Re: Thank you/LaShelle
That's just a beautiful picture of you and your husband. You certainly have done a huge amount of work on your site, it must have involved a lot of research. The old photographs are charming and really add a lot to it. Sorry, I don't know any of these people, but it's very interesting!
Re: Thank you/LaShelle, & more
Thank you for the compliments on my page. I have been researching since 1970, and have worked on the birth, and adoptions lines, of all my family. It was a real passion with me. I have even taught classes and loved to help people learn how to do their own research. When the computer came along it was a real help until my eyes got so bad I could hardly see the screen, or microfilm. Then I became depressed and felt so alone, and hopeless, and useless. I thought I was the only one in the world with this problem. I even wanted to die. I am so grateful that I found you all, although I am sorry you have to suffer also.
As any mother and grandmother I am very proud of my family but felt like I could not be a useful part of their lives anymore. I have a sixteen year old daughter at home and felt like I was failing to be a benefit in her life. I feared I embarrassed her but she, bless her heart, say her friends understand. Now that I have a recommendation to go to UCLA medical I have hope. Cousins we have never met (some from England) are coming to visit in July. I am praying that I will be in condition to enjoy them. When my face is spasming I feel hideous, like I offend those who look at me. And it is exhausting, and stress makes it worse, as you all know. My eyes are open now, but the bottom half of my face is still acting up. However I am much better than before the Botox shots and I could accept being like this. I just don't know how long they will last.
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I guess you know you can click and see pictures of my daughter's Myranda's family, and my Dad, and some pictures of ours too, on my page.Love,
LaShelle
Re: Thank you/LaShelle, & more
You really did a great job of researching and setting up that web page, LaShelle - I enjoyed reading about your fmily and seeing the photos.We are glad you found this bb as well - we all need each as this is sucha strange disease and we can't expect others, who haven't experiened it, to understand as well as we do, what its like to live with it. I hope your UCLA appointment goes well for you. You will do fine when your relatives come to visit in July - just tell them you have a movement disorder (have info pamphlets available for them to read if they want to know more) and be yourself -I'm sure all will go well. Best wishes June in Toronto (beb/meige)
Re: Thank you/LaShelle, & more
The spasming IS exhausting LaShelle. Usually when that happens to me it is too painful to think about how I look or i just stay by myself because i can't function that way.
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