| Posted by Gisela ® (Gisela Rentmeister,Gisela), Apr 07,2002,22:05 |
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The first difficulties with my jaws started in the mid 80s. BEB followed in 92 (until then my eyes were just fine). I had my first Botox injections in 1993 at which time I was given a dystonia booklet titled "DYSTONIA - WHAT NOW ?" (last edition '95), my first piece of literature regarding this disorder. Focal Dystonia (a condensed version of the DMRF, written by Professor C.D. Marsden) describes BEB and Oromantibular Dystonia in detail and adds "Meige's Disease is a combination of blepharospasm and oromandibular dystonia".
There obviously is a distinction in name between the one and the other. I've always known Meige Syndrome to be the combination of both kinds of dystonia and am now a bit confused at times to see Meige mentioned as a diagnosis when only one of them is present at the time.If this post makes for confusing reading, my sincere apologies. However, perhaps there's someone who can share some light on above questions.
Gisela in beautiful B.C. - who isn't in the best of moods because she missed most golf balls due to BEB-blurred vision. Is this going to be another stress relieving thing of the past...
--modified by Gisela at Mon, Apr 08, 2002, 04:36:16
Re: Oromandibular Dystonia & Blepharospasm = Meige ??
What kind of problems did you have with your jaws at first , do you remember? Could it have been the result of any dental work or tmj?
Re: Oromandibular Dystonia & Blepharospasm = Meige ??
Thanks, Kathy, for responding. First symptoms were difficulties with chewing food. They were slight at first but became more and more severe. My sons thought then already there was something very wrong because they noticed my neck muscles bulging from the effort.
And, yes, the symptoms were first diagnosed with tmj. As I mentioned in my introduction post, I was told symptoms would disappear after all teeth are capped. After that was done, nothing had changed. My g.p. had read about dystonia and referred me to Dr. Tsui, my neurologist in Vancouver, who diagnosed oromandibular dystonia. Later BEB followed, and the disorder was given a name: Meige's disease, now known as Meige Syndrome.Take care, Kathy !
Gisela
Meige
Gisela:Meige IS a combination of BEB and Oro-Mandibular Dystonia. Some articles are not as clear as they could be. Judy (who is real tired of every thing doing the jitter-jive)
Related link: http://http://www.blepharospasm.org/blephar7.html#A1
Re: Meige
Thank you, Judy. Sure hope you'll get a break as well one of these days in the jitter-jive misery.Hugs, Gisela
Re: JITTERBUG JUDY:-)
Re : Meige --- Moderator-JB
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| Posted by June in Toronto ® (June Floyd,June in Toronto), Apr 08,2002,16:55 |
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Sorry you are having such a bad time Judy - you still have your sense of humour though and tht helps.Hugs. June in Toronto (beb/meige)
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