasms/squeezing --- Virginia
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), Mar 15,2002,05:15 Top of Thread Archive
Well, I thought so. I'm sorry Virginia, I didn't realize you had the other problems as well as your beb. My delayed reactions set in after i got off this thing and I thought wow, I'm sure that was really hard.



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: SENSORY TRICKS/Shirley

Re : Re: SENSORY TRICKS/Shirley --- Kathy in Atlanta
Posted by Shirley-Arkansas-USA , Mar 14,2002,11:04 Top of Thread Archive
I won't tell you what my hubby's answer was to this as it was inappropriate (but funny) and June says that I am never inappropriate. I have an image to live up to.
First, is he really, really good-looking? ;-0

OK, I'm serious now, I think that it just has to do with what your brain gets used to. If your manfriend was there all the time, I feel that like Virginia and I with our spouses, your eyes would close when you were eating with him. I think that sensory tricks (at least for me) work until our brain gets used to them and feels that the "trick" is not enough to keep it preoccupied. Our brains are all different so there won't be a whole lot of consistency with what works and what doesn't and even the length of time that something works will differ.

Shirley in Arkansas with oldest son coming home today for Spring Break.
I'll have lots of laundry to do. He's been saving it up for me, I'm sure. :-)




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
inappropriateness

Re : Re: SENSORY TRICKS/Shirley --- Shirley-Arkansas-USA
Posted by Virginia , Mar 14,2002,11:58 Top of Thread Archive
I had to bite my fingers to keep from being inappropriate, too. But we musn't upset Judy. I'm not so worried about my image - you do a number on me anyway.

Virginia in AL, who would encourage all to believe most of what Shirley says, but not everything.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: inappropriateness/Virginia & Shirley

Re : inappropriateness --- Virginia
Posted by Sally - in - Idaho , Mar 14,2002,15:53 Top of Thread Archive
Now you've really aroused our curiosity!!!!

Sally in North Idaho who knows all about what happened to the cat.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: inappropriateness/Virginia & Shirley

Re : Re: inappropriateness/Virginia & Shirley --- Sally - in - Idaho
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), Mar 15,2002,05:33 Top of Thread Archive
What Cat?? Oh, I think I must have misworded that a bit, about the breakfast thing. I am referring to the a.m. meal.



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
the cat

Re : Re: inappropriateness/Virginia & Shirley --- Kathy in Atlanta
Posted by Virginia , Mar 15,2002,08:45 Top of Thread Archive
I think she must be talking about the one that "curiosity killed."

Does anyone have any idea where that expression came from?




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: the cat

Re : the cat --- Virginia
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), Mar 16,2002,07:23 Top of Thread Archive
No, maybe a book of fables somewhere, but I'm glad we have someone to interpret these "asides".



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: SENSORY TRICKS/Shirley

Re : Re: SENSORY TRICKS/Shirley --- Shirley-Arkansas-USA
Posted by Sally - in - Idaho , Mar 14,2002,16:11 Top of Thread Archive
Grand-daughter Angelique arrives tomorrow with hers. I have to hurry and get my own caught up so she can get to the laundry equipment. She will want to get it all done this week-end so she can spend next week of spring break with her dad.

Sally in North Idaho who doesn't mind laundry that comes with loved ones.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: SENSORY TRICKS/Shirley/Sally

Re : Re: SENSORY TRICKS/Shirley --- Sally - in - Idaho
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), Mar 15,2002,05:40 Top of Thread Archive
No, i never did either, that's why we do it, endless tho it may seem. I kind of sort out my mind when I'm doing it. Have a good time with Angelique, maybe the chilly dreariness won't seem that gray when she's there. I know exactly what you are describing. I lived in those climates for many years and after the pretty goes away, It is Very dreary!



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: SENSORY TRICKS/Shirley

Re : Re: SENSORY TRICKS/Shirley --- Shirley-Arkansas-USA
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), Mar 15,2002,05:24 Top of Thread Archive
He thinks He is.
You're probably right on your eyes getting used to situations and then just suddenly letting you down.
well, he's cute to me, when he doesn't know it.

--modified by Kathy in Atlanta at Fri, Mar 15, 2002, 05:25:08




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Eyes of Love

Re : Re: SENSORY TRICKS/Shirley --- Kathy in Atlanta
Posted by Sally - in - Idaho , Mar 14,2002,15:46 Top of Thread Archive
Kathy, you should be able to figure out that you are gazing at your man friend with the eyes of love and adoration. When you are dining alone, you are resting up for when he returns and don't waste your eyesight looking at the walls.

Sally in North Idaho who has an answer for everything, almost.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Eyes of Love

Re : Re: Eyes of Love --- Sally - in - Idaho
Posted by Shirley-Arkansas-USA , Mar 14,2002,15:56 Top of Thread Archive
But Sally, now what are Virginia and I going to tell Carl and Roy when our eyes stay closed when we are dining?

Shirley in Arkansas




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Eyes of Love

Re : Re: Eyes of Love --- Shirley-Arkansas-USA
Posted by Sally - in - Idaho , Mar 14,2002,16:07 Top of Thread Archive
Tell them you are dreaming of the lovely romantic times to come.

