positive results from bulletin board


Posted by r coutant , Mar 20,2002,18:17   Archive
i'm drinking diet rite cola, taking both klonopin & benedryl,
i've got a great new doctor, and i'm going to a support
meeting at presby in dallas this saturday.

i've got all of this together from you guys on the beb.

everyone including dee has been just great to me.

i even have a sheet of paper with dr. andersons's injection
sites and my doctor sweetly provided me with his.

let's move on now and get our positive energies flowing.

thanks to everyone,

rhonda coutant




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Re: positive results from bulletin board

Re : positive results from bulletin board --- r coutant
Posted by Shirley-Arkansas-USA , Mar 20,2002,18:52 Top of Thread Archive
Thanks Rhonda for the positive feedback. I'm with you, let's move on. It's nice to feel like you've gotten a little control back, I'm sure. Is the Benadryl zonking you or the combination of Benadryl and Klonopin? What dosage are you taking?

Shirley in Arkansas where it has finally stopped raining.




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Re: positive results from bulletin board

Re : Re: positive results from bulletin board --- Shirley-Arkansas-USA
Posted by r coutant , Mar 20,2002,20:51 Top of Thread Archive
hi shirley,

i'm using .25 of klonopin 3 times a day.
i'm also using 50 mg of benedryl 3 times a day.

i don't have a problem with sleepiness.

what was truly amazing about today's doctor visit
was his explanation of his injection sites.
i had borrowed a video from the bebrf and Dr. Anderson
documented his sites. he uses 5 per eye.
my doc, Dr. Merritt seems to be hitting the same spots
with 4 additional sites per eye. yes, i said 9 injection
sites per eye. so i guess he's using less per site.
i wonder if that is why his shots seemed ineffective
last time. go figure.

rhonda coutant




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Re: Medication and doctor visit

Re : Re: positive results from bulletin board --- r coutant
Posted by Shirley-Arkansas-USA , Mar 20,2002,21:21 Top of Thread Archive
Glad to hear that the Klonopin and Benadryl are not making you sleepy. I don't have a major problem with dry eyes but the Benadryl can have a drying effect on your eyes so be aware of that. When the Benadryl was really working and helping to keep my eyes open, I would get a slight burning sensation in my eyes and I'd have to use my preservative free drops to counteract that but I never really minded doing that or having the burning because my eyes were open.

Those videos from the BEBRF are interesting. I would get one and send it back and ask for another. I copied them all for myself. The audio tapes from the conferences are really good, too. The first year that I had BEB, I couldn't go to the conference so I ordered the tapes and I sat on the couch and listened to them and cried. The information and people talking about BEB was overwhelming to me. There were hours and hours of doctors and patient panels discussing things. I soaked it all up. I couldn't get enough. I had a need to understand as much about Blepharospasm as I could. I now have 3 sets of them.

The docs are all going to inject a little differently. I've gotten as many as 8 sites per eye. I'm just glad that they have never hurt very badly when I have gotten them. I'm lucky there. Hope the injections that you got today work well for you. I'm glad that your visit went well and your doc explained the sites to you. It really helps when you feel like you are a partner in your own care.

Shirley in Arkansas

--modified by Shirley-Arkansas-USA at Wed, Mar 20, 2002, 21:23:29




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Re: positive results from bulletin board

Re : positive results from bulletin board --- r coutant
Posted by Dee in OR , Mar 20,2002,19:44 Top of Thread Archive
Rhonda,

Thanks! You are truly an inspiration. You have really worked hard the past few months and the fruits of your labor are showing!

I agree with you, let's move on and get the positive energies flowing again.

Dee in OR




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positive is good

Re : Re: positive results from bulletin board --- Dee in OR
Posted by Delaine Inman , Mar 20,2002,21:54 Top of Thread Archive
What we focus on expands, so I'm all for positive energy and posts. Let's have a group hug with each other at the cabin fever party and move on. We don't have to "see eye to eye on everything". How boring is that? Now everybody take a deep breath, let it out slowly, and get some sunshine or artificial lighting from Dee's Box and eat chocolate until we can't eat anymore. I'll give massage, do aroma therapy, play soft music until everybody snaps out of the depression or stressed out feeling and then we'll put on fast music and dance. Peace to everyone. It is still raining, but starting tomorrow we have 5 cool but dry days. Safe from the flooding and hope everyone else is too!



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