TO LYNN YARBROUGH, RE: PHOTOPHOBIA


Posted by June in Toronto (June Floyd,June in Toronto), Apr 28,2002,18:05   Archive
Lynn, I read your explanation post of "Why photophobia is a problem for us", Dec. 8, 2001, at a beb support group meeting today, as I thought it was a very well thought out reason as to why beb'ers have light sensitivity. They were so impressed with your explanation that they wondered if it could be printed in our support group newsletter, for others to read. So I am asking your permission to reprint it under your name -- see you could be famous if you agree!:-)

June in Toront (beb/meige)




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Re: TO LYNN YARBROUGH, RE: PHOTOPHOBIA

Re : TO LYNN YARBROUGH, RE: PHOTOPHOBIA --- June in Toronto
Posted by Lynn Yarbrough , Apr 28,2002,20:24 Top of Thread Archive
No problem -- go for it. Who knows? It might even be correct! :-)

Anything I write in this forum is intended for the benefit of other blefros, and not for profit or any other motive. Feel free to copy anything you read from me.

I would like to get a copy of the newsletter. Thanks!

--- Lynn




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Re: TO LYNN YARBROUGH, RE: PHOTOPHOBIA

Re : Re: TO LYNN YARBROUGH, RE: PHOTOPHOBIA --- Lynn Yarbrough
Posted by June in Toronto (June Floyd,June in Toronto), Apr 29,2002,05:46 Top of Thread Archive
Thanks, Lynn. I'll tell the people who write/put out the newsletter to send you a copy. I'll give them your e-mail so they can contact you. The newsletter may not come out for a few months though.

June in Toronto




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Re: TO LYNN YARBROUGH, RE: PHOTOPHOBIA

Re : TO LYNN YARBROUGH, RE: PHOTOPHOBIA --- June in Toronto
Posted by Lynn Yarbrough , Apr 29,2002,15:25 Top of Thread Archive
For those of you who didn't see the original message, it's in the archives here, currently on P. 39, Titled "Why photophobia is a problem for us".

--- Lynn




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Re: TO LYNN YARBROUGH, RE: PHOTOPHOBIA

Re : TO LYNN YARBROUGH, RE: PHOTOPHOBIA --- June in Toronto
Posted by Lynn Yarbrough , Apr 29,2002,15:26 Top of Thread Archive
For those of you who didn't see the original message, it's in the archives here, currently on P. 39, Titled "Why photophobia is a problem for us".

--- Lynn




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Re: TO LYNN YARBROUGH, RE: PHOTOPHOBIA

Re : Re: TO LYNN YARBROUGH, RE: PHOTOPHOBIA --- Lynn Yarbrough
Posted by Pippa , Apr 30,2002,12:49 Top of Thread Archive
I can't find it there on page 39. I tried the search too but got nowhere. I would really like to read this article on photophobia..any more hints on how i can find it?
Pippa



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Re: Photophobia link

Re : Re: TO LYNN YARBROUGH, RE: PHOTOPHOBIA --- Pippa
Posted by Shirley-Arkansas-USA , Apr 30,2002,13:37 Top of Thread Archive
Hey Pippa,
Try this link. It is on page 39 of the archives. You were probably checking on the more current page 39.
This link should take you right to it. Geez, I spoil you people. :-)

http://www.blepharospasm.org/forums/beb/archive/19440.html#19440

Shirley in Arkansas

--modified by Shirley-Arkansas-USA at Tue, Apr 30, 2002, 13:38:40




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Re: Photophobia link

Re : Re: Photophobia link --- Shirley-Arkansas-USA
Posted by Pippa , Apr 30,2002,17:44 Top of Thread Archive
Yep, you sure do. Thanks. i have read it and agree with your theory.
i have just been to the theater tonight and enjoyed the play "A Perfect Day" in spite of the fact that I forgot to take my mysterious look with me, ie my dark glasses. I did find that a fluttering half open blink helped me to adjust to the change of lighting occasionally. Goodness knows what the people around me thought...and who cares? I am becoming a bit blase now I think. Or maybe it was just that i had sympathetic company with me in the shape of two friends.
Pippa, feeling fortunate tonight.
I think everyone looks really nice in their dark glasses in the photographs. At least we can wear something flattering to help us, so we are all fortunate that way, aren't we?

--modified by Pippa at Tue, Apr 30, 2002, 17:46:48




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Re: TO LYNN YARBROUGH, RE: PHOTOPHOBIA

Re : TO LYNN YARBROUGH, RE: PHOTOPHOBIA --- June in Toronto
Posted by Claire Wolstencroft , Apr 29,2002,16:18 Top of Thread Archive
Thanks everyone for the address of the UK Dystonia society..I will get in touch with them. It's interesting about the photophobia as when my eye problems first started my 13 year old son suggested that I wear sunglasses when I was in bright lights as he had noticed that marked changes in light intensities made my eyes worse! Clever lad!
Best Wishes, Claire



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