Hi Patty. Thanks for sharing your experience with Myobloc. People do ask about it periodically and we have very few that have tried it.
Please continue to let us know how it does for you over the next couple of months.
I have a little theory (my own and others may not agree with) that when one has "same day results" from their injections that it may be a matter of the injections or needles themselves rather than the BOTOX or Myobloc that was injected. Or possibly the combination of the needle and injecting solution into the area kind of like an accupuncture treatment. Or a type of sensory trick. I always think of this when someone says that the day they got the BOTOX, there eyes were great and the next day "it stopped working". I'm not sure about Myobloc but with BOTOX, it usually takes a couple of days before you actually start getting the benefits from the BOTOX and then there is a gradual increase in positive or negative effects. Some people do say that the effects are immediate but that has never been the case for me. Anyway it is just a thought of mine.
I think that Elan is working on that "more painful" thing with Myobloc and hopefully will have that remedied before too long.
I also tried Artane and couldn't handle the side-effects. It does help some, though. Glad to hear that the Parsitan is helping and without the side-effects. What dosage are you taking? I also tried it but did have side-effects and had to stop it. There are some others on this board that have used or are using Parsitan with good results.
We always like to hear what is helping someone with the symptoms of BEB.
Keep us posted on the Myobloc. Always glad to hear from our "readers".
Shirley in Arkansas