Sally in North Idaho, who does have answers.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Eyes of Love

Re : Re: Eyes of Love --- Sally - in - Idaho
Posted by Ann Doyle , Mar 14,2002,17:40 Top of Thread Archive
Or thinking of his holy underwear. No , let's not go over that again. I think we've beaten that to a pulp or a thread. Ann Doyle



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: "Holey" vs. "Holy" ... and my dog

Re : Re: Eyes of Love --- Ann Doyle
Posted by Sally - in - Idaho , Mar 15,2002,00:58 Top of Thread Archive
Ann, I think you mean "holey" underwear, unless the guy is a man of the cloth.

Sally in North Idaho who has a missing dog. Please ... everyone who believes in prayer, help us pray for the return of our "Kelly." He is older and rather crippled, and not at all acclimated to be out all this cold, wet night. We have driven the town so many times this afternoon and just got back from another trip now at 11:00 p.m. No sight. He is probably with a pack being lured by a female temptress. I am so worried.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: "Holey" vs. "Holy" ... and my dog

Re : Re: "Holey" vs. "Holy" ... and my dog --- Sally - in - Idaho
Posted by Ann Doyle , Mar 15,2002,05:51 Top of Thread Archive
You're right. I can remember when I could spell.
I have always had a dog. Right now I have 3. I hope you have found yours by now. Have you tried the shelter?
Years ago we lived in Japan and got a dog. We took a ship home and landed in Seattle. We took a train to San Diego and when we got there the dog broke out of his cage and ran away. Losing a dog is awful. Ann Doyle



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: My prodigal dog

Re : Re: "Holey" vs. "Holy" ... and my dog --- Ann Doyle
Posted by Sally - in - Idaho , Mar 15,2002,10:48 Top of Thread Archive
Thanks for the comforting words, Ann. I am so happy to report that our prodigal "Kelly" was found this morning. We got up at daylight and resumed the search, finding him just a while ago in a driveway with a few other lovelorn dogs. He was welcomed home as the prodigal, of course. Now he will sleep all day and not be allowed outside the fence no matter what!

Sally in North Idaho who at least got a big pot of soup made last night while I was waiting up, hoping to hear a scratch at the door, and being a nervous wreck. Now I have lucious soup to serve so something good came of the ordeal! It's cold enough to enjoy soup.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: My prodigal dog

Re : Re: My prodigal dog --- Sally - in - Idaho
Posted by Shirley-Arkansas-USA , Mar 15,2002,11:27 Top of Thread Archive
Sally, I was glad to hear that Master Kelly was located. I know that you are relieved. We really do get attached to these little four legged friends.

Shirley




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: My prodigal dog

Re : Re: My prodigal dog --- Shirley-Arkansas-USA
Posted by Ann Doyle , Mar 16,2002,07:15 Top of Thread Archive
I love stories with happy endings. Ann Doyle



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: My prodigal dog

Re : Re: My prodigal dog --- Ann Doyle
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), Mar 16,2002,07:26 Top of Thread Archive
Me too. Sigh. Did that tramp find his lady?



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: My prodigal dog

Re : Re: My prodigal dog --- Kathy in Atlanta
Posted by Sally - in - Idaho , Mar 16,2002,23:02 Top of Thread Archive
My tramp found "a" lady. He and I are both still recovering. We are both too old for such nonsense and staying up all night! Kelly is limping a lot on his bad leg and is so tired and uncomfortable from getting so cold. I'm still trying to catch up on lost sleep.

Sally in North Idaho who is too old for errant children!




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: My prodigal dog

Re : Re: My prodigal dog --- Sally - in - Idaho
Posted by June in Toronto (June Floyd,June in Toronto), Mar 16,2002,10:35 Top of Thread Archive
I was so upset when your dog was supposedly `lost' Sally, I didn't want to post to you! I'm so glad he returned - give him a pat from me.

June in Toronto




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: My prodigal dog

Re : Re: My prodigal dog --- June in Toronto
Posted by Sally - in - Idaho , Mar 16,2002,23:03 Top of Thread Archive
Thanks, June. He's getting lots of love and attention.

Sally in North Idaho where March is still being March ... changes by the hour.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Eyes of Love/Ann

Re : Re: Eyes of Love --- Ann Doyle
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), Mar 15,2002,05:45 Top of Thread Archive
You are too funny!



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Eyes of Love

Re : Re: Eyes of Love --- Sally - in - Idaho
Posted by Virginia , Mar 14,2002,22:52 Top of Thread Archive
And not the lovely romantic times in the past? I'm not sure I could keep a straight face. He's a great guy, but not particularly romantic.

Virginia in AL, who is afraid that Carl and Roy might compare notes and wonder.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Eyes of Love

Re : Re: Eyes of Love --- Virginia
Posted by Shirley-Arkansas-USA , Mar 15,2002,10:12 Top of Thread Archive
We'll have to keep them separated at the next conference. :-)
Roy-Romantic? He has many wonderful qualities and I wouldn't trade him for the world but he has never been romantic. It would be so out-of-character for him. Watching TV on the same couch is about as romantic as it gets.

Shirley in Arkansas who thinks that Roy and Carl probably both enjoy the attention they get.




Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile
Re: Eyes of Love

Re : Re: Eyes of Love --- Sally - in - Idaho
Posted by Kathy in Atlanta (kathy,Kathy in Atlanta), Mar 15,2002,05:42 Top of Thread Archive
I am? Don't tell him that! I was counting on a more scientific explanation, as in Kingsolver's book that is really good and funny.



Recommend Original Message Top of Thread Where am I? Current pageAuthor Profile